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Sharan
@crohnsbabble
book lover, wanderluster & casual netballer ▪︎ diagnosed w/ crohn's disease 2002 ▪︎ co-founder of @ibdesis & director of digital engagement at @southasianibd 💜
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Feb 2, 2022
•
5 tweets
•
16 min read
@rebelliousgut
@MondayNightIBD
@southasianIBD
@ibdesis
@Empoweringpts9
@DCharabaty
@ownyourcrohns
@LivingWithUmeed
@vkckiranpullela
@TheMaveilousGut
@dunung_ruchita
1/ When I transitioned to adult care at 17, I felt like I was stuck in a constant loop of tapering off prednisolone, flaring, and then ending up in hospital on IV steroids only to end up on another course of steroids for my
#IBD
.
#MondayNightIBD
#SouthAsianIBD
@rebelliousgut
@MondayNightIBD
@southasianIBD
@ibdesis
@Empoweringpts9
@DCharabaty
@ownyourcrohns
@LivingWithUmeed
@vkckiranpullela
@TheMaveilousGut
@dunung_ruchita
2/ After speaking w/ a friend who knew someone w
#Crohns
, I decided to try
#CAM
. I didn't know what else to do. The promise of a "cure" & feeling defeated by the constant steroid cycle I was prescribed drove me to seek out another option.
#MondayNightIBD
#SouthAsianIBD
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Feb 2, 2022
•
13 tweets
•
41 min read
@rebelliousgut
@MondayNightIBD
@southasianIBD
@ibdesis
@Empoweringpts9
@DCharabaty
@ownyourcrohns
@LivingWithUmeed
@vkckiranpullela
@TheMaveilousGut
@dunung_ruchita
1/ I'm Sharan from 🇬🇧, co-founder Team
@ibdesis
. We are proud to lead
#PatientExperience
on
@mondaynightibd
to discuss specific aspects of
#SouthAsianIBD
experience. We hope to improve care for our community around the 🌍.
#MondayNightIBD
@rebelliousgut
@MondayNightIBD
@southasianIBD
@ibdesis
@Empoweringpts9
@DCharabaty
@ownyourcrohns
@LivingWithUmeed
@vkckiranpullela
@TheMaveilousGut
@dunung_ruchita
2/ My initial diagnosis came after months of going back & forth w my GP who was reluctant to refer to a specialist because they were certain that my symptoms couldn't be due to
#IBD
. In their own words, "
#SouthAsians
don't get IBD"
#MondayNightIBD
#SouthAsianIBD