Discover and read the best of Twitter Threads about #livedexperience

Most recents (24)

I found out that the person in charge of the job that I left (because of a toxic/ableist environment) shared the social media posts I made (about my resignation) with the team and said I was unprofessional.

This demonstrates a huge difference in how we operate. I believe in transparency & accountability. It’s how I’ve gained my reputation & community trust. My work belongs my communities. Plus, I was very diplomatic and held back in what I posted.

#transparency #accountability
It’s frustrating because accountability & self-reflection are what that project needs. He goes after me instead of addressing the real problem & focusing on self-reflection (after losing two queer, disabled consultants who said the environment was too toxic)
Read 7 tweets
🧵 To conclude our celebration of #AudreLorde’s 87th birthday we are now tweeting excerpts about her #livedexperience with and politics on metastatic #breastcancer fom “A Burst of Light” (1988). #bcsm #bccww #histmed #twitterstorians #BlackHistoryMonth #lgbthistory
“A Burst of Light: Living with Cancer"
The year I became fifty felt like a great coming together for me. I was very proud of having made it for half a century, and in my own style. “Time for a change,” I thought, “I wonder how I’m going to live the next half.”
Read 80 tweets
🧵#ODT in 1934 #AudreLorde was born. To celebrate the 87th birthday of the great “black, lesbian, mother, warrior, poet”, we are going to tweet excerpts on her cancer #livedexperience & politics from The Cancer Journals (1980) and A Burst of Light (1988) #histmed #bcsm #bccww
"The Cancer Journals"

“Each woman responds to the crisis that breast cancer brings to her life out of a whole pattern, which is the design of who she is and how her life has been lived. The weave of her every day existence is the training ground for how she handles crisis.
Some women obscure their painful feelings surrounding mastectomy with a blanket of business-as-usual, thus keeping those feelings forever under cover, but expressed elsewhere.
Read 212 tweets
Another great episode in this series, this time touching on #academia, #class and #traumainformed understandings of distress.

I love how @themichjam's #livedexperience informs her understanding of the change we need to see in #mentalhealth systems.


"You're such an inspiration!"

"Are you safe to be here?"

On responses from mental health professionals when identifying as person with #livedexperience during guest lectures.

"Over the years, I just got angry and that's why I decided to start speaking about it"

On the choosing to share #livedexperience as a form of activism.

Read 12 tweets
Sharing a few tweets of resources we've developed @clinicaltrialON in the past year to help people engage with #clinicaltrials (as participants or as collaborators on research teams). Thank you to our partners who have helped us. #talkclinicaltrials /1
Added to #TalkClinicalTrials -… - so people can hear from many perspectives about #clinicaltrials, including from participants, caregivers, and @GovCanHealth cc @Maureenchats @LMCManna @CeroniTina @LaraCeroni @HuntingtonSC @anetto @mgfrenchmph @mcintose /2
Created a Participant Experience Toolkit… to help people doing #clinicaltrials ensure participants feel more informed and valued #talkclinicaltrials /3
Read 8 tweets
I now know why my colleague mentioned @Rufusmay to me.

I love the way he proposes telling stories, and being creative, playful and vulnerable as a way of bringing our whole selves to our work.

Highlights below...

2:00 2:35

"Until you or a relative experience it, it's another world [...] If you're sectioned you lose your rights, and things get done to you...

...I think it really changed my life."

On the influence of experiencing involuntary treatment on his career.

2:35 - 3:05

"When I managed to return to education I thought, "I want to make a difference" and go back into the #mentalhealth system and promote a more listening approach...

...I didn't feel I'd been listened to."

Read 21 tweets
I know I'm a little behind but loved catching up on this episode today.

Particularly like Dr Schreiber's reflections on the implications of "us and them" between service users and professionals, for the quality of public #mentalhealth services.

Highlights to follow...

1:00 - 2:51

"...noticing that their were divisions between staff and patients."

Reflecting on first encountering the "us and them" as an assistant psychologist working in inpatient unit.

2:33 - 3:30

"...being really incredibly anxious about what would happen if a young person told [...] another staff member... just seemed like a massive taboo."

On professionals sharing #livedexperience with service users.

Read 14 tweets
It took me a while to get to this episode but so glad I did.

Dr Linacre touches on so many important issues with regard to the sharing of lived experience by mental health professionals.

This will be a long thread.

10:37 - 11:25

On recognising the double-edged nature of our personal qualities. How qualities that predispose us to mental health difficulties might also be strengths.

11:43 - 12:25

On how personal experiences of #stigma towards disability and #Ableism motivated him to work with people with learning disabilities.

