Thread by @julialmv

The Long COVID Wearable Study officially launches today!

We aim to rigorously validate what patients have experienced - that wrist worn wearables (in this case @Garmin devices with the body battery feature) can help decrease symptom severity.


1/6longcovid.scripps.edu

Eligible participants who do not already own a wearable will receive one – either just after enrollment, or 3 months after enrollment.

We will compare symptoms between groups at 3 months & continue to examine use & effects for 12 months.


2/6longcovid.scripps.edu

We desperately need #LongCOVID drug trials.
In the meantime, pacing is an inexpensive way to help manage symptoms.

We hope that this study helps improve clinician awareness of pacing & using wearables to guide pacing.


3/6longcovid.scripps.edu

Participants with ME/CFS and/or POTS from any cause can join.

All outreach will be word of mouth.

We would be grateful if you could share the study with people who do not have the means to purchase a device.


4/6longcovid.scripps.edu

We’re also collecting data and experiences from those who already own wearable devices – and will conduct exploratory analyses across device types.

So if you already own a wearable - we welcome your participation too!

5/6

Thank you to so many – especially the people with Long COVID who gave early feedback, colleagues at @ScrippsRTI, @careevolution, @patientled, @Garmin, & an anonymous philanthropist.

Press release here:


Enroll here:

6/6scripps.edu/news-and-event…
longcovid.scripps.edu

PS here's a thread from when we first created the study website:

https://x.com/julialmv/status/1466200062602530816?s=20