Austin Robert Profile picture
Dec 4 6 tweets 5 min read
Tethered spinal cord… released #longcovid
After learning from the #MEspine #MECFS community and their experiences post-viral, and many learning they have a connective tissue problem, I hit the ground running and well… here I am.
Thank you @TheCleanFoodist @karenlubell @TheArghonaut @julierehmeyer @jeff_says_that @jenbrea @kmaclean5 @ellavnorton @NoGoldChainz and many others who shed light onto this process as to what can happen when one gets exposed to a pathogen and doesn’t recover 💕
I also want to emphasize that this was congenital, as most tethered cords are.

Typically people live a healthy life until they are met with one or many events like an infection or mold only for the tether to become problematic - same for Craniocervical Instability, Chiari… etc
Don’t think structural changes can come about from an infection?

Polio~

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More from @ar_pnw

May 20
I haven’t provided much of an update in my #longcovid #mecfs #pots #mcas picture.

So here it goes… 🧵

For reference, I got Covid June ‘20 and spiraled into #longcovid July-Aug

What I’m working towards right now: tethered spinal cord evaluation by 2-3 surgeons.
Between Aug ‘20 - May ‘21 I was dx’d with: POTS, SIBO, MCAS, ME/CFS.

I also was tested for collagen disorders which came back negative.
Between Dec ‘20 and Aug ‘21 I had a workup around my c-spine because of *pulsatile* tinnitus in my left ear - a ‘whooshing’ sound. It can be an indicator of a vascular issue at the cervical junction (compression).

A CT revealed I had jugular compression.
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