How to *not* make Christmas a horrible time for your #autistic friends and family.
A thread 🧵🧵🧵
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1. Don't force us to smile all the time. Some of us might be very happy, but it doesn't show on our faces. Our emotion and expression don't always match.
2. Do let us escape if we need to, even if it's in the middle of Christmas lunch. It might be an important meal, but if I know I can get up and decompress in a quiet room whenever, I feel far less stressed. #autistic
3. Don't make us join in family games if we don't want to. A busy family Christmas can be hell for social anxiety, and being forced to play Twister won't help that. #autistic
4. Do take an interest in our presents, especially if they're related to our special interests. I know I always wanted to talk about my new stuff as a child, and it's a real act of love to sit and listen. #autistic
5. Don't make a big deal out of seeing an autistic family member, especially if they've been hiding upstairs or something. That whole "hello stranger, look who's *finally* joining us" thing is bloody awful. #autistic
6. Do allow us to wear headphones or ear defenders or earplugs if we want to.
It might not fit your Christmas aesthetic, but it's bordering on cruel not to let us dampen the noise for our sound sensitivity. #autistic
7. Don't make us wear scratchy Christmas jumpers if we don't want to. The tactile overwhelm that wool causes (plus long sleeves and a tight neckline) is so bad for me personally that I feel I'm going to scream. #autistic
8. Do invite us to stuff, even if we might refuse.
It's one thing declining an invitation, and a whole other horrid thing to never even be asked. We're not all hermit introverts (I mean, I am but we're not all the same). #autistic
9. Don't get upset if we don't react 'appropriately' to Christmas treats. Those rules of how people ought to behave don't make sense to a lot of autistic people and so we may not do what you expect. We're not trying to upset you, we're probably overwhelmed. #autistic
10. Do set out clear schedules and itineraries. It's really helpful to know exactly when things are going to happen, both on a weekly level and also within Christmas Day itself. Otherwise it feels scarily random as our normal routine has vanished. #autistic
11. Don't forget to make sure all the Christmas presents that need it (games consoles etc) have been switched on and updated in advance - nothing worse than not being able to use your new stuff as a kid! Not really an #autistic thing - more a PSA.
12. Do allow us to have food we enjoy. #autistic people's sensory sensitivity extends to taste and texture, hence why we may seem 'fussy' (urgh). Being force fed food at Christmas is hardly in the spirit of the season.
13. Don't tell us off for stimming. Christmas day is stressful and if we want to fiddle with stuff at the dinner table or tap or sing or *anything* then give us a break, it really helps our stress levels. #autistic
14. Do let us be quiet. The stress of Christmas might make a lot of #autistic people non-speaking, even if we're not all the time, and being nagged to speak up and say hello to grannie etc can force us down the fast-track to overwhelm.
15. Don't make us make physical contact against our will. Being forced to hug and kiss is a nightmare for a lot of #autistic people due to sensory sensitivity and the fact such touch feels too intimate.
16. Do help us get organised if you can. My executive function is absolutely terrible and I find the organising of Christmas to be impossible. If you're in a position to help someone like me then it'd be very kind and lovely. #autistic
17. Don't chop and change activities all the time - give autistic guests and family warning time so we can adjust. It very often takes a while for us to change our focus. #monotropism#autistic
18. Do give us clear instructions. If you expect us to make or clear the table, for example, tell us. Many of us really struggle with overthinking these unwritten rules and social expectations. #autistic
19. Don't talk to us like we're children, especially if we have a new diagnosis and we're adults (but also if we're children). It's wild how often a new dx leads to people treating us differently - especially more distant relatives. #autistic
20. Do have a lovely time and just be as inclusive, compassionate as possible, and reserve judgement always. #autistic
I'll leave this here in case you like my writing and want to help support me do more.
Making vulnerable autistic people do pretty much *all* the work when it comes to bridging the communicative gap between autistic people and non-autistic people:
Not exactly fair, is it?
What does this work include?
Masking, scripting, anxiety, trying to pre-empt misunderstanding, dealing with the fallout of misunderstanding, trying to raise understanding and acceptance of neurodiversity....
The systemic unfairness of this, probably baked into western society for centuries, is going to be a challenge to change but it *has* to change.
Otherwise autistic people will continue to burnout and suffer high levels of depression
Been in the old big smokey apple (London) today doing some filmed interviews on neurodiversity with some lovely film producers from the US. Very fun experience - I now have a blooper reel all of my very own cos I can't keep a straight face.
Then afterwards I got rained on and got really wet feet and socks and went home.
So, swings and roundabouts.
Also, I had t been in London for maybe 6 years - certainly not since my burnout.
What an absolute sensory horror it is. Lovely and packed with architecture, but my word.
None of us wanted to face fascism in our lives but, like our grandparents and great-grandparents it looks like we're going to have to. It's here, and it's loud, and it feels overwhelming.
But there are still good people. Hate can never win completely.
Because there can be no doubt that what we see in America, the UK, Hungary, Italy, Russia is different forms of 21st century fascism, at different stages, wrapped in a modernity that hides its true nature to anyone who isn't paying attention.
It would be better for everyone if those who oppose it stopped pretending and stopped fearing the ridicule of the fascists for daring to proclaim them... fascists.
That's their best defence. Denial after denial after obfuscation after obfuscation. Don't let them do this.
So what's the deal with autistic people and routine?
Many, if not most, autistic people are heavily reliant on set routines of many types. Daily routines, morning routines, routines at work or school, hygiene routines, chore routines....
(a thread 🧵🧵🧵 - please retweet!)
Often these routines are viewed by outsiders as 'rigid' or 'obsessive. Sometimes they are viewed with frustration and autistic people encouraged to ditch them.
This represents a total failure of understanding what's going on.
Autistic people, for the most part, don't set up routines for themselves in order to be difficult, or just for fun, or just as a 'result' of being #autistic.
We do it for a good reason - establishing control and improving our lives.
Autistic kids in school get so stressed by every aspect of school and then they're the ones expected to modify their behaviour and somehow cope, rather than teachers trying to understand their struggles and giving them compassion.
It's simply not fair, nor rational.
Putting pressure on autistic kids to just swallow up the HUGE stress brought on by social difficulties, sensory sensitivity and executive dysfunction, so that they can mask and behave in the 'acceptable' way is just ridiculous.
There's a problem with underestimating the kind of chronic stresses autistic people experience, and fuels much of the unreasonable treatment we receive.
Teachers are in a good position to learn about this and treat their students compassionately as a result.