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Kelly E. Dwyer Profile picture
Kelly E. Dwyer
@DeviousDwyer
Speculative Fiction Writer, Learning Technologist, Mother, She/Her, Crohn’s Disease, Immunocompromised, Get Vaxxed & Wear Masks! @justonemorepage, @NoVaTEENBF
Oct 25, 2022 • 24 tweets • 6 min read
Today’s story about being a professional sick person is all about how I almost lost more than $75,000 in a morning. No, really.

As I was waiting for the nurse to call me back for my infusion this morning, I got a phone call. #crohnsdisease #ibd 1/24 (Long thread apologies) It was the financial office for my infusion center. Funny, I replied, I’m sitting right here waiting for my drug. He said, that’s why I’m calling. You can’t get your infusion today. *cue record scratch, heart pounding stomach dropping panic onset* 2/24
Feb 2, 2022 • 4 tweets • 11 min read
@rebelliousgut @MondayNightIBD @southasianIBD @ibdesis @Empoweringpts9 @DCharabaty @ownyourcrohns @crohnsbabble @LivingWithUmeed @vkckiranpullela @TheMaveilousGut @dunung_ruchita I have used CAM to improve my quality of life with IBD (yoga, meditation, scent therapy, herbs), but only with my MD's recommendation and while pursuing biologics and other medical interventions for treatment. @rebelliousgut @MondayNightIBD @southasianIBD @ibdesis @Empoweringpts9 @DCharabaty @ownyourcrohns @crohnsbabble @LivingWithUmeed @vkckiranpullela @TheMaveilousGut @dunung_ruchita I am very wary of therapies without evidence-based research. I would like to see more clinical research being done on the benefits of other CAM modalities and their impact on IBD.
Feb 2, 2022 • 4 tweets • 11 min read
@rebelliousgut @MondayNightIBD @southasianIBD @ibdesis @Empoweringpts9 @DCharabaty @ownyourcrohns @crohnsbabble @LivingWithUmeed @vkckiranpullela @TheMaveilousGut @dunung_ruchita Wonderful week & so much critical information being shared, @ibdesis @southasianIBD! My biggest hurdle to diagnosis and care was being told for 15+ years that my symptoms were clearly anxiety and psychosomatic because I was a stressed young white woman. @rebelliousgut @MondayNightIBD @southasianIBD @ibdesis @Empoweringpts9 @DCharabaty @ownyourcrohns @crohnsbabble @LivingWithUmeed @vkckiranpullela @TheMaveilousGut @dunung_ruchita I cannot imagine the stigma and difficulties that South Asian IBD patients face in getting diagnosed and receiving treatment. I am immensely glad to see this topic of conversation being amplified globally by your work. Thank you for all your work!