I’m really bothered by something that I’ve seen happening for years on my page…
On my FB page, I regularly share posts from other Autistic People, because I don’t want my voice or opinions to be the only ones featured there.
Often, when I share something from another page (& sometimes even when I share my own experience), someone will come & pick apart the language people use, critiquing how people describe their own experiences, saying things like “I wouldn’t describe it that way” etc.
The other thing that will happen is when I share something, is someone will start inserting a bunch of meaning into the post that wasn’t there, saying there’s implied meanings that aren’t even mentioned, despite most Autistic People being very direct.
This really bothers me, because many Autistic People have trouble communicating. It can be hard for us to find the words.
I spend a great deal of time deciding what words I want to say. & if the words aren’t “perfect” (or I over think them), I’ll likely won’t share at all.
When I first started on social media I knew what I wanted to say, but often was afraid to share it, because of how this community piles onto people when they disagree, & the fear of having every word picked apart by people waiting to overanalyze everything I would write or speak.
I’m a “hyper verbal” Autistic (supposedly words come more easily to me - I’ve been told) & I’ve struggled to dance around “saying everything correctly” for years (& have been dogpiled many times when I got it wrong & people assumed bad intentions).
What are we doing to those who struggle with words more than I do?
What are we doing to those NEW to these online spaces, if they don’t understand all the “rules” yet?
Why do we make so many damned unspoken “social rules” & complain when nonAutistics do the same to us?
My thoughts: “STAKEHOLDERS” - many thoughts about the use of that word.
1. sounds like they see us as “business” 👀
2. It’s interesting to know what non-Autistic “stakeholders” think, because it shows how out of touch they are with the majority of those they claim to serve.
3. NonAutistic people should step aside, and listen to Autistics, vs talking over us.
What do YOU prefer? If you have the energy, why?
This number is different every time I see it but I can always count on what MOST Autistic People I know prefer (“Autistic” not “with autism”).
Much like when a Queer or trans person stays in the closet because they don’t feel safe, NeuroDivergent masking, or camouflaging, is defined as when a NeuroDivergent Person consciously, or subconsciously, masks or hides, their Divergent traits, in order to blend in.
We do it to keep ourselves safe. We do it because the world around us can be very hostile, and blending in is self-defense.
However… blending in can also feel like a slow death, putting yourself aside to pacify the expectations of other people, making yourself small, ignoring us our own wants and needs.
I recently saw a post where diagnosed Autistics were beating downs & shaming self-identified Autistic & NeuroDivergent People.
That will never fly in my presence for multiple reasons… mainly that diagnosis is something that is out of reach for many NeuroDivergents because:
1. The criteria was based on cis, white, boys… so if that’s not you, you are less likely to be properly identified/may be misdiagnosed due to poor understanding of multiply marginalized Autistic People.
2. If we come from poverty, our NeuroDivergent traits may have been blamed on “behavioral problems” growing up - and our NeuroTypes may have been dismissed/ignored.
My ND traits were blamed on me having a poor, single, mother.
Since discovering my NeuroDivergence, over five years ago now, I’ve learned something that sounds simple in hindsight. I wish I wish I could have known all along…
That is that I can only be truly happy and successful, if I am able to be my most authentic self, permitted to exist, and comfortable in my own skin, as I’m actually quite sure is the case for every single person reading these words.
It is a human need to be accepted as we are, the whole person strengths, weaknesses, and this includes all of our identities.
Hiding parts of who I am was preventing me from moving forward in life, and getting help when I needed it.
The founder of ABA said the following about Autistic kids:
“You see, you start pretty much from scratch when you work with an autistic child. You have a person in the physical sense – they have hair, a nose and a mouth – but they are not people in the psychological sense...."
"One way to look at the job of helping autistic kids is to see it as a matter of constructing a person. You have the raw materials, but you have to build the person.”
Lovaas strongly believed in intense behavioral modification interventions, that included harsh aversive techniques such as withholding touch and attention, isolation, and even giving electric shock "therapy"...
The first thing I would love for people to understand about sensory processing and sensory overload is that a NeuroDivergent Person, with sensory processing difference’s ability to tolerate certain stimuli can vary, from week to week, month to month, even day to day.
The ability to tolerate sensations can very, depending on a variety of factors.
One of those factors being how well rested, or how well off that individual NeuroDivergent Person is doing, on that particular day.
It can be the perfect storm if that person is feeling low energy that day, or they’ve already got a lot on their plate.
Maybe they’re already really stressed out about some personal thing or some change that’s happening in their life, or they’ve not slept well all week.