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betsy ladyzhets 📊 Profile picture
betsy ladyzhets 📊
@betsyladyzhets
editor/co-founder @thesicktimes & freelance science/health journalist | she/her/🏳️‍🌈 | @betsyladyzhets@bsky.social & betsy@thesicktimes.org
Jan 30, 2024 • 8 tweets • 2 min read
My partner and I both got COVID-19 a few days ago, our first time testing positive. Feeling very lucky that we have avoided it (at least, as far as we know) until now and that we were able to quickly access Paxlovid and other supplies, but... (1/8)
Photo of a rapid test from iHealth Labs on a white background. The test line on the test is very dark, clearly positive.
Photo of two boxes of Paxlovid on a bedroom shelf, next to a box of Kleenex and some over-the-counter meds Feeling angry that we got sick despite wearing N95s everywhere, avoiding indoor dining, etc. I know so many people who have gotten sick during this wave, many without the resources that I have as someone with decent income and extensive knowledge about this virus. (2/8)
Jul 31, 2023 • 12 tweets • 4 min read
🧵 Big news about NIH RECOVER: after many months of delays, the initiative has finally launched its Long COVID clinical trials. @rachelcohrs covered this for @statnews, & I'll add a few key points below: (1/11) https://t.co/ZqWw6MpGBHstatnews.com/2023/07/31/lon…
Screenshot of a STAT News article Headline: NIH begins long-delayed clinical trials for long Covid, announces new research office Byline: Rachel Cohrs, July 31, 2023 Photo of pills, caption: The only trial underway right now will test whether a longer regimen of Pfizer’s antiviral Paxlovid alleviates symptoms of viral persistence. JOE RAEDLE/GETTY IMAGES RECOVER will include five Phase 2 clinical trials:
1) Targeting viral persistence with Paxlovid (enrollment starts today)
2) Targeting neurocognitive symptoms with training programs developed for Long COVID (launching in the coming weeks) (2/11)
Apr 20, 2023 • 14 tweets • 5 min read
In December 2020, Congress gave the NIH $1.2 billion to study #LongCovid. Years later, not a single clinical trial has started and there's very little to show for that funding. @rachelcohrs and I dug into this for @statnews and @MuckRock: (1/11) statnews.com/2023/04/20/lon…

Screenshot of a STAT News article header Headline: The NIH has poured $1 billion into long Covid research — with little to show for it By Rachel Cohrs and Betsy Ladyzhets, April 20, 2023 Featured image is an illustration showing an empty pill bottle, labeled "Rx Long COVID treatment," with a "COMING SOON" sign filling it instead of pills. People in masks stand in front of the bottle, looking distressed.
WASHINGTON — The federal government has burned through more than $1 billion to study long Covid, an effort to help the millions of Americans who experience brain fog, fatigue, and other symptoms after recovering from a coronavirus infection. There’s basically nothing to show for it. The National Institutes of Health hasn’t signed up a single patient to test any potential treatments — despite a clear mandate from Congress to study them. And the few trials it is planning have already drawn a firestorm of criticism, especially one intervention that experts and advocates say may actually make... The article goes into the NIH RECOVER initiative's biggest problems right now, focusing on its failure to start clinical trials that would deliver treatment to people with #LongCovid. Here are a few highlights: (2/11) muckrock.com/news/archives/…
Jan 5, 2023 • 11 tweets • 3 min read
I'm at the American Museum of Natural History, where Jonathan Hoffman from NYC DEP is about to give a talk on the city's wastewater surveillance program. will share anything interesting in the 🧵! Audience seated in front of a projector screen, reading &quo interesting slides so far: wastewater testing process, results since August 2020. Hoffman mentioned that the CDC is working on correlating wastewater data to infections.
Mar 16, 2022 • 11 tweets • 4 min read
Last year, delta overwhelmed hospitals in Idaho, causing 6,300 patient transfers in 4 months. @audreydutton and I looked at this period as a case study of the US’s decentralized healthcare system, for @19Documenting & @IdahoCapitalSun: (1/11)
idahocapitalsun.com/2022/03/16/ida… I analyzed data from the Idaho Department of Health and Welfare on transfers throughout 2021, focusing on a 4-month period in which Idaho went into crisis standards of care to allow hospitals to conserve their limited resources. (2/11)
Jan 12, 2022 • 7 tweets • 3 min read
are you a journalist covering #LongCovid? then I have a resource for you! @fi_lowenstein and I worked on this database of Long COVID patients and experts who are interested in talking to reporters about their experiences: (1/5) ImageImage the database includes over 300 Long COVID sources from the U.S. and other countries. you can find experts on Long COVID research, patient care, policy, mental health, and related conditions (like ME/CFS), among other topics. (2/5) longcovidsourcelist.notion.site/longcovidsourc…