1/The hand off.

My son is severely autistic with an intellectual delay. He is 9 & can use limited words to ask me for juice, to go outside or demand his weekly Timbits ration. Beyond that, we cannot converse. I don’t know how he’s feeling, if he’s nervous, unsettled or scared. Image
2/ I have only the cues and clues we are able to gather from tears & giggles, and the signs of eagerness or apprehension.

I dreaded the day he started school. The thought of handing him off to a stranger in the care of 30 other 4 yos was not something my mind could compute.
3/ Further to that, it just wasn’t an option. I wouldn’t do it. I struggled with the daily challenges of supporting his needs with a 2 year old in tow, in my own home where I could lock the doors and cupboards and use every childproofing device I could find. My son is curious and
4/blissfully unaware of danger. This duo, coupled with the energy of a dozen 4 year olds and his discomfort in sitting still for any length of time longer than 15 seconds was a recipe for disaster. As parents we would plan every moment outside our homes to foresee challenges,
5/triggers, dangers and inconveniences. If one child runs one way, and the second runs the other—and neither respond to your screams to “STOP!”, what do you do? If your child is fascinated by water and heads hyperfixed to any and every receptacle of water, be it a river, a storm-
6/water pond, faucet or an unsupervised glass of water—how to you carry on with anything else in your day? If your child is keen on exploring absolutely anything they can get their hands or mouth on—how do you prevent constant illness from the passing on of germs or a belly
7/full of pebbles or wood chips from the neighbourhood playground. Fast forward 5 years, and how do you physically manage the needs of a 100 lb child with little to no understanding of safety, obligations & rules who is also understandably apprehensive of anything from
8/teeth brushing to vegetables to winter boots to a visit to the pediatrician? We are faced w/ logistical challenges directly rooted to safety and everyday necessities every single day. It never stops. Ever.
When you are this tied to the well-being of a 4 year old, a 10 year old
9/or a 28 year old—how do you hand them off?

How do you leave them in the school yard that first horrifying day in early September that is filled with tears & apprehension & anxiety for EVERY family. How do you do that if you know your child WON’T intrinsically know to follow
10/the lead of the other kids who flock to their lines at the sound of a bell. Or that still struggle w/ the concept years upon years later?

How do you drop your child off with strangers when you are the only person on the planet that speaks his unspoken language, or recognizes
11/the atypical signs of pain, sadness, or hunger before they happen? How do you pass a child off to a room of screaming 4 year olds when you know that they struggle in loud, busy spaces?

I know how. And I’m lucky to know how.

The first day I strapped my son into the special
12/transportation van that to this day still pulls into my driveway each morning to take my son around the corner to school, I followed the van.

But I didn’t follow my tiny boy into the building.

I watched as a woman stood at the curb by the school gates, smiled and
13/unbuckled him. She took his hand in one, and his far-too-large for his tiny frame backpack in the other. And she led him into the building.

The hand off.

For the next several hours someone else opened his snack containers, helped him in the washroom, took the pebbles
14/and wood chips from his mouth and chased him down the hall full-tilt when he jumped from his seat and ran from the room.

Someone else ensured that me, dropping my son off at school, made more sense than leaving a 2 year old in the middle of a grocery store and hoping for the
15/best. Because to this day, this is a fair comparison. My son does not yet possess the skills to face the world independently & make it through each day.

My son has an Educational Assistant who before sitting alongside him to guide his hands over his early math activities or
16/assist with his adaptive scissors for his first snips through paper is ensuring that he is fed, safe, clean and exactly where he should be.

My son’s Educational Assistant ensures that he is EXACTLY where he SHOULD BE. Both literally and figuratively. If she is not there Image
17/then he is not there. If she is not available to him, then school is not available to him.

She is ACCESS. She is the accommodation needed both for my child to access his right to an education & the person who ensures that the teacher in the classroom can focus on delivering
18/YOUR child’s right to an education.

This is everyone’s fight. This is my fight. This is @Sflecce and @fordnation communicating that bare-bone resources are all that’s needed to keep kids in school. This is the Minister of Education communicating LOUDLY and CLEARLY not only
19/that some Ontarians aren’t deserving of a living wage, & should be silenced w/ the removal of basic human rights, but that my child and his education do not matter.

The challenge that a strike imposes for the average family is the challenge that my family faces every day of
20/every school year. In order for my life to work, and in order for my children to remain safe, unharmed and alive I need to intrinsically trust another human being every day. @Sflecce is telling me again that my trust as a mother of a vulnerable child is only worth poverty-line
21/wages.

No Ontarian should be vilified for asking for a living wage. No child should be deprived of the resources they need to access education.

