Tim Reierson Profile picture
May 4 8 tweets 5 min read Twitter logo Read on Twitter
@samhsagov and @vibrantforall are you aware that your top-recommended online therapy resource @betterhelp was just fined $7.8M by the @FTC? @BrendanCarrFCC Here's #988Lifeline's resources page linking to top 10 online services, page earns commissions (!) 988lifeline.org/help-yourself/
2/ Click on Online Therapy gets to this link: onlinetherapy.com/best-online-th…
"We may receive commission if you decide to use counseling services through BetterHelp or other resources on our website." Persons needing help deserve an unbiased un-capitalized source for vetted resources.
3/ FTC's release on Betterhelp.
ftc.gov/news-events/ne… So maybe Betterhelp made a correction I don't know, but I guarantee at least some on the rest of that list have serious data concerns. Who actually cares about this at SAMHSA?
Data harvest ex - 7 cups Terms: "We may de-identify your Personal Information, in compliance with applicable law and aggregate such de-identified data with the de-identified data of other users.Such anonymized, aggregated data is no longer considered Personal Information..."
"...We may then share such anonymized aggregated data with the sponsors of programs that facilitate your access to the Services, such as government health agencies, researchers or healthcare providers."

This is likely where so-called sentiment analysis data stores are made.
This is how our US systems of care capitalize on persons in crisis or seeking help. Remember this is a top 10 referral for online therapy coming from #988Lifeline, US fed agency SAMHSA, and--the recipient of $100M + in tax dollar funding: #VibrantEmotionalHealth.
@samhsagov @vibrantforall @betterhelp @FTC @BrendanCarrFCC I'm confused why Vibrant "liked" this tweet. I'm trying to point out an exploitative resource linked from its services. I'd like that resource removed, please.
Another commissioned website linked from #988Lifeline: Ritual
"We may share aggregate, anonymized or de-identified information about users & their use of the Services with 3rd parties & publicly for marketing, advertising, research or similar purposes. heyritual.com/privacy-policy…

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More from @holdspacefree

Apr 16
1/Behavioral Health Link develops & markets #CrisisLines services to #988Lifeline providers. One of their offerings: "Voice-Currently in R&D, voice analysis technology to provide real time feedback on a caller’s emotional state to improve care delivery."web.archive.org/web/2022120220…
2/I've started mentioning Dr. John Draper's connection there, recently hired as their President of R & D. You may recall Draper was the long-time leader of Vibrant Emotional Health's administration of the Nat'l Suicide Prevention Lifeline,now #988Lifeline. linkedin.com/in/john-draper…
3/Between end of March & now, Behavioral Health Link took down its page of software solutions. Maybe it will go back up but I'd like to know why it's gone. Seems they've sanitized the site of their " #AI " type services. No doubt still in development. web.archive.org/web/2023041614…
Read 11 tweets
Mar 30
Disheartening how little regard there is for consent in the medical-health-data community. For example this new study looking into suicide "prediction". This is a #BigProblem #MentalHealth #BioInformatics #DigitalPhenotyping #Suicidology #DataEthics nature.com/articles/s4174…
2/ In this study, with MASSIVE personal health datasets provided by Kaiser Permanente @kpthrive, HealthPartners @_HealthPartners , Henry Ford Health System @HenryFordHealth the researchers applied models (including "neural" network) to try to predict suicidal risk.
3/ Spoiler alert it didn't really work (comment: maybe put resources on things we already know work, like human connection & actual care & support?). Sadly, this result will probably just cause more effort to "improve" modeling. This is about $, making it & cost-cutting it.
Read 18 tweets
Jul 18, 2022
1/4 I will pay $500 USD to the first person, by Aug 5,2022, to provide me with a peer-reviewed journal-published academic research paper that claims Terms of Service agreement as adequate informed consent for research on crisis conversations in USA. My “Terms and Conditions”: ...
2/4 It can’t be this 2019 JMIR paper (the only one I could find, making the claim for #CrisisTextLine), or any paper that cites to it. Must be research on the crisis conversations themselves—phone, text, transcripts, words. ncbi.nlm.nih.gov/pmc/articles/P…
3/4 Hint: It could be research on conversations to any National Suicide Prevention Hotline (Lifeline/988/Vibrant Emotional Health), US Dept. of Veterans Affairs Crisis Line, Crisis Text Line, Trevor Project—any crisis line. Good luck!
Read 7 tweets

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