Medical professionals unmasking in light of recent political declarations that the "pandemic is over" just screams to me like a 21st c. replica of the Lister controversy. American drs refused to accept antiseptic practices for decades after it was discovered. 1/4
Despite an abundance of evidence that it saved lives, drs refused to incorporate antiseptic practices. Despite overwhelming data. Depsite clear outcomes. Despite published studies. Lister failed to convince other drs that germs were real, esp American trained drs. 2/4
History didn't hold those drs accountable. They just murdered thousands of patients throughout their careers bc they refused to adhere to best practices. I really hope someone, anyone, has learned from that history. 3/4
Masks save lives. Vaccinations save lives. Ventilation and air quality control saves lives. If you're not advocating for all three, you're ignoring science, and I hope the public does a better job holding you accountable. 4/4 #DisabilityTwitter#MedTwitter#medhist
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I made it to 30! Did not expect to survive this long or to spend a decade in the highest highs and the lowest lows. In my 20s I grew into my disabled identity, had brain surgery, got a PhD, completed 3 predocs and a postdoc, founded the DAC, and got a tt job here at Kean. 1/4
I also experienced incident after incident of ableism. From the faculty member at UVa who claimed I wasnt a good culture fit to the numerous committees I freely labored in only to see nothing change. From conferences to interviews to job training, ableism abounds. 2/4
If you thought I was annoying about access and academia in my 20s get ready because I plan to be an absolute menace in my 30s. All of the negative energy sent my way? I'm going to figure out how to turn that into access for those who come after me. 3/4
"In an incredibly shortsighted approach, ignoring a prevalence of data stating otherwise, the US federal government removed all meaningful COVID protections, enacting widescale ableist policies reminiscent of the era of institutionalization." 1/4
"At the same time, away from public eyes, leadership enacted clean air policies for those with wealth, while launching widespread misinformation tactics to keep the general public worry free and complacent. Hospitals were encouraged to end testing, and to stop reporting." 2/4
"Regardless of a lack of menaingful reporting, excess death rates and disability rates for the past thirty years evidence a total failure of public health responses in America." 3/4
If youre a disabled student trying to choose a graduate program from those you were accepted to, here are some things I should have asked or negotiated in my acceptance 1/7
1. Housing. Ask upfront for accessible campus housing. If you can negotiate at all, tell your program you can't consider relocation without stable, affordable, accessible housing. 2/7
2. Ask current grad students about public transport. Does it exist? Is it accessible? How will you get to/from campus? How will you get everyday goods like groceries etc.? 3/7
The past like 6 months I've had terrible urogyn care. I had a UTI, gyn didn't do a culture, gave me 3 day course of meds, I didn't get better. I waited weeks to get a simple appt to do a sample and see an NP. She dismissed my issues entirely. But culture comes back positive. 1/11
Then tells me I'm "too complex" and drops my care. I scramble and go with an infection for weeks waiting for urogyn opening. Surprise I still had the same infection, the 3 day course of meds didn't treat it bc I have a shitty immune system and it was already too severe. 2/11
Then first urogyn decides I need thousands of dollars in tests and tries to convince me I need surgery. When I explain some EDS issues she tells me I'm "using my disability as a crutch and would get better if I just centered myself." So I switch care again. 3/11
There's ample evidence that clean air matters when it comes to COVID. And while we've long known this, we're getting more and more studies proving how important this is in #HigherEd. We can keep our classrooms safe with HVAC systems, HEPAs, masking, and other mitigations. 1/12
If you've seen me on campus this term, you will know me as "that lady wheeling around a cart." That is right. I am the lady wheeling around my own HEPA filter because I am high risk for COVID. So having clean air + masking in the classroom/office are vital for me. 2/12
I'm engaging in a lot of encounters lately where people see me masked and ask "oh should I grab a mask?" And I know it comes from a good place, but it can be really exhausting. Why? Let's talk about access labor. 1/10
Time and time again disabled people have to ask permission to be in the same spaces as non-disabled people. We need to ask for access to the building, we need to ask for layouts, we need to ask for captioning, we need to ask for interpreters. 2/10
I am constantly asking for permission to simply get into the room. And now let's compound that with masking. I'll use my own access needs as an example here. Just to get into the office to work I have to ask for so many things. 3/10