To all members of the New Hampshire General Court, House & Senate members, as a Patient Advocate here in the state serving your constituents I ask, please take a minute to read this thread.
You all recently received a mailer from an organization named “Prevent Opioid Abuse” (.org), an organization which receives support and donations from many well known anti opioid zealot groups, groups who have been revealed as having many unreported conflicts of interest.
Conflicts of interest that include earning hundreds of thousands $$$ acting as “expert witnesses”, experts on the use of opioid analgesics to help in the managing of pain, when these “experts” have never worked with a single patient who suffered with an incurable pain condition.
As you might imagine the Prevent Opioid Abuse organization has access to many sources of funding such that mailers similar to the one you received are sent to every State Senator and State Representative in every state in the country.
As an unpaid Patient Advocate who works closely with physicians and patients here in the Granite State my only option for trying to communicate a single message to all of you is a Twitter thread, and a plea to please take a minute to read the thread. Did you know…
…that there hasn’t been a single drug overdose death in New Hampshire, as reported by the state medical examiner’s office, which was attributed to a patient’s use of an opioid medication prescribed to them? Did you know…
…that the rate of addiction across the U.S. for patients who have been prescribed an opioid for the management of acute pain such as post-op, kidney stone, appendicitis, injury (compound fracture of the femur), run at less than 1%? Did you know…
…the rate of addiction across the U.S. for patients who suffer with diagnosed, documented, incurable and very painful lifelong conditions such as CRPS, Adhesive Arachnoiditis, Sickle Cell Disease, Ehlers-Danlos Syndrome etc run at a rate of anywhere between 1-4% ? Did you know…
…all patients on opioid medication therapy to help with these painful, incurable lifelong conditions must sign a CONTRACT that states they must go to the office any time they are called by the clinician & provide a urine sample onsite for the purpose of testing? Did you know…
…all patients on opioid medication therapy to help with managing these painful incurable lifelong conditions must sign a CONTRACT that states they must go to the office any time they are called by the clinician to have their prescription pills counted? Did you know…
…all patients on opioid medication therapy to help with managing these painful incurable lifelong conditions must sign a CONTRACT that states they can only use a single pharmacy for filling these prescriptions. If they use a different pharmacy it is a RED FLAG! Did you know…
…that almost all patients on opioid medication therapy to help with managing these painful incurable lifelong conditions are required to be at monthly clinician appointments during which random urine drug tests and prescription pill counts can be required? Did you know…
…that almost all patients on opioid medication therapy to help with managing these painful incurable lifelong conditions are not allowed to use medical marijuana even if it helps to reduce their need for opioid medication? Did you know…
…that many patients on opioid medication therapy to help with managing these painful incurable lifelong conditions are denied their prescriptions when they go to the pharmacist? Pharmacists often maintain that the patients doctor is wrong. Did you know…
…that many patients on opioid medication therapy for these painful incurable conditions are denied their prescriptions at the pharmacy for many subjective reasons? A Bedford NH pharmacist denied one woman because with her tattoos she “looked like an addict”. Did you know…
…I was recently called to advocate for a patient who was dismissed from a pain mgt practice after she was found to be ONE PILL short on a pill count! She was also forced to leave her pocketbook & jacket outside a bathroom, on the floor, in a hallway, while she peed in a cup!
So think about this. If your grandmother or grandfather was suffering with a painful condition that only a small amount of opioid pain medication would help with, they would be required to sign a similar CONTRACT stating they must go to the office and pee in a cup when required.
Your grandparent would not be allowed to shop at different pharmacies for better medication pricing no matter how little their social security paid because their CONTRACT states they can only go to the CVS down the street!
And when your grandparent receives a prescription in New Hampshire it would have a large ORANGE sticker on the cap with the word OPIOIDS on the cap for all to see! Your grandparent, leaving the Manchester Rite Aid on McGregor St with a large ORANGE sticker saying OPIOIDS? Why?
All these regulations, state & federal laws, CDC “guidelines”, for chronically ill patients who addict at a rate of NO MORE THAN 1-4%? Why? And 90 plus % of all overdoses are caused by illicit drugs and illegal drug use, NOT patients using the medication prescribed to them! Why?
