“Some of these individuals can't work and they can't be caregivers for children or aging parents.. what makes the issue a burgeoning public health crisis, Duggal says, is the sheer number of patients affected.” #LongCovid
“A June 2022 @CDCgov study estimates that as many as 20 million American adults—1 out of 13 people over age 18—have lingering COVID-19 symptoms that impact their lives months after infection.” #LongCovid
“In early 2020, when the first reports of a novel coronavirus emerged from Wuhan, Duggal had already spent more than a decade thinking about the long-term effects of infections. Many pathogens, epidemiologists know, can have consequences that persist long after”
“In wake of West Africa's Ebola outbreak in 2014–16, many those infected continued to report lingering symptoms such as headache, muscle pain... After a 2004 outbreak of the parasite Giardia lamblia in Norway,- 1 in 20 afflicted reported long-standing intestinal & neuro symptoms”
“Across the U.S. and Europe, an estimated 10% of those infected with Borrelia burgdorferi will develop post-acute Lyme disease. Regardless of the causative pathogen, many people with post-acute sequelae receive a diagnosis of #MECFS”
"Am I surprised that there are long-term sequelae? Not necessarily. But the frequency? Absolutely," — Shruti Mehta, Epidemiology Professor at John Hopkins #LongCovidmedicalxpress.com/news/2023-03-u…
Over the next 3 years the average person is expected to have around 6-9 covid infections — Knowing everything we now know about SARS CoV 2 — How confident do you feel everything is going to be just fine? #LongCovid
When I spoke to @zalaly about repeat infections he said — at a certain point we might expect something like full immunity — Whether that’s 5th or 10th infection nobody can tell you, because variants change so often, so question is how much damage is accumulated before that point.
The way his research is often misinterpreted: “Of course there is no way for cumulative risk to decrease”, but the amount of cumulative risk increased was “incredibly significant” & “unanticipated” — So question is: how much damage to population level health before full immunity.
“Still he never got ‘terribly sick’.. More than a year later, he’s teaching from an electric wheelchair, so tired most of the time that even the simplest tasks are often overwhelming.”
“The following weekend.. his friends planned a 15-mile run. ‘We were amping up for that Grand Canyon run,’ he said. ‘So I ran that 15-miler.’
How he felt afterwards turned out to be an early sign that COVID-19 wasn’t done with him. The run wiped him out for the entire weekend”
“I don’t know why COVID hit Blake so hard,” she wrote. “But, it’s really hard to watch him still struggling so much. The man that can normally conquer mountains can barely get through normal day-to-day tasks while heavily relying on multiple inhalers.” #LongCovid
"It’s been at least a year since @Stanford PASC clinic began prescribing LDN for some of their #LongCovid patients.. 'For some it has really changed their lives, & even if that’s a few people, that’s encouraging sign that needs to be investigated further'" rollingstone.com/culture/cultur…
"Since there’s little incentive for pharmaceutical companies to invest resources into LDN, some experts, including Geng, believe that the best chance of large-scale randomized control trials taking place in the United States is with federal dollars." #LongCovid
“It would be great if the @NIH could fund randomized controlled trials, because that would really give [the drug] a boost in credibility and rigor and reputation behind a scientific study in this area.” — Linda Geng, MD, PhD, co-director of the @Stanford#LongCovid Clinic
2. Spend 6 weeks filling out app. Lawyer says “this is longest medical history I’ve seen in my career, this will take them months to go through”
3. Submit 12/15/22
4. Denied 12/16/22
5. Lawyer is livid, says nothing to do but wait for denial explanation in mail.
6. After 30 days I call SSDI rep who says “looks like your case was dismissed because didn’t submit medical history form” — I say “but I did” they say “ya I see that, this might have been error”
7. Rep tells me will try to rectify situation & I will receive something in the mail in 14 days
- 8. 30 days later nothing in mail so call back. Talk to hostile rep who says nothing they can do, either I appeal or start a new app. I ask how to appeal w/o notice explanation..
“Researchers should also study whether metformin can treat existing #LongCovid symptoms. Some experts believe Long COVID is caused by remnants of the virus in the body. If true, metformin’s antiviral properties might help clear it from the body.” time.com/6263356/long-c…
“@EricTopol agrees more studies on metformin are needed—but he says he believes the early findings are promising enough, & drug is safe & cheap enough, that he would personally take it now if he got sick with COVID-19. ‘I don’t want to #LongCovid’ he says” time.com/6263356/long-c…
Do we have any anecdotal experience with #LongCovid patients taking this drug?