🧵Even before being disabled with #LongCovid I’ve had a real problem with people joining the zombie hoard, ditching masking, and engaging in-person for everything like it’s 2019. But being #NotRecovered it just feels more like a slap in the face when it’s my so-called friends. /1
I find it offensive when family and friends, knowing how I got this way, why I got this way, drop their masks, send their kids to school, go out to concerts, parties, etc. not to mention the audacity of blathering on about it to me. It tells me they don’t believe me. /2
When I try to explain how they are unnecessarily exposing themselves to COVID they can’t help but repeat like robots all the typical propaganda points.
✅ “Well, life must go on.”
Guess what? You’re life won’t go on for long with those repeated infections. /3
✅ “We’ve been locked up for three years. Our kids have been locked up for three years!”
No you haven’t. No they haven’t. Really? You weren’t allowed to leave your house? Your kids couldn’t play outside?
I didn’t know wearing a mask was synonymous with “lockdown.” /4
✅ “We are vaccinated.”
Yeah I was vaccinated to the max as well. What’s your explanation for why I’m still disabled today? /5
✅ “COVID is just like a cold now. We didn’t lock down or mask up for colds before the pandemic.”
Actually it’s not. You may not end up like me tomorrow, but that’s still a BSL3 immune-system devouring pathogen you’re breathing in. Eventually, you’re going to have problems. /6
There’s too much stupidity for me to address, honestly. I feel like I’m Roddy Piper with the glasses in “They Live…” except I’m a prisoner to my #LongCovid now. /7
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For starters, @US_FDA needs to be made aware how many meds, supplements, and treatment protocols we have tried with little/no improvement. For starters, at the very least, they absolutely must address #Dysautonomia and exertion intolerance as roadblocks to PT/rehabilitation. /2
Second, we need help NOW. While drugs are being developed, let's talk about urgent repurposing of bold pharmaceutical interventions like antivirals, immunotherapies, monoclonals, etc. Let's begin a list of existing drugs we want made available for immediate use in the replies. /3
The few times a day I climb our tiny staircase, when finally upstairs, I'm gasping for breath, my chest cavity sore and tight, and my lungs feel unable to fill or empty completely. This lasts for hours.
"Exercise" for me is climbing a small flight of stairs out of necessity or walking from one room to another. When I do this too many times, imagine feeling like your head is spinning, your chest is seizing up, and you can't catch your breath. /2
For those still suspending disbelief about #LongCovid I challenge you to try to remain upright and functional for five minutes while feeling like you are experiencing a cardiac event. /3