Great question - WHY? Please, as legislators in the state of New Hampshire I beg you, PLEASE ask WHY? Keep pressing for hard data. PLEASE make people commit, on the record, that they have NO conflicts of interest. PLEASE…
…ask the NH medical examiner’s office to tell you how many overdose deaths there were with NO illicit drugs in toxicology results. And of the small number remaining, ask how many had a prescription for the medication. The answer will be 0 because patients have not OD’d & died
Last tweet in this thread, I promise. Right now there is a patient in a New Hampshire hospital suffering in pain following invasive surgery. Patient is getting IV Tylenol only & being told they’re exaggerating their pain, that this is all for their own good. Why? The backlash 🤷🏼♂️
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Hello @RepWilhelm. This election is tough for me. I’d support Chris & Hassan but, as a Patient Advocate & one who struggles with a painful chronic illness myself, both candidates ignore the data on the true cause of the issue of addiction & overdose, that being illicit
fentanyl analogues & illicit poly-substance abuse. Hassan & Chris continue to blame the issues on legitimate patients who suffer with very painful illness & injury & only achieve a certain level of quality of life with FDA approved opioid analgesics as one part of a multi modal
approach to therapy. These patients are very closely monitored & are known to not misuse or divert & rarely if ever addict yet Hassan & Chris continue to fight for further restrictions on this legitimate use. As an example, the total *possible* number of overdose deaths due to
Although I’m certain those running for local office have compassion for others who suffer with painful chronic illness I thought I’d share another reason you might want to openly support this “community” 1/4
…they are registered voters in search of a candidate who will openly support, as part of their campaign messaging, their right to appropriate pain management even when that care requires the use of long term opioid therapy as one part of a multimodal treatment plan. 2/4
I represent thousands of patients here in the Granite State who, as a community, hold the concern of access to appropriate pain mgt, given their illness, as priority. Those running for office know better than I that often times a handful of votes can determine who is elected. 3/4
After watching your coverage of @SenatorShaheen’s discussion on the rise in OD’s it is absolutely clear that you have no idea how the images (Rx bottles) and words (opioids not “illicit” opioids) you use/omit negatively impacts the lives of legitimate /1
patients who suffer with very painful chronic conditions. Your news station, along with Senator Shaheen & Senator Hassan, continue to misinform by using such images and omitting clarifying language. The data proves that Rx opioid medication is not driving the skyrocketing /2
overdose rates. Your viewers and the constituents of both Senators DESERVE and NEED to know, specifically, the causes of this phenomena. If you truly want to have a positive impact on this trend AND avoid hurting those who do not misuse these medications prescribed to them, /3
@RepAnnieKuster You exclude the preeminent Patient Advocacy organization, the New Hampshire Pain Collaborative, whose focus is pain mgt, the physicians who deliver pain mgt, & the patients who are in need of pain mgt???
Yet you include Andrew Kolodny, someone who has never treated a pain patient?
Kolodny who has been paid hundreds of thousands to testify against the use of opioids?
Kolodny who in the attached interview said we’re better off if an addicted person buys heroin off the street?
Yet you include Dr Barth of Dartmouth-Hitchcock?
He claims patients did just fine while being subjected to Dartmouth’s opioid-sparing / opioid free surgeries. I worked with many of these patients. They suffered greatly yet the program reported they did just fine without opioids
Overdose deaths are at a historical high while prescriptions written are at a 30 year low. What does this tell you? Prescriptions are not driving either addiction or overdose rates! Our government officials never include patient’s & the advocates who represent them in process!
I was a member of the small team who wrote & helped usher through legislation that supports physicians who make use of opioids as one tool in the tool box when treating chronic pain patients. We were making some progress. This task force will set patient care back dramatically!
A Justice Department task force to go after physicians? Housed in Concord? YOU KNOW the issue is ILLICIT FENTANYL & POLY SUBSTANCE use NOT prescribed medication! Patients are being abandoned here in the Granite State! You’re allowing this? @GovChrisSununu
Have you not heard a word I have been saying? Legitimate patients who suffer with chronic illness and pain are going to suffer further!
New Hampshire’s own Medical Examiner’s office, directed by the State Attorney General, publishes the very data that PROVES overdose deaths are not the result of prescription opioid pain medication!