Thread by @elisaperego78

Three years ago today the term #LongCovid was first used as a Twitter hashtag. A single tweet by a patient linked together a growing grassroots movement of people, who weren't recovering from covid. Across the world, we're still fighting for research and treatment of our disease

#LongCovid as a disease concept first grew out of a collective, grassroots, international, patient-driven movement of Covid survivors in early—mid 2020. As a disease entity, LC was recognized by the WHO in August 2020 thanks to intense patient advocacy

sciencedirect.com/science/articl…

Today Covid—Long Covid are—is among the most studied diseases in medical history. A search on the repository for scientific papers PubMed for *covid gives over 355,000 results. Papers include vast research on the long-term effects of SARS-CoV-2 infection

pubmed.ncbi.nlm.nih.gov/?term=Covid

Despite the massive amount of research existing on Covid, we're still lagging behind as regards full recognition, more in-depth research on the full spectrum of SARS-CoV-2 long-term effects, treatment, trials, access to care, access to disability benefits, and more.

While we keep fighting for full recognition and treatment for #LongCovid, I take this opportunity to thank my co-authors from the first wave @pre_historian @felicitycallard @Dr2NisreenAlwan @LaurieStras and B. Melville

Thanks to the many who have been fighting for #LongCovid recognition since the early pandemic such as but not limited to! @james__glen @ClaireHastie1 @CovidSolidarit1 @selkieO @MartaEsperti @LongCovidItalia @Savolainen_J @apuakoronaan @LongCovidSOS @long_covid

The French and international movement with #apresJ20 @lapsyrevoltee @apresj20 @Ra2myl @Food_reward
#covidlong @reverseyourmind
and many others (my apologies if I can't add everyone but you know who you are!)

I want to remember other early other influential terms and hashtags in addition to #apresJ20, like #covidpersistente, Long Haul Covid and #longhaulers (by @Amy_Ant) #MitCoronaLeben #koronaoire. And #CountLongCovid (@Dr2NisreenAlwan) and #FBLC follow back long covid (@james__glen)

@covid_madrid @alitwy @beattrice_ @LCNMUK @DocAmali @LongCovidKids @Nat_E_Pearson @DavidSteadson @MamaToronto @benking01 @BurbridgeHt @0bj3ctivity