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You'd never guess - from the name - what Chronic Fatigue Syndrome π³π¦π’πππΊ is.
A lot of doctors don't know either.
π§΅
A lot of doctors don't know either.
π§΅
According to current research, #MyalgicEncephalomyelitis (ME/CFS), otherwise known as "Chronic Fatigue Syndrome," is a neuro-immune condition with fluctuating physical and cognitive symptoms. 
Some people get ME/CFS after a virus, but in others it develops gradually without a known trigger.
The symptoms can range from mild to severe, itβs often highly disabling, and it is not rare. The exact causal mechanisms haven't been nailed down yet, but research is getting closer
The symptoms can range from mild to severe, itβs often highly disabling, and it is not rare. The exact causal mechanisms haven't been nailed down yet, but research is getting closer
Abnormal findings in people with ME/CFS include:
π¬ an inability for cells to use energy effectively
π¨ reduced oxygen flow to tissues
π€ immune system dysregulation
π disruptions in signalling between the brain's hypothalamus and the pituitary & adrenal glands
π¬ an inability for cells to use energy effectively
π¨ reduced oxygen flow to tissues
π€ immune system dysregulation
π disruptions in signalling between the brain's hypothalamus and the pituitary & adrenal glands
π¦ changes in gut bacteria
π§πΌββοΈ a loss of capacity to recover from acidosis after exercise
π§ a lack of blood flow to the brain during upright postures
π©Έ blood micro-clotting
and more: me-pedia.org/wiki/List_of_aβ¦
π§πΌββοΈ a loss of capacity to recover from acidosis after exercise
π§ a lack of blood flow to the brain during upright postures
π©Έ blood micro-clotting
and more: me-pedia.org/wiki/List_of_aβ¦
People die from ME/CFS. However, according to many doctors, "Chronic Fatigue Syndrome" is just some sort of fuzzy, ill-defined, psychiatric problem,
that exists mostly in the mind of the patient.
#WorldMEDay #MedicalGaslighting #NEISvoid #pwME
that exists mostly in the mind of the patient.
#WorldMEDay #MedicalGaslighting #NEISvoid #pwME
When ME/CFS gets very severe, people can spend their lives
β trapped lying in a bed
β in a dark, silent room
β on fluids and oxygen
β and in severe pain.
They might need help to just turn over in bed.
#MillionsMissing
β trapped lying in a bed
β in a dark, silent room
β on fluids and oxygen
β and in severe pain.
They might need help to just turn over in bed.
#MillionsMissing
If ME/CFS were to be diagnosed early though, and treated appropriately, it might not ever get this bad. Because we know what makes it worse: Exertion.
Physical and mental exertion.
Physical and mental exertion.
Exertion like, for example, the Graded Exercise Therapy that people with ME/CFS here in Australia are told will help them.
Or, trying to advocate for yourself while being spoken down to, mocked and dismissed by a doctor who's holding your health and future in their hands.
#Auspol
Or, trying to advocate for yourself while being spoken down to, mocked and dismissed by a doctor who's holding your health and future in their hands.
#Auspol
There are clear, specific criteria available now, for diagnosing ME/CFS. And, although a cure hasn't been found yet, there are treatments available that can really improve the quality of life of a person with the condition.
However, a lot of doctors donβt seem to know any of this. Their understanding of the condition is just so different to what the research shows. It's as if, when these doctors talk about "Chronic Fatigue Syndrome," theyβre not talking about ME/CFS at all -
theyβre not π΅π³π¦π’π΅πͺπ―π¨ ME/CFS at all - but rather, some fuzzy, psychiatric condition, propagated by so many years of medical confirmation bias and stigma, that it exists now, only in the mind of the physician.
β’ β’ β’
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