"We've got parents with chronic health conditions..." Clancy Clonnal from @SHSorguk.

Who'd have thought that the consequences of constant high Covid infections would fall hardest on those most at risk?

Clinically Vulnerable Families have been struggling @NickMartinSKY.

1/
Unfortunately, time and again, our needs have not been considered.

Clinically Vulnerable people have a 5.4x increased risk of Long Covid and an 8.5x increased risk of death (data from the final ONS Covid survey).

Withdrawing protections from schools has hit us hardest.

2/ GHOST CHILDREN 22.3% of pup...
Our increased risks, without any protections in place, make our lives more difficult and impact our children - even if they are attending school. It is a barrier to attendance and a barrier to learning.

3/ Primary school was very sup...
Many Clinically Vulnerable Families no longer feature in official attendance data, as they have been off-rolled, because schools and local authorities do not want their own data blighted.

4/ We were forced to deregiste...
Clinically Vulnerable Families reject the incredibly distasteful title "Ghost Children".

This article by @samanthajbooth explains in more detail:

5/
schoolsweek.co.uk/dont-call-us-g…
Minimum estimates for Covid Orphans continue to grow.

Because by not protecting our children were are not protecting their households, families and communities.

6/ Orphanhood estimates: 16,10...
We have been collecting data,

We hope to share it with the Education Committee Inquiry into attendance, but we have yet to be invited to share our oral evidence.

Even winter pressures on healthcare affected our school attendance.

7/ 75% of Clinically Vulnerabl...
All children are now frequently getting sick with Covid itself, as it remains in high prevalence year-round. This also has a direct impact on attendance figures.

Whilst some people may be asymptomatic, others can take a long time to recover - if they ever do...

8/ It has been incredibly diff...
Children are developing post-viral conditions such as T1 diabetes which make them Clinically Vulnerable.

And highly vulnerable children are now locked out of high demand special schools due to a shortfall in provision.

However, there is something they could do...

9/ We were forced to de-regist...
And it isn't recycling the old "Schools Bill" to crack down harder on struggling parents.

Because fines, prosecutions, social services referrals, and school attendance orders are blunt instruments, which only make matters worse and won't fix our problem.

10/ Although both parents kept ...
All we are asking for is a safe learning environment. It is a very simple and basic request.

Because even those who are in school are struggling. How can children learn or perform when 'personal responsibility' means that they are constantly managing risk?

11/ My son is doing GCSEs right...
💙 We want to *live* with Covid
💜 #educationANDlives are essentials
💗 Everyone needs safe schools

Let's invest in health. Air filtration can reduce the risks for everyone.

By reducing Covid, 'flu, Strep A. & RSV we improve pupil & staff attendance and community health.

12/ harassment unmitigated ostr...
Join us in the unmentionable place to find the most supportive community and to contribute to our attendance survey:

Search for : Clinically Vulnerable Families FB group:  Clinically Vulne...
Additionally, please complete the DfE survey requesting evidence on children missing from education.

⬇️⬇️⬇️
consult.education.gov.uk/vulnerable-chi…
⬆️⬆️⬆️

14/

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More from @cv_cev

May 22
🚨 UK school attendance CVF 🚨

Our live data currently suggests that:

59%

of children in Clinically Vulnerable Families (CVF) are persistently absent from school 2022-2023 (10% or more) with:

23%

severely absent.

1/ Image :Bar graph  '22-23 Cl...
This compares to before the pandemic, when only 20% were persistently absent and 2% severely absent.

2/
It has improved since 2021 when:

80% were persistently absent (10%+) and

33% were severely absent (50%+)

3/ '21-22 Clinically Vulnerabl...
Read 13 tweets
May 22
Bird 'flu

Public awareness of the risks posed by bird 'flu is seriously lacking it is not sensible to travel whilst infected.

"Pandemic fatigue" had significantly impacted people's attitudes to Covid, and likely to any new pandemic 'flu.

1/ dailyrecord.co.uk/news/scottish-…
"Learning to live with Covid" by undermining mask use and downplaying Covid's severity will have serious consequences.

If bird flu were to develop human-to-human transmission, it could have devastating consequences due to its high mortality rate.

2/
50% mortality for H5N1 is huge.

Who dies in flu pandemics?

In 1918, mortality was highest in;
👶 u5 yrs
🤵 20-40 yrs
👵 65 yrs+

Obviously, the Clinically Vulnerable (those offered annual 'flu vaccines) have higher risks, too.
4/ Viral factors Seasonal infl...
Read 8 tweets
May 7
🏵 THE COVID CYCLE ♻️

As we navigate our way through the post-Covid world, it's important to consider the link between infections and outcomes.

1/🧵

TLDR :
🚫 Try to avoid catching / spreading infections
💨 Clean air will help THE COVID CYCLE   Diagram: ...
While you may well start off healthy, anyone can become Clinically Vulnerable at some point in their life, making them more susceptible to severe infections.

Take it from us, it isn't particularly fun - and frequently, our lives feel less valued.

2/ Diagram :  Healthy person  ...
Covid infections or repeat infections of healthy people can lead to Long Covid*, where people experience prolonged symptoms and conditions including: fatigue, brain fog and respiratory issues.

* Some data suggests that up to 1 in 10 infections result in long-term symptoms.

3/ Diagram :  Healthy person  ...
Read 11 tweets
May 2
🚨 Children are a major transmission vector

To be honest, this isn't news to any of us who have been following the data. We know the cases spread through the age groups, starting with the kids and then moving on to older generations.

1/
This goes against the government's narrative of returning to school in 2020. When they claimed that children don't catch or spread the virus.

They even paid social media influencers to encourage children to school, and parents to work, prevaccines.
2/
schoolsweek.co.uk/back-to-school…

2/
Following the emergence of vaccines, the reluctance of the JCVI to support the need for children's vaccination in the UK has meant that we have maintained a pool of undervaccinated young people, increasing their risk of @LongCovidKids.

3/
Read 9 tweets
Apr 29
⚠️ #MyMaskMyVote ⚠️

Clinically Vulnerable people (and others wearing masks) will be asked to remove them for the local elections due to new rules on voter ID, potentially putting them at risk.

1/
inews.co.uk/news/politics/…
The Electoral Commission has said people wearing face coverings only need to remove them "momentarily" for ID checks by polling station staff, but we argue that they need to go further to ensure the safety of the Clinically Vulnerable.

#MyMaskMyVote
2/ [Image of electoralcommissi...
@GwynneMP raised this urgent issue for us in Parliament on Thursday.

3/

Read 6 tweets
Apr 27
SPRING BOOSTERS #MasksInHealthcare

The Spring booster campaign brings together the most vulnerable people for their 6 monthly vaccines - which are known to wane after 5m.

This is a highly vulnerable cohort of patients.

One of our Facebook members shares their story:

1/ Clinically Vulnerable Famil...Oh and she said people who ...It's utterly dystopian as i...
It is incredibly worrying that the staff and volunteers at the centre were not wearing masks, particularly when interacting with vulnerable patients. The failure to follow basic infection prevention and control measures places our most vulnerable community at risk.

2/
Conflicting information provided to the patient about mask-wearing is a concern. Patients should receive clear information about safety protocols where many people are in close contact.

Miscommunication is not only confusing, but it prevents people from making safe choices.

3/
Read 6 tweets

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