Live tweets of the second (and final) episode of #InsideOurAutisticMinds #BBCdocumentary
Change *is* disastrous. And it definitely feels like a loss of control.
Definitely a hidden crisis but it shouldn't be hidden! People should be watching out for people who may need help. It shouldn't be for us to constantly have to reach out for support which is inappropriate or simply doesn't exist.
I'm not sure how I feel about the word 'obsessive' unless that is the word Anton uses himself.

I love that he is a trance DJ.
Omg Chris likes punk music!!!!!????
Trance is nice music, I totally get it. It is happy music.

Using music to block things out - I definitely do this!
"I can't leave a box unticked" Anton

He needs to know the times of everything and the timing cannot go out of place. If it does he will have to stay home from work.
"If anything changes in my visual environment... it's visually quite upsetting" Chris

"You don't know how much it means to me to hear that this goes on in peoples lives as well" Anton
Anton said there was a time when he was embarrassed to be Autistic.
The only time Ethan leaves home is to go to college. He makes music at home.

Interesting that both people in this episode love music and also use it to cope and express themselves.
Eye contact is very uncomfortable! And it can be bloody painful too.

Ethan hyperfocuses on his college work - on game development.
Ethan reminds me so much of a young man I have worked with. He speaks the same and it brings up nice memories.
From Ethan's rap:

"Being autistic and dealing with that has never been sweet like candy."
Its so interesting that Ethan writes a song as part of his routine every day. I did that with song, story or poetry writing when I was younger.

I was *always* righting.
"In his world he's not lonely but when I look at his world I think he's lonely"

- Ethan's Mum
Anton's Mum can remember people staring and being nasty when he had a meltdown in the supermarket. She remembers that so vividly 20 odd years later.

She's now sad that she didn't understand what was happening with him.
The football friend said he was surprised because his brother is also Autistic but is 'quite wild.'

Autistic adults are always being compared to children and to each other.

Why are we never understood as the individuals we are?
"Its okay not to have the brightest presence in the room" - Ethan
"This chaos cannot be controlled"

Ethan finds the college too chaotic because of all the noise.
Come on Luke Beardon!!
Interesting that Chris finds the smell of fruit so bad. Like the smell of citrus is just too much for him, especially as it mingles with the other smells.
My husband is really pleased to see someone else with vitiligo on the TV (Luke).
The sounds of the woodlands brings Chris comfort, he is seeking out the sounds of the trees in the wind or rain. He wants all of the sounds brought forth.
"The noise is immaterial it is the unexpected nature of it"

"Some autistic peoples experiences are the best experiences for them"

- Luke Beardon
If I missed my bus - or it didn't turn up. I may just not go to work

- Anton
"I'm constantly re-doing everything- just to make it righter " - Chris

Omg this resonates with me so much as an Autistic OCDer!
Its not helpful to stop repetitive behaviours!!!!

Yes, also as an Autistic OCDer.
It's interesting this time round that the films are happening in real life, around Anton and Ethans experiences. Not just a stand in front of the camera and talk like the first episode.
I'm excited to see how the surround cinema experience will make of Ethan's experience of sensory overwhelm.
Aw Chris is so cute when he's excited!
Ethans song was amazing, as well as the visuals for it.

He's really grateful his classmates came and I hope it changes things for him at college.

"What you're doing through music is amazing - keep it up" - Ethans classmate
Even Ethans family are surprised by how much he is affected by sound.

His mum feels bad for taking him places when he says he can't/ doesn't want to.

Ethan feels more confident about himself and it is gorgeous!
Why hasn't Chris told Anton where his film will be shown? That would stress me out so much!
Anton s friend - he seems happier at football since he's started this process.
Antons film seems to make sense to his footie mates and they're going to check in with him more.

The film is better than him trying to explain as he struggles to get his words out sometimes.
"I feel immensely proud that I've had the courage to [share my autistic experience]"

- Anton
"The more we understand each other the better all our lives with become" - Chris
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More from @social_parasite

Feb 16
Thought I'd live tweet my thoughts on #InsideOurAutisticMinds episode one. So here goes...
I love how Chris moves his hand when he speaks and I've always loved his voice.
I love the idea of films showing our Autistic experiences. It feels very much like the work I'm getting involved with at @AutekCIC which is exciting.
Read 31 tweets
Sep 19, 2022
The difference between Autistic masking and Autistic shielding, a thread.
Ahead of my talk on this, thisWednesday on @aucademy

Autistic masking is a trauma response to the consistent bullying, harassment, stigma and marginalisation Autistic people face.
It is so much more than trying to fit in or fly under the radar. It is unconscious self-preservation, an automatic response to keep us safe.
There is also a misconception around Autistic masking that we become outwardly non-Autistic in our behaviours, mannerisms and speech.
This plays very nicely into the neuro-majority idea of invisible disabilities and differences, which is a total fallacy. The idea of ‘invisible’ disabilities was created so that non-Disabled people could continue to gaslight, neglect and abuse us under the guise of ‘not knowing’
Read 7 tweets
Sep 18, 2022
Inaccessibility at university, a short thread 🧵

The undue pressure to make our own accessibility needs meet in education is astounding.

This doesn't get any easier as we get older and go into further education. 1/6
University is filled with so many difficult social interactions, sensory overwhelming spaces, changing timetables and the emails, oh the fucking emails!

There are freezing rooms, boiling hot rooms, tiny tables, people everywhere... 2/6
...and the smells and noises which come with them), no windows in some rooms, feedback from class microphones...

There were no lockers at my uni so I had to take all my stuff with me, including lunch as food is so expensive - and not very nice - there. 3/6
Read 7 tweets
Sep 16, 2022
My area of specialised interest is trans and / or non-binary Autistic experiences.

I wrote my undergrad thesis on supporting gender divergent Autistic students. I just finished my MRes on trans+ Autistic narratives and recommendations for research on our experiences. 1/5 A trans and non-binary flag...
This is important to me as a trans masc NBi Autistic person who works with gender divergent Autistic young people. I have just handed in my 20,000 word dissertation. 2/5
I will share my findings early next year with info graphics, plain language summaries etc and possibly in Spanish as well!

Here are the articles from my Trans and Autistic series so far:

Trans and Autistic - where do I belong?
autisticltd.co.uk/2022/08/30/tra…

3/5
Read 4 tweets
Jul 3, 2022
Joining a #LongCovid online support group is definitely something...a 🧵[thread]

Listening to people who were able bodied experiencing disability for the first time definitely brings up so serious feelings for me, anger, frustration, annoyance 1/8
I just want to sit in the middle of it all and shout and the want to shout "some of us live like this all the time and no one cares!? Now you can finally see what that feels like."

But I don't want to dismiss anyone's very valid feelings about having their mental and 2/8
Physical health stripped away from them.

They are now part of the Disabled community, *my* community. But they bring with them so much shame and unhappiness. Feelings I totally understand and are valid but are very difficult to listen to as a long term Disabled person. 3/8
Read 9 tweets
Jul 1, 2022
So, my plan for #PrideMonth was to write something every day.

It's my plan every Pride Month but Attention Hyperactivity, brain fog and life gets in the way!

It is so vital that we share our stories, resources, information love and acceptance all year round but...
...especially in a month where big corporations make rainbow dollars with no regard for LGBTQIA+ support. Or a passing performative we'll-bung-some-money-at-the-most-obvious-Queer-charity.

It's a month where some Queer charities are uplifted but come July 1st, are dropped...
...like a stone and left fumbling for help the other 11 months of the year.

Today the flags get taken down - the pink pound has been squeezed enough from us folk who tend to have less money anyways...
Read 4 tweets

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