James Downs Profile picture
Feb 1 7 tweets 2 min read
It's #TimeToTalkDay tomorrow, so instead of telling mentally ill people to ask for help, here are 10 things to talk about instead:

1) the UK Government has scrapped their 10-year strategy for #mentalhealth

2) people with serious mental health problems die prematurely worldwide
3) mental illness is the leading cause of days off work in the UK

4) the number of mental health beds in the UK is decreasing, but demand for them is increasing
5) waiting lists for ADHD and autism assessments are around 2 years and above for most adults

6) clinicians in the UK support withdrawing care from patients with #eatingdisorders when they don't respond to treatment, without scientific evidence
7) research spend in mental health still lags way behind the research spend for comparably common and serious physical health conditions

8) the value of #livedexperience is loudly rejected by voices in major UK media outlets
9) Talk about how the mental health awareness conversation needs to do more than equate all discomfort and distress to diagnosable illness
10) Talk about how patients don't recover because they haven't had appropriate support, not because they are inappropriately unwell

Any more to add?
Some clinicians * / there are clinicians

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More from @jamesldowns

Jan 31
This year with my yoga business (Cambridge Yoga Project) we have a dedicated charity of the year for the first time! It had to be @MQmentalhealth - research is the future of #mentalhealth.

Read more about why I’m so pleased to support MQ including as an ambassador below 👇🏽 ImageImageImageImage
Our first event is on Tuesday 7th Feb 6-7.15pm and is called MOVE for MQ, a super fun movement/dance class fusing music, movement, yogic philosophy, embodiment theory and more- to create something good together!
If you happen to be in Cambridge do join in: yogaproject.co.uk/event-details/… or get a donation ticket if you fancy to cover costs/let someone attend for free who can’t afford it but would benefit.

I can’t wait to do more throughout the year (including online!)
@MQmentalhealth
Read 4 tweets
Oct 18, 2022
In my experience, the idea of being "held" has not been seen by #mentalhealth services as a part of their remit.

In fact, my need to be held or saved, at times, has been seen as a part of my pathology, and something for which I've been shamed.
It's a clinical need to be held in safety or saved from danger. It's not a need-to-feed some kind of a pathology/ a shameful part of yourself / a need you should have met elsewhere. But it can seem like services have given up on the ideas of holding in safety or saving from harm
Yet other services which support health see it very differently and use different language without the same shame. Lifesaving in emergency services, special care dentistry, high-dependency units - because they are needed not simply desired.
Read 4 tweets
Oct 18, 2022
One of the greatest problems in #mentalhealth care is how intensity of care is overlooked. You may have needed far more than an hour of therapy a week, but you're described as having had treatment. As though it was somehow automatically enough and appropriate for your needs
1/
But the evidence isn't there that 1hr of therapy/wk is the right intensity for all outpatients. It's arbitrary - reflecting service design & capacity more than patient need. It feels cruel when people will misunderstand you as being adequately supported because "in treatment"
2/
The gulf between inpatient care and outpatient at least in terms of contact hrs if not therapeutic activity is too vast. The push-to-community has raced to the bottom - the minimum of what can be provided to still constitute contact/treatment
3/
Read 11 tweets
Jul 19, 2022
(Possible) explanations for when patients with #eatingdisorders “aren’t engaged”, which don’t rely on stigma and assumed character defects:

1) their prior experiences of care give no reasons to trust

2) they were ready to engage years ago but help wasn’t available

Continues👇🏽
3) healthcare systems were “unprepared to change” with the patient

4) services were “not ready” when the patient was

5) treatment options and delivery format are “not engaging”

6) their clinicians are not trained

👇🏽
7) they are engaging just by being present in a space and system that could feel unsafe. The effort of this is overlooked.

8) treatment is inconvenient and inflexible

9) spaces can be excluding or infantilising (I spoke to a service last week with butterflies on the wall)

👇🏽
Read 24 tweets
Sep 5, 2021
My experiences of #mentalhealth emergencies have been many and varied, but they have ALL been made worse by a huge fear of being misunderstood or not heard. The absolute terror of being dismissed or ignored when in a crisis has been worse than the crisis itself.
The fear is not irrational. For me it became embodied through experience - experience of being denied care, being completely misunderstood, being hung up on by 111 & 999 because unable to stop crying enough to say your date of birth. Of being left without a support net at all.
I can barely explain the terror of your compellingly urgent and totally life-threatening experience being unknowable, uninteresting, unimportant or un-hearable to others. It's traumatic and makes help-seeking terrifying for fear of it happening again
Read 11 tweets
Jul 27, 2021
I never counted calories until I was told that people with anorexia are fixated on calories

When I was last in #eatingdisorders treatment it was suggested to me to count calories even though I'd been a healthy weight & not calorie-counted for over 5 years

This is a problem 🧵->
At what stage to we stop and think about how treatment might actually introduce people to harmful behaviour/thoughts/beliefs by imposing pretty fixed understandings of what it is to have a particular condition? I think this happens in #eatingdisorders
When those in authority, with the power to define constructs, say "#anorexia is this" (for example) - to what extent do *some* patients then feel that this construct is something they have to fulfil, embody, talk the language of?
To what extent do patients get *given* identities?
Read 9 tweets

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