Read 15 tweets
Seriously, if you work in #mentalhealth and haven't checked out this series yet, do yourself, your colleagues and your staff a favour.

This episode touches on more of the themes identified in my scoping review into the sharing of #livedexperience in the workplace...

7:30 - 8:40:

"We never talked about it"

"We can't let the cat out of bag"

On supervisors not being comfortable discussing episodes of mental health challenges.

10:39 - 11:25

"I was just really worried about what would happen"

On fear of disclosing during clinical training.

Read 12 tweets
Listening to Christine Gordon of @ReadingsBooks launch @Jacinta_Parsons’s book “Unseen” - a book not just about the events of enduring & #chronicillness but also about its #complexity. JP hopes that she has captured something of the nuance & diversity of the #LivedExperience...
@Jacinta_Parsons says the path to dx is an underappreciated & often lengthy aspect of the experience of chronic illness - it’s not necessarily an easy path to getting a diagnosis & treatment.
When the change in your health is incremental it can take years from the onset of symptoms to eventual diagnosis. I am fascinated w the transformative power of the diagnostic moment #crohns #socdx
Read 35 tweets
Another great episode in this series.

Important reflections on the contrast between workplaces that support and value the well being of the staff within them, and those that don't.

Must watch for leaders within #mentalhealth services who wish to create compassion cultures.

1:55 - 3:40

Great description of "homely" team where the health of staff was prioritised by the manager and colleagues "had each others' backs".

4:05 - 4:15

Contrasted with a workplace where in response to a toxic workplace culture she was "given the message" that "their was something wrong me", creating a "deep sense of shame".

Read 10 tweets
This series just keeps getting better.

Great conversation around the intersections of #mentalhealth #stigma and structural #racism and bring our whole selves to our work as mental health professionals

Definitely worth watching the whole 40 minutes but highlights for me... 1/7
1:40 - 2:15

"I'm more of a them than I am an us"

The "us and them" dichotomy in #mentalhealth professions.

4:55 - 5:35

"It was a sharing culture"

On a workplace that supported the sharing of #livedexperience and it's impact on the well being of staff.

Read 7 tweets
Talk about a strong start ⁦⁦@In2gr8mh⁩!

In conversation with #mentalhealthstigma researcher with #livedexperience, Patrick Corrigan:

“I think one of the best things to happen in the last 10-15 years in mental health is peer support.”
Also check out 10:50-11:30 on the effect of the “us and them” on outcomes for people accessing services.
...and 15:09-16:10 on "The Clinician's Illusion" in mental health and it's impact on how we perceive the possibility of people living their best lives.
Read 7 tweets
Thrilled to report my review of research with #mentalhealth professionals with #livedexperience has been birthed after 9 months:…

Thanks to best midwives ever, @LisaMBrophy @DrTEFF @DrLouiseByrne!

If you have any difficulties accessing, please PM me. Image
For those short on time, these were the key themes... but definitely read the full paper and not just because it took six months to write 😉
Many of the studies were qualitative and the words of participants powerful. Image
Massive thanks for all the Twitter love over the weekend. I've been #workingfromhome since March, and we're in #lockdown for another seven weeks in Melbourne so it feels good to have the support of people so far away.

I might be slightly hanging on for that 100th like...
Read 4 tweets
Loving reading @esylarur's beautifully crafted e-book of her thesis.

"Self-disclosure is [...] an ongoing consideration of intent and impact, an informed decision on what to share in and out of session, as a therapist and as a human being in general."… Image
.@esylarur's findings from her survey with therapists with #livedexperience echo those of the other studies in supporting fear of #stigma as a primary factor in decisions not to share, and the implications for service user experiences of support. Image
This is the end game for me in supporting the sharing of #livedexperience in the workplace.
We need to change the conversations we have behind closed doors if we're going to better support people accessing #mentalhealth services. Image
Read 4 tweets
Great paper by @HelenaRoennfel2 and @DrLouiseByrne on senior staff's understanding of #livedexperience workforce issues:…

I particularly ❤️ Sam:

"...But you know just saying ‘you’re not recovered enough to do this job’ is a load of bullshit." (Sam)
"The ambiguity in this study reinforces the need for greater consensus in defining and determining relevant lived experience in the context of designated roles."

