Something I think is super obvious to #pwME (and maybe ME clinicians or researchers) but not to the rest of the people around us is that often we can Do The Thing.

Once.

We can Do The Thing once but we can’t repeat Doing The Thing on an ongoing/recurring basis. Some examples:

I showered today. I didn’t even crash much yet.

But I can’t maintain a daily or even weekly shower routine.

#MEcfs

I often see posts about defending chronically ill and disabled people who can’t work from the idea that we’re all just on a fun vacation and long to be productive and go back to work.

And, while I long to be able to do more of my life I do not long for work or productivity. Feels like I’m not allowed to say that being disabled out of the workforce has *solidified* my disinterest in work and busyness and productivity.

Feels like if you can’t work, you have to perform longing to return to work or you’re getting off “easy” being disabled.