I’ve spent years of my life helping (or at least trying to help) people in my country, NZ 🇳🇿, as a frontline health worker.
Like many in the health sector, I put others 1st. Working continuously in 2020-2022. No lockdowns for us!
In June of 2022, I got Covid-19…/1
…and while I cannot be sure who I got it from (like it matters), it was likely a patient or colleague who gave me the gift that just keeps on giving.
Now I’m in month 7 of #LongCovid & my life has changed in ways I could never have imagined. /2
Twitter has been a great way to find & connect with other #Longhaulers around the world. For that I will be forever grateful. But, even with my thick skin, I can see I am wasting my time on here. I’m sick of the trolls, the doubters, non-believers and gaslighters. /3
People calling me names or judging me doesn’t bother me that much - I am GAY after all and grew up in the very toxic and homophobic 80’s and 90’s. But it disappoints me after my years of helping other sick NZers to see that those of us with LC are not… /4.
…afforded the same respect or even compassion. I have extremely limited energy and better things to do than try to debate or reason with people that are, quite frankly, unreasonable. Usually anonymous (but not always) these people will no longer occupy my thoughts or tweets. /5
I love my #LongCovid community and I’m not going anywhere! But, I will be making some changes over the next few days, as time & energy allow! For all the people out there who think it is ok to mock, joke or troll those of us with LC, especially those of you in NZ… /6
…I genuinely hope you never have to experience #LongCovid. It is real. It is not psychosomatic or caused by a mental health issue. None of us want to have it. We are not weak, lazy or entitled. If someone you knew had a chronic post-viral condition, would you…/7
…talk to them like you tweet to/at us? Maybe think about the next time you are tempted to tweet. To the growing #LongCovid community - we’ve just got to keep hoping that one day there will be a treatment or cure. Until then we have to keep advocating. This is not going to go…/8
…away. Neither are we. One thing is likely for me personally though:
I doubt I will ever work in the health sector in NZ again. I gave my all to help others and now that I’m one of the many needing help (and not getting it), it has changed my perspective massively. /9
If I come out the other side of this, my life is going to be very different. Very different indeed! /10 END
Big thanks to my followers and the decent people out there. I know there are a lot of you but sometimes your voices get drowned out by the trolls.
Yesterday I foolishly fell down the rabbit hole of reading the reactions to Jacinda Ardern’s resignation. BIG MISTAKE that I’m going to try and not repeat.
If anyone should be angry at the current Govt, it should be people like me - a frontline healthcare worker who… /1
…did as I was requested (trusted the science blindly, had my 3 x Pfizer jabs, wore a mask religiously, continued working through the lockdowns, debates/politics) AND then ended up getting Covid-19 and now #LongCovid. I am unable to work, have sold my home to try and… /2
…survive. I’ve felt locked inside a body and brain for the last 7 months that “no longer operates” the way it used to. At all. I have spent countless hours seeing Drs, Physios, Massage Therapists, Counsellors etc and spent countless hours ON HOLD waiting to get through to… /3
Like many people across the globe, I sat down with my popcorn last night and watched both the US and UK interviews of Prince Harry, to promote his upcoming memoir #Spare
I have pre ordered the book on Amazon Kindle. I’ll read it then I’m calling it a day. Here’s a thread 🧵
1 - Disclaimer = I’m not a royalist. When Princess Diana died, I had just turned 17. Like millions of others, I saw her as “The People’s Princess”. Any ‘magic’ I’d associated with the RF died along with her. I also find the circumstances of her death suspicious.
2 - I didn’t find either interview controversial or even particularly interesting. Nothing came out that struck me as surprising or new. If anything, I was a bit bored.