Staunch Independent. Once informed of the benefits & risks allow the chronically ill to choose the treatment that works best for them. #NHPolitics
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Feb 6 • 6 tweets • 2 min read
@SenatorHassan @nh_doj @MHT_Mayor
To:
- Lucy Hodder, Director of Health Law and Policy
Professor of Law, UNH Franklin Pierce School of Law
- James T. Boffetti, Deputy NH Atty General
- Emily Gray Rice, NH City Solicitor
Re: the attached UNH Law Review Symposium video, I don’t
dispute your claims regarding any big pharma mfg, that is for another time, but I hope you’ve all publicly acknowledged your mistaken claims that: 1) most of those who died from drug overdose were one time patient's Rx’d an opioid who became addicted. Both the claims that most
Aug 14, 2023 • 13 tweets • 3 min read
@paulcunobooth
Mr. Booth. My name is Bill Murphy. I am an independent Patient Advocate here in New Hampshire. Much of my advocacy work deals directly with chronically ill patients who suffer with very painful disease and/or injury for which there is no cure. There are an
estimated 170,000 patients here in the Granite State who live with such a condition and who struggle to find treatment that helps to provide some pain relief and improved quality of life. I recently listened to your reporting of the worsening of the “opioid crisis” in
Jul 9, 2023 • 18 tweets • 5 min read
@Caitlin_Jones_ accused me of sending her a “very aggressive” message in which she claims I “wished her harm”. I did message her. I questioned her “CORRECTION” (see image) where “they” refers to opioids. See link to read my message to her. You decide.
https://t.co/RjmnBZwIFstwitter.com/messages/media…
Aggressive? Depending on your definition, maybe?🤷🏼♂️. Wished her harm? ABSOLUTELY FALSE! I made the point I often make when addressing those who make blanket, inaccurate statements that directly and negatively impact the chronically ill.
Feb 4, 2023 • 23 tweets • 6 min read
To all members of the New Hampshire General Court, House & Senate members, as a Patient Advocate here in the state serving your constituents I ask, please take a minute to read this thread.
@NHHouseDems@NHHouseGOP@NHSenateDems@NHGOPSenate@NHDHHSPIO@NHMedSociety#nhpolitics
You all recently received a mailer from an organization named “Prevent Opioid Abuse” (.org), an organization which receives support and donations from many well known anti opioid zealot groups, groups who have been revealed as having many unreported conflicts of interest.
Nov 4, 2022 • 6 tweets • 2 min read
Hello @RepWilhelm. This election is tough for me. I’d support Chris & Hassan but, as a Patient Advocate & one who struggles with a painful chronic illness myself, both candidates ignore the data on the true cause of the issue of addiction & overdose, that being illicit
fentanyl analogues & illicit poly-substance abuse. Hassan & Chris continue to blame the issues on legitimate patients who suffer with very painful illness & injury & only achieve a certain level of quality of life with FDA approved opioid analgesics as one part of a multi modal
Aug 13, 2022 • 4 tweets • 1 min read
> New Hampshire Primary 2022 <
Thousands of votes left on the table?
Although I’m certain those running for local office have compassion for others who suffer with painful chronic illness I thought I’d share another reason you might want to openly support this “community” 1/4
…they are registered voters in search of a candidate who will openly support, as part of their campaign messaging, their right to appropriate pain management even when that care requires the use of long term opioid therapy as one part of a multimodal treatment plan. 2/4
After watching your coverage of @SenatorShaheen’s discussion on the rise in OD’s it is absolutely clear that you have no idea how the images (Rx bottles) and words (opioids not “illicit” opioids) you use/omit negatively impacts the lives of legitimate /1
patients who suffer with very painful chronic conditions. Your news station, along with Senator Shaheen & Senator Hassan, continue to misinform by using such images and omitting clarifying language. The data proves that Rx opioid medication is not driving the skyrocketing /2
Jul 8, 2022 • 6 tweets • 3 min read
@RepAnnieKuster You exclude the preeminent Patient Advocacy organization, the New Hampshire Pain Collaborative, whose focus is pain mgt, the physicians who deliver pain mgt, & the patients who are in need of pain mgt???