No mother should be forced into “the hand off” without one of these remarkable humans on the other side to accept that little, or
22/Not-so-little hand.
I stand with @CUPEOntario. I stand with Education Support Workers. #onted #ontedsolidarity #onpoli #39kIsNotEnough #50KIsNotOk @Sflecce @JohnFraserOS @Peter_Tabuns @ChandraPasma @fordnation Image

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More from @ottawa_asd_mum

Nov 3
1/Children in Ontario have the right to an education. That should be the case whether they have a disability or not. Educational Assistants are ACCESSIBILITY PERSONIFIED for children with disabilities.

They enable access. They allow my child & others to enter a school. Without
2/EAs the doors to education are closed to my child every day of the year.

I am nothing less than disturbed that the government elected by 40% of our population fails not only to value, but to recognize the value of these individuals who care for the province’s most
3/vulnerable children when their mothers and fathers and caregivers cannot.

Let me be perfectly clear. @Sflecce stands before the cameras and makes feeble attempts to turn parents like me against the people we have hoped for. And begged for. And put ALL of our trust in as
Read 8 tweets
Nov 2
1/ I have a child with an autism diagnosis and intellectual delay. He is 9. He spends his mornings included in a Grade 4 classroom.
2/ He is not doing what his classmates do. He works at his own pace, with his own (extremely) modified curriculum while he practices sitting at a desk for longer than 20 minutes.
3/ He has the kind of needs that dictate he be supervised at all times. ALL. TIMES. If you have children, consider that feeling when you watch them climb onto the yellow bus and then wave from their window—or when your teenager flies through the kitchen, grabs their lunch and
Read 22 tweets
Aug 29
🧵🪡
Dear @Sflecce:
I wish you could understand how unsettling, nerve-wracking, *insert uneasy synonym here* it is to approach a new school year as a parent of a special needs child. But you won’t. You may have read a handful of briefings or listened to colleagues tell you
how your government is doing a “stand up” job at special education—but until you’ve fathered children of your own who may need a little more in Ontario, you won’t know.

I wish you could know how maddening it is to hear you talk about how “wonderfully” your govt is
doing at supporting special education when REAL, ONTARIAN FAMILIES have children who cannot attend school, or who are sent home because of inadequate resources, or who are unsafe or who “don’t present with enough challenges to deserve support”.

You don’t support our Boards, who
Read 17 tweets
May 31
I’ll continue to say this as it hurts too much not to. @fordnation is either lying, or is so misguided that he believes the lies he’s being fed.

Both should prevent him from sitting as Premier.

@fordnation has the *GALL* to *CAMPAIGN* on an *UTTER POLICY DISASTER* that is
*CURRENTLY* hurting families and will *CONTINUE* to do so for years because of stupidity and inaction.

The Ontario Autism Program is NOT fixed. It is NOT Needs Based. If does NOT have clinical direction and it is NOT “designed by the community for the community” because
it goes against the most crucial recommendations given by the OAP Advisory Panel.

These policies not only hurt families, but devastate families. They have deprived children of care. They spit in the faces of advocates who have dedicated countless hours trying to
Read 6 tweets
May 19
Daily Reminder that @fordnation HAS NOT fixed the Ontario Autism Program:

What would constitute ‘fixed’?

1️⃣ Adequate funding, with the $600M promise being spent.
❌ Ford did not spend the promised funding and continuously fell short.
#50KIsNotOk #onpoli
2️⃣ A program that recognizes that AGE has no bearing on a child’s needs.
❌ Ford’s program penalizes children by clawing back funding as they celebrate birthdays.
#50KIsNotOk #onpoli
3️⃣ A program that delivers based on recommendations from a clinician who has evaluated the child.
@fordnation has removed clinical input. Funding is determined by an algorithm after a 2 hr phone call between a parent & a non-clinician who has never met the child. #50KIsNotOk
Read 12 tweets
May 10
@MacLeodLisa is my MPP in #Nepean. How unbelievably sad that over the years we’ve become completely desensitized to her antics; this type of story is almost expected. I have autistic children. We have been deeply, deeply hurt by MacLeod’s policies. But we’ve also had enough face
time (or attempted face time) with the Minister to know that #Nepean deserves so much better. Our community has been publicly accused of trying to run her out of office. I think her record might do the job on its own.

We had been invited to an Autism Roundtable in January 2019.
@MacLeodLisa abruptly walked out of the meeting when the questions got tough.

I was invited into the Minister’s office during the first Ottawa protest after she made the Autism announcement that would send the program and families into a downward spiral for 3 years & counting.
Read 13 tweets

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