Nothing like waking up at 4:30am bc your dad is groaning so loudly—his breathing is labored and sounds like he's underwater due to how much liquid has pooled into his lungs, and his body is clearly in pain as he's trying to cough with three broken ribs and a punctured lung.
With every groan it gets louder and his body convulses even more. If his consciousness isn't suffering, his body clearly is. Imagine hearing your dying father groaning and grasping for life, even if his consciousness doesn't seem to be there.
His wife of 40 years, sitting alone in her wheelchair, holding his hand, still asleep by his side, unable to wake up due to pure exhaustion having not slept for almost 48 hours straight bc she doesn't want to leave her life partner alone for even a second.
My sister looks absolutely traumatized waking up a few moments after me, hearing what sounds like an actual boar being drowned alive. This is what #dyingwithdignity looks like in the US because euthanasia is illegal here.
I have to sit here and listen to my father slowly drown to death in his own fluids (assuming dehydration doesn't kill him first) because we decided to "pull the plug" after his cardiac arrest left his entire cortex destroyed.
This country is nothing but a giant fucking torture chamber for every medical patient who can't afford to fly elsewhere for care. I'm so fucking furious right now. A little sodium barbital is all it would take to end this nightmare peacefully and painlessly,
Instead, we're being held hostage by this sadistic Christian belief that letting someone "die naturally", meaning with no external interventions, no matter how excruciating and drawn out, is better than painlessly ending their life quickly through external means.
Anyone who believes this is better than euthanasia is a coward and a hypocrite of the highest degree. Full stop. I'm so fucking sick of this country being held hostage by these phony, bullshit Christian values that just lead to more suffering. So angry right now.
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Another update on my dad: The MRI and EEG results came back last night and they were bad. The brain damage is extensive and diffuse throughout the cortex. He's not brain dead, but the neurologist said he'd be in a vegetative state once off sedation.
Our family made the difficult decision to take him off life support and allow him to pass as peacefully as possible. That was 24 hours ago and the ol' bear is still alive, shocking the entire ICU as they expected him to go within minutes considering how unstable he's been.
The worst part is having to watch him slowly die and fade away. I hate that our country does not allow for euthanasia, especially in clear cut cases like this where we are pulling the plug anyways as our father's cortex is completely destroyed.
Ugh, I'm reading about therapeutic hypothermia for cardiac arrest and like, there's almost zero scientific evidence that shows it's effective. The largest RCT I could find found it might even lead to worse outcomes. JFC, it's not just COVID misinformation we have to worry about.
I did not realize how anti-science the entire medical system actually is. Most of the studies I'm looking at say there were zero benefits, and some say it may actually be harmful like the RCT I mentioned, but this procedure is standard practice in ERs across the US.
What the actual fuck are we doing?! We need serious intervention in all of medicine. I feel like we're in the fucking dark ages where bloodletting was all the rage. Might as well be since there's as much scientific evidence to support it as some of our ER's standard practices JFC
The thing that I predicted would happen finally happened. I fucking hate being right all the time. My dad just suffered what appears to be a heart attack a mere five months after his COVID infection. It happened at a pickleball tournament just now.
We're all waiting with bated breath to see if he survived. He was in perfect health with no comorbidities except for a mild COVID infection five months ago. I told him not to participate in vigorous exercise for at least the next six months, but he refused.
I also told him to take supplements to mitigate the increased risk of stroke and heart attack after a COVID infection, he refused. And now five months later we're waiting to see if he's alive after a heart attack, most likely connected to his COVID infection five months ago.
Hooooly fucking shit. If you remove consent and someone still has sex with you, that's literal rape. If you're asleep you are unable to provide consent, that's also rape. Who the fuck is this woman giving advice!?! I've never been so angry before reading marital advice JFC...
The ONLY exception to this is if you participate in consensual somnophilia/dormaphilia, which is the act of having sex while asleep. If you have thorough discussions and have consent ahead of time, I believe it's possible to engage in consensual sleep sex.
There are people who disagree and say that all sleep sex is nonconsensual bc you can't consent if you're unconscious. But I disagree. Like, any medical procedure where we lose consciousness, we consent to that too even though we're unable to consent during the act.
This is a big one for ND dating. I teach all of my clients to embrace who they are and find people who love you authentically, which is good advice for everyone.. but it's ESPECIALLY powerful for ND people bc society constantly demonizes our natural, authentic selves
We're taught that being neurodivergent is unattractive (as are all of the behaviors that go with it). EVERY dating coach I ever had, even the decent ones, would have me change at least some of my ND behaviors to be seen as "more attractive to women".
Luckily, I was able to figure out that that's all bullshit. You don't have to mask your neurodivergence in order to date and find a good partner, the right people will find your ND qualities enduring (and even attractive).
This is the shit that pisses me off. In his very first tweet he's like, I'll engage you if it's a good faith discussion, and then HE is the one who immediately goes straight to sarcasm with this QT after I explain why I think this self-reported survey's question is not good.
And by "not good", I mean it's likely introducing a lot of bias resulting in an undercount of long COVID. But instead of engaging me in good faith, he leans into mockery and derision.
Here's the question in question: "Would you describe yourself as having 'long COVID', that is, you are still experiencing symptoms more than 4 weeks after you first had COVID-19, that are not explained by something else?"