As someone who has previously been responsible for recruiting peer workers, I was less interested in what... 1/2
...experiences they had had, and more interested in what they had learnt from those experiences that might help them to connect with and support others, especially their capacity to work with people who may have different experiences and worldviews to their own. 2/2
Read 6 tweets
Had a COVID test this morning for some mild cold symptoms so putting myself to bed with some light PhD related reading: Kay Redfield Jamison’s memoir about her experiences as a psychiatrist with #livedexperience.
#phdlife #GetTested #StayHome Image
Correction, KRP not a psychiatrist but a clinical psychologist & professor in psychiatry department.
Love this description of her own psychiatrist. Image
The value of her and other’s #livedexperience is evident in her descriptions of the research & training program she created as director of the UCLA Affective Disorders Clinic. Image
Read 6 tweets
Spent this morning reflecting on the findings of my scoping review in relation to @Carolynne_OT's models of occupation in these two papers. Looking forward to meeting with her this afternoon to discuss.……
#OccupationalTherapy #phdlife
Inspired by this gem of a question (pardon the pun) for mental health services wishing to create welcoming work environments staff with #livedexperience:
"How does your workplace shine a light on the sharing of lived experience? What shadows are cast?"
Thank you, @Carolynne_OT!
Metaphor is based on @Carolynne_OT’s model of occupation from the second paper in this thread.
Read 3 tweets
Sometimes theres a reason behind some of the #hate, And Some people are caught up with a genuine concern after reading stories like this over the years and the only people listening are those on the Far right #TalkDontLabel…
This headline was from just under 2 yrs ago, From 23,000 to now 43,000 And this kind of thing sends fear into the public, when they try voice their concerns they are shut down with a label or placed in a tickbox, Making them more vulnerable
When media made #anjemchoudary the go to Muslim, I made bad choices in #MyFormerLife & will not excuse my behaviour, but the lack of meaningful #engagement with me or my #beliefs was a factor in being more involved in Echo Chambers.
Read 7 tweets
I’m taking my internet dropping out all morning as a sign I should do something offline.
Thankfully, printed @DrLouiseByrne’s latest paper yesterday & treated myself to some new highlighters on weekend (given my others are locked down in my LTU office). #workingfromhome #phdlife Image
Looking forward to speaking with young people in coming weeks involved in groups with #peer workers that have recently moved online.
It will be interesting to see if their experiences of #peersupport are different to those in face to face groups. Image
No so keen on the idea of “monitoring” or #peer “counselling” but can definitely say based on my scoping review that informal and formal opportunities for #peersupport are valued by health care professionals with #livedexperience of emotional distress. Image
Read 6 tweets
There is sometimes a reason behind some of the #hate, And it's not always those Who are Far right, Some are caught up with a genuine concern after reading stories like this over the years and the only people listening are those on the Far right. #TalkDontLabel #DebateNotHate
If some on the left want to break the vicious circle of hate Then you must realise theres no bogeyman! Stop being lazy & refrain from using #labels, #TickBoxes & #Pigeonholing People who think differently to you. Accept responsibility that maybe YOU could be part of the #problem
I made bad choices in #MyFormerLife & will not excuse my behaviour, but the lack of meaningful #engagement with me or my #beliefs was a factor in being more involved in Echo Chambers
Read 8 tweets
Thread 👇Constantly using labels shutting down debate will not tackle the underlying ideologies which fuel extremism & Hate, and doing so risks pushing the problem underground where it cannot be moderated or challenged “other” non-mainstream platforms will allow violent 1/8
hateful views to go unchallenged, increasing people’s vulnerabilities and exposure to unmonitored extremist ideas. There are already countless private groups on various social media platforms where content is controlled by admins who vigorously remove 2/8
any thought that counters or contradicts their world view. These groups need to be tackled and removed as they fuel hatred and create the perfect conditions for people to become radicalised. 3/8
Read 9 tweets
I made bad choices in #MyFormerLife and will not excuse my behaviour, but the lack of meaningful #engagement with me or my #beliefs was a factor in me getting more involved in the Echo Chambers of #Hate... 1/5…
I saw them as the only people who wanted to listen and the only ones who understood the problems like i did. Once inside the Echo Chamber, I was only exposed to like-minded people, who not only shared my world views, but often held much more extreme beliefs
Ideas are allowed to breed and fester. With my own thinking left unchallenged, I spiralled into hate.

#DebateNotHate #MeetThePeopleYouHate #DialogueIsThePartOfTheSolution
Read 6 tweets
So great to be attending a lecture from the amazing @Chess_Ess as part of @SW_CTN #DataFellowship
It’s 5 minutes in & it’s already my favourite event this week! 💖 💻 Image
Where is the human in data & how is it shaped by conditionality? #DataBias
What & who are constructed & classes as data? Who analyses data & who is analysed as data?

How that’s reframed & used to support arguments.

Reflection on the social power relations & politics surrounding data generation. #Power #institutions
Read 10 tweets

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