⚠️ Clinically Vulnerable people are struggling.

We are * 3️⃣ YEARS * into a pandemic (ask the @WHO) and our needs have not been addressed.

Protections were withdrawn one by one and the removal of these measures has unfairly disadvantaged us.

1/ STILL HOME   Image in the s...
We are STILL HOME.
We are living part lives.
Our freedoms have been lost.

If you are not in a vulnerable group this information will likely have slipped you by. You will not have noticed us struggling because we are no longer in your view.

2/
We move around like ninjas.
We avoid crowded places.
We probably don't meet with you any more.

This is not through choice. This has been thrust upon us, by the same government that joked they would

"Let the bodies pile high in their hundreds of thousands.".

3/
Rhetoric from the early pandemic was focused on keeping a functional NHS so it wouldn't disintegrate. It was not focused on protecting people.

Yet now we know it wasn't about protecting the NHS at all. You only need to pay attention to the current news to be sure of that.

4/ PROTECT THE NHS  Image of a...
So the pandemic quietly rumbles on taking people in its wake.

We don't hear about them now, of course, at least not in the media. Scientists from @IndependentSage try to raise awareness but when the Covid infection survey is dismantled it will be harder for them to inform us.
5/ SAVE LIVES  Light pink and ...
The removal of these data is the removal of the last final line of defence against new variants. We will be flying blind. It also breaks a promise made last year.

This disproportionately affects those most at risk. Our needs have not been considered.

6/ They are certain there will...
We silently have:

💙 Lost jobs
💜 Lost education
💗 Lost access safe healthcare
💙 Faced discrimination
💜 Not been offered 'reasonable adjustments'
💗 Lost liberty and security
💔 * Lost lives *

Many find it is affecting their mental health.

7/
Our voice is small. We need advocates. A @GaryLineker or @MarcusRashford.

For 3 years we have tried to raise our voices.

For 3 years our human rights have been diminished.

Will you stand with us? Will you speak for the #VoicelessVulnerable?

* PLEASE HELP *

8/
We have 3 #NewProfilePic s to commemorate 3 years of the pandemic: our vulnerable people; the amazing NHS workers; & those whose lives were lost.

Support us & RETWEET

Fill Twitter with our message 🙏

💙 STILL HOME
💜 PROTECT THE NHS
&
💗 SAVE LIVES

/END STILL HOME   Image in the s...PROTECT THE NHS  Image of a...SAVE LIVES  Light pink and ...
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More from @cv_cev

Mar 10
Dear @ONS

We are concerned about the abrupt end to the Covid-19 Infection Survey which we feel will unfairly result in barriers and disadvantages to protected groups:

Disabled (those who are Clinically Vulnerable), Elderly and Ethnic Minorities.

1/
gov.uk/government/new…
You call it a "pause" but it means a STOP.

@janemerrick23 explained the gold
standard' survey has been key to our
surveillance. The @WHO have not declared
an end to the pandemic and lives remain
under threat of death & serious injury (Long
Covid).

2/

inews.co.uk/news/politics/…
We need this information to risk assess. It also provides essential information on the impacts on our members.

When the government told us last year to Live with Covid they took away testing and isolation, measures that protected us all from infection and reinfection.

3/ And from 1st April, when Wi...
Read 8 tweets
Mar 7
People follow rules when they are clear:
"KEEP LEFT ⬅️"

Any ambiguities result in uncertain outcomes:

"Try to keep left if it feels right for you"
would probably result in a lot of accidents.

1/🧵
Imagine having to explain to your car insurance following an accident, in such circumstances wouldn't be easy...

When we have clear information individuals, employers, healthcare, schools, and businesses can act with certainty.

Rules help to protect lives and health.

2/
If you change the rules you need to carefully consider the consequences for all people in all circumstances.

Many new emergency laws were passed during the height of the pandemic which had notable negative effects on lives.

3/ COVID-19  Temporary restrictions   [Red sign]
Read 15 tweets
Mar 6
⚠️ Another Clinically Vulnerable Family in court.

This family had 2 children with a rare genetic condition which limits their ability to respond to infections.

They had RETURNED to school for a year when their Local Authority issued a summons.

1/
The prosecutions related to absences from a time *before* these highly vulnerable children were vaccinated.

The parents went to court, initially before Christmas without representation due to incredibly short notice (postal strikes were blamed).

They pleaded "NOT GUILTY".

2/
However, they were (like our previous family) also taken to a side room and advised to plead guilty by the prosecution lawyer. They were also told that they didn't need legal representation as nobody else usually does in these cases.

3/
Read 7 tweets
Mar 1
Following @michaelgove's ridiculous suggestion to remove child benefits from families absent from school - rather than tackling the cause - @BBCPolitics discussed the topic.

@CamillaTominey might be interested to know that the government *do* know where the missing kids are.
1🧵
Clinically Vulnerable Families and @LongCovidKids have serious unaddressed concerns.

The majority of children not in schools from Clinically Vulnerable Families are in housesholds denied safe learning environments. Off-rolled in the interests of the school, not the child.

2/ Ghost Children 56% of Clinically Vulnerable Families have be
How do we know the government knew?

We told them. We phoned, we emailed, we attended an APPG on Coronavirus.

@LaylaMoran spoke to @GavinWilliamson in parliament and then met with @NickGibbUK where she outlined the issues we were facing... the issues that we *still face*.

2/ Layla Moran > (Oxford West and Abingdon) (LD) [V] Share May Gavin Williamson Share I very much agree that that sort of l
Read 10 tweets
Feb 11
@Wera_Hobhouse @Wera_Hobhouse
Without public health, government guidance has already trampled on the Human Rights of the Clinically Vulnerable, which are carefully packaged as personal choice / responsibility. However, there's little choice when a life is threatened.

1/
gov.uk/government/pub…
@Wera_Hobhouse NB/ NOT a lawyer, but it seems to us that many of the items on this list apply to us. Either directly, as indicated in the government planning whiteboard or indirectly.

Read the 'advice' for the severely immunosuppressed above. Our 'Freedom Day' never came.

2/ RED The right to life YELLOW Freedom from torture Freedom fr
@Wera_Hobhouse 3 years on and we cannot protest in the streets.

Our rights diminished as others, often coping with their own pandemic trauma, try to put it behind themselves.

But people are still locked away. Friends and family fading as they are often reminded "Covid is over".

3/
Read 7 tweets
Jan 30
Shocking new data from the ONS reveals that 0-4yos have a similar risk ICU / HDU risk to 65-74yos.

We can fix this easily #vax4kids💉 needs URGENT approval.

@SteveBarclay
@CMO_England
@uksciencechief ONS data available here:  https://www.ons.gov.uk/peoplepopul
MHRA approval was granted on 22nd December 2022 for the 6m-4yo vaccines.

Why are our families still waiting?

The US authorised use on the 8th December.

#vax4kids💉

gov.uk/government/new….
The UK instead denied new 5yos their first doses in August.

No big fanfare 🎉 - they were quietly withdrawn. Children aged 5 and over  Children who turned 5 on or after
Read 4 tweets

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