Yet you include Andrew Kolodny, someone who has never treated a pain patient?
Kolodny who has been paid hundreds of thousands to testify against the use of opioids?
Kolodny who in the attached interview said we’re better off if an addicted person buys heroin off the street?
Overdose deaths are at a historical high while prescriptions written are at a 30 year low. What does this tell you? Prescriptions are not driving either addiction or overdose rates! Our government officials never include patient’s & the advocates who represent them in process!
Have you not heard a word I have been saying? Legitimate patients who suffer with chronic illness and pain are going to suffer further!
Jun 5, 2022 • 17 tweets • 3 min read
The Tulsa shooting, the killing of Dr Preston Phillips, Dr Stephanie Husen, receptionist Amanda Glenn, and patient William Love, was clearly a tragedy - in more ways than one. This loss of life is unacceptable and on one level, patient Michael Louis is at fault, but 1/
there are others, consider them secondary contributors if you prefer, but in the eyes of many long time sufferers of severe painful chronic illness long ignored, as well as post-op patients who are told IV Tylenol is a suitable replacement for traditional opioid analgesics 2/
Jun 22, 2021 • 5 tweets • 2 min read
@ShellenbergerMD I applaud what you are doing but PLEASE, you MUST go after the drug causing harm - it is NOT “fentanyl”, it is “illicit fentanyl”, “Illegally Manufactured Fentanyl” (IMF). IMF is shipped into this country primarily from China but also across our southern border.
By just using the term “fentanyl”, you are harming legitimate patients. Patients who are treated for both pre-op and post-op pain as well as millions who are treated using fentanyl patches which CANNOT be broken down and diverted for purposes of use to get high. In these examples
@CindyR4NH@SenatorHassan 1) Good but @SenatorHassan remains stuck in her position that Rx opioid pain meds to treat pain are responsible for the majority of addiction & overdose even though all data proves otherwise. She remains on the opposite side of the data resulting in resident patients suffering...
@CindyR4NH@SenatorHassan 2) ...here in NH hospitals and the physician’s office. New Hampshire’s own Medical Examiners drug overdose death data, based on actual toxicology results, shows greater than 90% of all OD deaths are the direct result of illicit drug use. I hope she will soon acknowledge...
Dec 20, 2020 • 12 tweets • 3 min read
@EVargasTV I listened to your podcast re: Purdue Pharma. They were wrong and should make amends in some way. Unfortunately, as I know has been pointed out to you, those who suffer with chronic illness and resulting pain who depend on similar medication for some level of...
...quality of life have been on the receiving end of the backlash against the use of opioid pain medication even for those who have exhausted all other alternatives, who are monitored extremely closely, who adhere to very stringent physician-patient contract stipulations...
Dec 8, 2020 • 5 tweets • 2 min read
@RWalensky Congrats on your recent nomination. I know of your work relative to the HIV/AIDS crisis. Those affected by this disease were once a community stigmatized by a nation. Those who suffer with chronic illness/pain are the new stigmatized. It is my hope that you will...
...support this community with the same compassion given those impacted by the HIV/AIDS crisis. We need and deserve individualized care administered by those who know us best, our doctors. I ask that you take a look at our bill, signed into law by Governor Sununu in July 2020...
Oct 20, 2020 • 8 tweets • 2 min read
>>> CPP’s NEED A NEW STRATEGY <<<
Not that our plight should be politicized but reality proves this to be true already so, what should we do? CPP’s and the organizations that claim to champion our cause should welcome and take advantage of our role as “victims” -
just as BLM, ANTIFA and others have done. It is clear that the politics of today not only allow for but openly support the right of those high on the ladder of victim-hood to have a voice and use it in whatever way they choose in order to get what they believe they deserve.
Oct 17, 2020 • 6 tweets • 1 min read
Twitter based “Life Lesson”. If CPP’s could do it all over again, we would not tweet to Andrew Kolodny in any way because he just blocks us. Our strategy should have been to formally Report all of his tweets that disparage and “target” CPP’s as a community...
..with misinformation and negative labels that harm us by promoting public and regulatory policy that restricts our access to needed healthcare. Our Reports should have stated clearly that repeated and targeted statements made by Kolodny...