Thread by @arianek

I am the face of #MAID (assisted-death) in Canada.

As a 42 year old woman with a rare complication of lupus + iatrogenic injuries I will only cost the 'system'. I want to live but can’t get the care I need + have been approved for MAID.

#IamthefaceofMAID #Iamthefaceofhumanity

This was me a year and a half ago right before my health was devastated by medical negligence and malpractice, in the form of a catastrophically damaging hospitalisation, misprescribed unnecessary high prolonged doses of prednisone, and a bad reaction to Rituximab infusions.

I’ve been begging for care especially with my GI symptoms which are slowly killing me, my specialists have mostly abandoned me, and my medical decline is being attributed to “psychological distress” and my illness (which is absolute BS, it had improved on IVIG).

I won’t be here much longer because I can’t even access palliative care and have been left in unbearable suffering. I can barely get up or leave the house anymore (which I must weekly to access IVIIG). #MAID is my only way out. #MaidWithoutAid

See my pinned post for more, and if you know a compassionate GI or pain management doctor in Vancouver who could help me very urgently, please let me know. I have been on the verge of calling to go through with MAID for months and get sicker every day. I can’t keep doing this.

Update: FINALLY going to get this scope next week if I can just hang in till then. Terrified, I’m so frail and immune suppressed, but current internist came through and will hopefully try and protect me in there. It’s this or ☠️ so I guess this is happening. 😭

https://twitter.com/arianek/status/1625977325467897856

ps. Thank you so much everyone who’s shared and been supportive. I really don’t know if I can be helped, and have so many other daunting medical issues. but at least we have a chance to find out what the heck is going on with my bowel. 🤞💕

ps. People keep retweeting this saying I’m “poor” (financially) and that’s why this is happening. While that is true for many, I’m very lucky not to be poor. We are ok for now thanks to family support. Money can’t buy care in Canada. People who are also poor don’t stand a chance.