I had the honour of speaking about my experience of the schizophrenia dx on @MichaelRosenYes's @BBCRadio4#WordofMouth episode with the awesome @nathanfiler, edited by @SalHeartsBooks. Some have asked why I don’t identify with the dx, even tho it ‘just’ described my symptoms.
Schizophrenia is - in one sense - just a word, but it is a word with history, multiple meanings and many consequences.
A thread: 🧵👇
Jan 28, 2021 • 18 tweets • 4 min read
Yesterday was a hard #COVID19 day. I woke up at 4am with the uncomfortable awareness that it was getting harder to breathe. My O2 sats had reached the ‘ambulance/A&E’ level I’d agreed with the Doc on Monday. I retested multiple times, but they refused to budge.
Making the decision to go to A&E felt like I was passing a threshold - entering into an unknown space where I could not say with any certainty that I’d be OK. I put a brave face on it, but was mentally rehearsing a letter I’d wrote for Thea (my toddler) for her to keep if I died.
Feb 5, 2020 • 9 tweets • 2 min read
Leaving today’s #ExpertsByExperience conference with conflicted feelings .. anger, disappointment and a deep sense of sadness (with sprinkles of hope and connection). I feel like the joining of philosophy to survivor expertise has potentual - but it appears to req. big steps back
In many ways today felt like something arranged with great intentions but limited awareness of the important & inescapable politics and what constitutes expertise thru experience
