Kyle & Evie 💙 - 🤔 each day's a gift, not a given Profile picture
Evie is companion to this PKD warrior. daily we challenge views & attitudes & learn. 2nd birthday now 22/7/19 tx to a kidney transplant (3/10 die daily waiting)
Dec 29, 2021 16 tweets 5 min read
@Argos_Online dam it you ppl! You've wasted 90mins of my day already & I'm still going round in circles! How on earth can one company be so dammed difficult to use when I'm doing EXACTLY as you ask me to do, order online! I have 3 separate issues from attempts so far today! 01/15 1) I've found the items i want, they're in my trolley! So no, i haven't got an order YET!
WHY? Because i can't get that far!
🤔 I try the chat function, initially it doesn't make sense so i say no to an existing order. So I'm promptly thrown out.
☹️ I search for a tel no. 02/15
Dec 29, 2021 4 tweets 2 min read
Commenting that i wanted to do a quick clear up before a walk, #Evie wanted to do her bit to help! Starting on the left:
➡️Search for any left over food by searching babies & putting them in their corner,
➡️ Clear her bed up from the middle of the lounge by rolling out up! As you see, mixed success there but the thought more than counts (it's more than most able bodied kids manage! Not counting students, that's 0%)
It's a shame the bed didn't work out but i promised her she can have a new big fluffy one when i find one!
Dec 24, 2021 10 tweets 4 min read
My sincerest & humblest apologies all! For the first time in my life, ever, 9pm, Christmas Eve & i actually just realised what day it was! 😱⚠️
No, i have no idea either but i guess that's what 2 years of near isolation can do to you (throw in painkillers, CF, fibro & depression) Never assume that because you don't hear from someone everything is ok (the old, "no news is good news" {as all must be ok!}, they're just busy! Especially when it's such a landmark day & ppl are invariably wrapped up with their families. That's not always the case!
Oct 2, 2021 10 tweets 3 min read
Time for an update on things here!
Most importantly; il pleut, beaucoup, au dehors !😕 Notre chien ne veut pas aller au walkies!🙄 Elle fait une lie-in!🤷 (Avec déjeuner en lit). Je ne va pas au shopping!😋. Fin.
Sums up life here!

But onto other stuff: You've no doubt been aware in the wake off the council decision to cancel the eviction there's been meetings on meetings to try to sort something.
The safer homes lady is doing a grand job helping me, talking about what next, discussing where I'm at, etc.
....
Sep 17, 2021 12 tweets 3 min read
Let me ask you a question.
I presume you've heard the news of sacked health workers in France. (Only 5% max of all)
Before you scream foul, just for a mo, I'd like you to do something pls, put yourself in my shoes!

Why? - I've no immune system AT ALL!

A cold, the flu could kill Btw, how are you feeling in those shoes, knowing there's all those bacteria & viruses floating around at work, that your kids being home, that you then take & spread, or you give to them & spread?

Are you still feeling comfortable?
Sep 14, 2021 5 tweets 2 min read
WHY?
#NHS "trusts have continued to incentivise the practice, with GPs being offered bonuses to keep in person attendances low"
Why are MANAGERS doing this?
I've given up speaking to my GP surgery!
I'm at high cancer risk!
An existing rheumatology patient
dailymail.co.uk/news/article-9… I was told, days ago, if i couldn't get the bloods done that i needed (due to the #blood vial crisis) they'd have to cancel my apt & it would be a year till if get another!
Remember, I'm already in the system, classed as vulnerable due to being a Tx patient, this high risk!
1 yr!