Alissa Zingman MD MPH - ZebraMD Profile picture
PRISM Spine and Joint, https://t.co/xU10wz4Q5O, Research https://t.co/1kUMpVueSJ, Hypermobility Care, Wife/Mom/CEO/Dancer. Tweets are not medical advice.
Jun 12, 2022 14 tweets 5 min read
1/
Raising a child w #hEDS #MCAS #POTS requires lots of love, reassurance and planning. Inspired by @The_Weed I will attempt to be half as eloquent and helpful as he was in the thread I just retweeted.

How do these kids get #PTSD?
Their symptoms are ignored, they are told... 2/
they need to ignore their symptom, toughen up, work through pain, not act like a baby, stay w/keep up w/ their peers, try harder, etc.
They may have fatigue, pain, discomfort, or an indescribable feeling that something is "wrong" (perhaps a subluxation) $ they need to stop.
Oct 21, 2021 9 tweets 3 min read
#mastcellawarenessday #MCAS Wish I wore make up and didn't have Pirate's Booty crumbs on my shirt but here goes an impromptu MCAS talk! Part 1 Part 2