Discover and read the best of Twitter Threads about #ibd

Most recents (15)

ICYMI:
@EricTopol serves up a treasure trove of data and links to credible scientific research reports that are MUST READ
re: the current sad state of American physicians

🙏Why Doctors Should Organize
newyorker.com/culture/annals…
#PatientCare #Healthcare
@drjudymelinek @choo_ek
Doctor-patient relationship is crucial and I wonder if a patient is aware of the hospital’s policy (not the doctor) for a visit time allotment (in minutes).

Building More Trust Between Doctors and Patients
hbr.org/2018/11/buildi… @HarvardBiz #empathy #trust #PatientCare #IBD
“Administrative tasks have become so burdensome ....only thirteen per cent (13%) of a physician’s day, on average, is spent on doctor-patient interaction” Dr. Topol

jamanetwork.com/journals/jamai… #PatientCare #AI #Health #Healthcare #IBD #IBS #Hospital #Corpgov #Safety #MedEd #Doctors
Read 10 tweets
I have a brain tumor/IIH & such severe intestinal damage that I can't digest food w/out enteral food RX.
It's $198/mo even w/a pharma scholarship.
My now 77-year-old mom is my caregiver & she can't afford it.
We get $64/mo for food + trying to save home. Please help!
In 2011, I was bitten by a tick. I contracted E. Chaffeensis, Rickettsia, & Lyme. I wasn't treated for 11 mos. The bacteria went to my spinal cord/brain.
Please help us 💔
#Lyme #IBD #Fibromyalgia #Spoonies
During 1 of my numerous hospitalizations, I caught Vanc-resistant C. Difficile for 3.5 yrs & had to have 2 FM transplants.
I can't digest/ absorb food w/out EnteraGam.
It's norm. $1600/mo but I get a pharma discount, making it $198/mo. My 77-year-old mom still can't afford it.
Read 8 tweets
I was bitten by a #tick in 2011 & it's turned my worle upside down!
I was a practicing trial atty & am now on a walker.
I contracted E. Chaffeensis, Rickettsia of unknown et., & #Lyme.
I wasn't treated for 11 mos. By then, the tick bacteria had invaded my spinal fluid/brain.
Read 12 tweets
76 yr old Mom needs help gofundme.com/76-yr-old-mom-…
Please help us! 😭
Can't afford next mos.' RX @$198/mo necessary to digest/absorb food.
My now 77-year-old Mom is my caregiver. We get $64/mo for food (long gone) + trying to save home.
#Lyme #SaveOurCare
#Fibromyalgia
#IBD
Even $5 or $10 will help + RTs are free. 🙏
I was bitten by a #tick in 2011 & it utterly destroyed my life.
I contracted E. Chaffeensis, Rickettsia, & what was later found to be #Lyme.
I wasn't treated for 11 mos. By then, the bacteria had invaded my spinal cord + brain.
#LymeDisease #healthcare #tick #foodstamps
Read 16 tweets
76 yr old Mom needs help gofundme.com/76-yr-old-mom-…
Please help us! 💔
I was a practicing trial atty when I was bitten by a tick. I contracted E. Chaffeensis, Rickettsia, & what was later determined to be #Lyme.
I also contacted Coxsackie B4 virus-a cousin of polio. I wasn't treated for 11 mos. I have lost most use of my left side (I'm left- handed)
Read 17 tweets
Recent case report published in @Nutrients_MDPI claims vegetarian #diet induced remission in Crohn’s disease and has been promoted as a “cure” by @gizmodo. (spoiler: there is no current cure for #IBD) 1/
link to study: mdpi.com/2072-6643/11/6… 2/
The patient in this study had a colonoscopy which showed moderate Crohn’s disease. He was started on a biologic (infliximab) and “significantly” improved clinically but had ongoing symptoms (abdominal pain, fatigue, bloating). 3/
Read 9 tweets
76 yr old Mom needs help gofundme.com/76-yr-old-mom-…
I waa bitten by a tick in 2011 & not treated for 11 mos.
Went to the Mayo Clinic-found Coxsackie B4 virus (a cousin of polio) which left me w/out most use of L side (L handed 😪).
I caught Vanc-resistant C. Difficile, had 2 FM transplants & need RX @$198/mo just to digest food.
Drs back in Louisville eventually discovered tick bacteria (E. Chaffeensis, Rickettsia of unknown etiology, & #Lyme-Dxd 1 yr later). All went to spinal fluid & brain.
Have had 8 spinal taps.
3.5 yr C. Diff/2 FM transplants left me unable to digest food w/out enteral RX @$198/mo.
Read 6 tweets
Not sure what to expect at the 2019 BHP Research Showcase? Our free public event will be held at @qehbham on Fri 17 May, where you can get hands-on with our health research. If you want to #BePartOfResearch, take a look through our exhibitor info THREAD > birminghamhealthpartners.co.uk/research-showc…
Our #cardiology stand will focus on current studies that are changing & saving the lives of our patients. Our cardiology team is one of the largest in the UK and works closely with @ICVS_UoB to treat every type of #heartdisease
#BePartOfResearch
.@UmbrellaHealth is the home of #sexualhealth services for Brum & Solihull. They'll be here with interactive displays highlighting research into #HIV and #STIs, including #antimicrobialresistance and bacterial vaginosis >> umbrellahealth.co.uk
#BePartOfResearch
Read 23 tweets
76 yr old Mom needs help gofundme.com/76-yr-old-mom-…
Please take a moment & read our story. 💔
NEWS!
I just found out that I will be getting $514/mo for SSI but that has to go towards our home & bills/food.
I still need help w/$198/mo RX.
Also received notice that foodstamps will be CUT to $15/MONTH! 😭
Who could possibly eat on 50 cents a day or survive on $17.13/day?
Read 20 tweets
Thread
She takes care of ME-Life sure has a sense of humor.
#MothersDay
My brother we lost in an auto accident at age 19. #MothersDay
My best friend and reason for fighting my illnesses. #MothersDay
Read 25 tweets
thread

