1/My son is autistic. He’s 9.5. Amazing. Solid. Unfettered strength that can take both his parents down. Non-conversational. Developmental age of under 3. No regard for danger. Hyperactive with a low attention span and rarely sits still for longer than a minute. He uses movement
2/to self-regulate. Lives his best life, every day like it’s his last. No time for anything that isn’t in his Top 5 of awesome things to do. He goes to school for half days in the mornings, and attends a therapy program in the afternoons. His schedule was built this way
3/because he fails to be productive after 3 hours and is always ready for a change of scenery.
He has a dedicated 1:1 EA that is by his side for every second that his feet are on school grounds (or hovering above school grounds when darting or frolicking from one end of the yard
4/to the other). I can guarantee that his EA is getting her steps in. And she has to be quick. She always has to be “on”. There is no ‘down-time’ when with my son.
If you’re a parent—think back to the days immediately following your tot’s 2nd birthday—the level of energy,
5/movement, joy, upset, need for assistance in every day-to-day task. Now add 80lbs and the desired autonomy of a child nearing 10.

Keeping my son safe, clean, fed and where he is supposed to be is a full time job on its own. As his mother, I am still hoping to learn
6/the secret of actually teaching him—effectively!—on a daily basis. EAs arent just vital. They are basically heroes, magicians & Olympic athletes as well.

A special needs parent’s need for these people alongside our kids isn’t always a life and death, dramatic, pull-at-your-
7/heart-strings tale. We need not only their dedication to the job, but their stamina—both physical and mental—and their *expertise*. As much as they are willing to learn about your child from you; they have learned skills in spades. Not everyone is cut out for this type of
work, and these folks certainly aren’t doing it for the money.

8/I would challenge @fordnation and @Sflecce for their next photo op production in a public school to stay for longer than the 10 prescribed minutes of scripted interest & feigned smiles while you stack blocks with
9/A half dozen kids who don’t know who the hell you are. Instead, head to the table in the back and commit to a half day, or even just 30 minutes—and offer to cover an EA’s snack and bathroom break, (actually, scratch that, as I wouldn’t trust you with my child as far as I could
10/throw you). Maybe just watch. Grab a pen and take notes on how to be one of the most valuable humans in the lives of specials needs families.
And @fordnation, @Sflecce— I’d suggest you come prepared with some track pants and sensible shoes. You may want to stretch first.
11/If you can come out of that and STILL not think that an average salary of $39k is criminal—then you’re more removed from reality than I had thought.

These people need to be applauded, respected & compensated for the demands of their work and value of their craft. Not
12/Vilified by a couple of privileged men keen on giving themselves raises for endlessly repeating talking points with the fervour of an automated answering machine recording.

At the very least, I’ll be applauding these folks while standing with them at the picket line. You may

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More from @ottawa_asd_mum

Nov 3
1/The hand off.

My son is severely autistic with an intellectual delay. He is 9 & can use limited words to ask me for juice, to go outside or demand his weekly Timbits ration. Beyond that, we cannot converse. I don’t know how he’s feeling, if he’s nervous, unsettled or scared. Image
2/ I have only the cues and clues we are able to gather from tears & giggles, and the signs of eagerness or apprehension.

I dreaded the day he started school. The thought of handing him off to a stranger in the care of 30 other 4 yos was not something my mind could compute.
3/ Further to that, it just wasn’t an option. I wouldn’t do it. I struggled with the daily challenges of supporting his needs with a 2 year old in tow, in my own home where I could lock the doors and cupboards and use every childproofing device I could find. My son is curious and
Read 22 tweets
Nov 3
1/Children in Ontario have the right to an education. That should be the case whether they have a disability or not. Educational Assistants are ACCESSIBILITY PERSONIFIED for children with disabilities.

They enable access. They allow my child & others to enter a school. Without
2/EAs the doors to education are closed to my child every day of the year.

I am nothing less than disturbed that the government elected by 40% of our population fails not only to value, but to recognize the value of these individuals who care for the province’s most
3/vulnerable children when their mothers and fathers and caregivers cannot.

Let me be perfectly clear. @Sflecce stands before the cameras and makes feeble attempts to turn parents like me against the people we have hoped for. And begged for. And put ALL of our trust in as
Read 8 tweets
Nov 2
1/ I have a child with an autism diagnosis and intellectual delay. He is 9. He spends his mornings included in a Grade 4 classroom.
2/ He is not doing what his classmates do. He works at his own pace, with his own (extremely) modified curriculum while he practices sitting at a desk for longer than 20 minutes.
3/ He has the kind of needs that dictate he be supervised at all times. ALL. TIMES. If you have children, consider that feeling when you watch them climb onto the yellow bus and then wave from their window—or when your teenager flies through the kitchen, grabs their lunch and
Read 22 tweets
Aug 29
🧵🪡
Dear @Sflecce:
I wish you could understand how unsettling, nerve-wracking, *insert uneasy synonym here* it is to approach a new school year as a parent of a special needs child. But you won’t. You may have read a handful of briefings or listened to colleagues tell you
how your government is doing a “stand up” job at special education—but until you’ve fathered children of your own who may need a little more in Ontario, you won’t know.

I wish you could know how maddening it is to hear you talk about how “wonderfully” your govt is
doing at supporting special education when REAL, ONTARIAN FAMILIES have children who cannot attend school, or who are sent home because of inadequate resources, or who are unsafe or who “don’t present with enough challenges to deserve support”.

You don’t support our Boards, who
Read 17 tweets
May 31
I’ll continue to say this as it hurts too much not to. @fordnation is either lying, or is so misguided that he believes the lies he’s being fed.

Both should prevent him from sitting as Premier.

@fordnation has the *GALL* to *CAMPAIGN* on an *UTTER POLICY DISASTER* that is
*CURRENTLY* hurting families and will *CONTINUE* to do so for years because of stupidity and inaction.

The Ontario Autism Program is NOT fixed. It is NOT Needs Based. If does NOT have clinical direction and it is NOT “designed by the community for the community” because
it goes against the most crucial recommendations given by the OAP Advisory Panel.

These policies not only hurt families, but devastate families. They have deprived children of care. They spit in the faces of advocates who have dedicated countless hours trying to
Read 6 tweets
May 19
Daily Reminder that @fordnation HAS NOT fixed the Ontario Autism Program:

What would constitute ‘fixed’?

1️⃣ Adequate funding, with the $600M promise being spent.
❌ Ford did not spend the promised funding and continuously fell short.
#50KIsNotOk #onpoli
2️⃣ A program that recognizes that AGE has no bearing on a child’s needs.
❌ Ford’s program penalizes children by clawing back funding as they celebrate birthdays.
#50KIsNotOk #onpoli
3️⃣ A program that delivers based on recommendations from a clinician who has evaluated the child.
@fordnation has removed clinical input. Funding is determined by an algorithm after a 2 hr phone call between a parent & a non-clinician who has never met the child. #50KIsNotOk
Read 12 tweets

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