Today is #RareDiseaseDay, and as a sickle cell patient advocate, I want to share the impact it has on the lives of millions around the world.
Sickle cell is a debilitating genetic blood disorder that causes severe pain, organ damage, and other life-threatening complications. Living with a disease like sickle cell means facing a daily battle against pain, fatigue, and isolation.
It means constantly fighting against a disease that most people have never heard of, and struggling to access the medical care and resources that we need to survive and thrive. But despite the challenges, I know that we are not alone.
I have seen firsthand the incredible strength, resilience, and courage of those living with rare diseases like sickle cell. On this #RareDiseaseDay, lets raise our voices, share our stories, and work together towards a world where living with a rare disease no longer means facing
stigma, discrimination, and limited access to care. Let us remember that every life, no matter how rare or complex, is valuable, worthy, and deserving of the best care and support that we can provide. #StrongerTogether #RareDiseaseAwareness #SickleCellWarriors
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