Remarkable @bmj_latest @BMJCaseReports report documenting the extreme lengths a bedbound patient went through to get a diagnosis of #POTS, #MCAS, #SIBO and #tachycardia

read her story here

#MedEd #MedTwitter @MayoClinic
casereports.bmj.com/content/2018/b…
2. After suffering for 16 years, seeing 19 docs with repeated misdiagnosis:

Her cardiologist couldnt diagnose #POTS

Her gastroenterologist couldnt diagnose #SIBO

Her immunologist couldnt diagnose #MCAS

Her neurologist referred her to a #psychiatrist!

casereports.bmj.com/content/2018/b…
3. Patient: the "neurologist was out of ideas and suggested I get a psych evaluation, which I declined"

the patient <referred herself> to @MayoClinic

#SickNotWeak #chronicillness #chronicpain #MedEd #medtwitter

casereports.bmj.com/content/2018/b…
Read 10 tweets
76 yr old Mom needs help gofundme.com/76-yr-old-mom-…
Please read my mom's gofundme & help in any way possible. We are struggling to survive. RTs help. 😭
In 2011 I was bitten by a tick (after being on antibiotics for 19 yrs). My rescue dog was bitten & died the next day. Wasn't treated for 11 mos- I had E. Chaffeensis, Rickettsia, & prob.#Lyme in spinal fluid & brain. Caught Coxsackie B4, cousin of polio & lost most use of L side.
Read 10 tweets
Dr L in the buzzfeed article says humans make alpha-gal sugar, But, here’s a podcast & transcript w/Dr Commins, Prof at UNC Allergy & Immunology who was part of the discovery team in 2009 & is an expert on AG. He says humans don’t make alpha-gal sugar./1 apple.news/A-Ybbhe0lQXuD_…
Dr Commins also clarified that the 2009 discovery involved the lone star tick but that it can be caused by other ticks. His research is ongoing. I disagree w/him on 2 things:
1) I Do think anyone w/a tick bite should be tested for the allergy apprx 6 weeks after the bite.
And/2
2) The reaction does not always cause itching. I’ve found the random palm itching to be more common than torso hives, but, even more common than that is no hives. And, I agree that the allergy response, unlike other food allergies, is delayed. Dr C say apprx 4 hrs after/3
Read 9 tweets
1. If you want to understand what causes Crohn’s disease, ulcerative colitis, or actually many other chronic illnesses, and why most medicine doesn’t seem to treat it, I want to explain what may be happening. (thread)
#crohnsdisease #ulcerativecolitis #ibd #chronicillness #crohns
2. This hypothesis is a collaboration between my wife and I, and is based on longstanding research + some new studies that have come out in the last year or so.
3. Crohn’s disease is a chronic inflammatory condition of the gastrointestinal tract. Like many of the other inflammatory bowel diseases, it can be a debilitating illness that makes life a living hell. If it gets bad enough, it can kill.
Read 75 tweets
THREAD: On Friday, to mark the start of #IBDAwarenessWeek, the wonderful @bottomline_ibd published a series of videos highlighting advice to those newly diagnosed with #IBD (#Crohns, #UC or #INDColitis). Thought I'd try and collate them here and then unroll...
1. First up @BigWoofa from Peterborough. #IBD #IBDAwarenessWeek #IBDVoices
2. Next on to Brighton's @quitegutsy #IBD #IBDAwarenessWeek #IBDVoices
Read 12 tweets

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