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Julia MV Profile picture
Julia MV
@julialmv
Let's increase health equity Now: @AllofUsResearch at @ScrippsRTI & #LongCovid patient-researcher @patientled Then: @RockefellerUniv & @nygenome
Mar 11 • 7 tweets • 3 min read
The Long COVID Wearable Study officially launches today!

We aim to rigorously validate what patients have experienced - that wrist worn wearables (in this case @Garmin devices with the body battery feature) can help decrease symptom severity.


1/6longcovid.scripps.edu Eligible participants who do not already own a wearable will receive one – either just after enrollment, or 3 months after enrollment.

We will compare symptoms between groups at 3 months & continue to examine use & effects for 12 months.


2/6longcovid.scripps.edu
Jul 8, 2021 • 14 tweets • 6 min read
One year ago, I was shocked to realize I had lost my senses of taste and smell. We had been so careful.

I’d like to share a bit about my experience with #LongCOVID, 4 things I’m grateful for and a few ways you can help: 1/14 The scariest part was struggling to breathe. I (finally) made a will. Throughout week 2, I wondered whether I would wake up if my oxygen saturation dropped in my sleep. Thankfully, my oxygen levels stayed high enough to avoid hospitalization. 2/14