Lately I’ve been thinking of butter vs margarine in the 80s / 90s as a kind of analogy for covid. Margarine was always bad for us, but it was marketed as healthier. I had a good friend whose family stuck with butter and knew back then that margarine was unhealthy.
This friend’s family always seemed smarter, more cultured, and more thoughtful than mine. Surely there were ways to know back then that margarine was actually worse for the body than butter, but there were also constant ads calling it “heart healthy” or whatever.
So my friend’s family had a broad enough information diet that they knew years before less informed people that margarine was worse.
So I’d expect now for similarly worldly, educated people to be covid aware. Even as things got worse and worse, more and more people gave up
on mitigations in the blue / lefty parts of the U.S., I always figured the people I knew like this family would stay informed and require masks at their events, be sure their local schools had air filters, etc.
Anyway, one of the parents from this family of my childhood friend, who I’ve so looked up to, recently posted a photo of a packed auditorium and said how great it was to see such-and-such for a “post pandemic” performance.
It just felt like a reminder that my vision for SOME people who aren’t grievously impacted by Covid to stay aware and contentious is no match for the propaganda war being waged on us all right now. There wasn’t a massive disinfo campaign around butter vs. margarine when I was
a kid. It didn’t impact every aspect of our lives. People would have their whole life, and just buy one product or another at the store. It didn’t matter to anyone’s health what any other person chose as their creamy bread lubricant.
So anyway. That’s a bummer. I was about to write that everyone caved whose life didn’t depend on Covid caution, but don’t we have a small handful on here who are still cautious AND healthy????? I would be very, very curious to know why they are like this!! The only people who
have hung on to some fucking morality, not to mention self preservation and general reading comprehension. I feel like most healthy-ish people who are covid cautious are aware of a risk factor like EDS, or had a previous bout of post viral illness. But yeah, anyone know of
people who are healthy and covid cautious??
The biggest betrayal to me is possibly the lack of critical thinking skills. I grew up around a lot of people who allegedly valued education (or did that just mean valued succeeding financially, which meant going to “good schools”?).
So, education, critical thinking skills, etc. Then we have this undeniably massive thing, and we get this sort of “eh you’ll probably be fine” public health messaging, and it’s “wonderful to be back in this crowded theatre”??! Like???
Why was I lectured for my whole life that learning history is important if you’re gonna hear a public health leader say “vulnerable people will fall by the wayside, but it’s generally cool or whatever” and go: “sweet, it’s cool!”
Thanks for joining me on this the-edible-has-kicked-in late night ramblie journey, friends. I think I actually answered my own question with a parenthetical. Did they “value education” or was that really code for “live somewhere with high property taxes and “good schools,”
so you can raise your kids in an elitist bubble and have them continue your legacy of privilege”? Sure, a lot of people in my home town did read and enjoy learning……. But they were more committed to their lifestyle than to fearlessly pursuing the truth no matter where it
led, including if it made them have to do socially unpopular things.
Damn, this contradiction has been like a grain of sand in my brain for ages!!! I had been coming to terms more and more lately with the hollowness of the settler-colonial dominant culture I grew up in.
But damn, like… to see the inherent bullshit in even people I have the very coziest memories of??? To see those people behave like this???????? Fucking damn.
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When I had mild ME, I’d be very annoyed at all of the things I could NOT do. Now with moderate-to-severe, I’m so happy any time I can do something! I was not good at processing the grief of becoming disabled until it was catastrophic.
My main advice to mild folks is do the grief work you need to do, and then try to protect and appreciate everything you do still have.
It’s a weird spot to be in— having the “mild” version of the (arguably) worst disease. Mild ME was utterly devastating to me.
AND, I wish I’d understood then that as an ME patient I was still incredibly lucky. As a “healthy person,” how I still sorta saw myself, I was in terrible shape.
It’s all a lot to wrap your head around and I’m sure on some level you just have to go through it to get it.
Ugh my physical exam for disability is next week. I have no idea how to navigate— what to do / not do. I’m thinking of printing out the Mayo Clinic thing on ME and maybe ME Action’s physician’s guide. But I feel like anything I try could backfire.
I also really, really want to wear a pretty intense P-100 mask with face shield, although I have an Envo mask. I’m worried about getting covid via eyes & I want to protect my baseline. I’m very severe on the new severity scale.
Do I call ahead of time and give them a heads up that I’ll be in an intense mask?? Or does that just give them time to plan their shittiness? Do they normally need to look in nose / mouth? I’ve had a doc go outside with me once when they insisted on taking a photo of my
You guys the ableds are upset that air travel doesn’t run smoothly at Christmas in the midst of an uncontrolled pandemic, and I’m having a big old schadenfreude belly laugh about it.
They really seem surprised? And confused? “Everything else in the world is super duper, why is my flight delayed? The only possible explanation is that my airline is doing a bad job, and therefore the solution is to ask for a manager, not wonder if something bigger is at play.”
*Okay fine, it does seem Southwest was doing a very bad job. I stand by the schadenfreude, though, and the sense that maybe it wasn’t great to travel (unmasked) the height of our tripledemic.
I watched the whole season one of Emily in Paris in a few days. It’s just perfectly hollow, much more than it seemed at first.
I need a lot of light, fluffy shows to sleep to. But I need to watch them first to know the basic story and if there are any parts to skip. This is just nonstop surface level beauty, ease, and identical hot brown haired French men.
They used that gorgeous “non regrette rien” song over the most nothing moment. “One of my hot French men something something” and they think the moment measures up to that song?!
The best thing about getting some help and Christmas gifts from my family on this first Xmas of having much worse #MECFS and new #LongCovid is being reminded how very much work it was for them, and told that I didn’t show adequate or timely appreciation.
If you’re going to need help from your family, be sure they are emotionally immature enough that they’ll find a way to pair help with burden. Merry fucking Christmas.
I’m trying not to use my arms today, bc in an effort not to burden my partner I poured my own water while he was on the phone, and now I have PEM in my arms. Will I bounce back? Who knows!
If you’re attending conferences etc (all super spreader events at the moment), how do you deal with the extremely likely possibility that you have killed or disabled someone? Was it worth it? Did you get an autograph? Some fun photos? How nice for you.
And will you expect empathy, care, and public health precautions when long covid comes for YOU? Because I am a messenger from the future. You will scream into the void as our eugenicist country parties on. You don’t care now. Few will care when it comes for you.
When I’m in a better spot health wise I want to contribute to whatever positive work I can, join with @MEActNet and others pushing for positive change, but at the moment I am too sick and just so angry.