Increase awareness of hereditary (familial) brain aneurysms, campaign for improved patient support and help build research into the condition as a rare disease
Feb 28, 2023 • 5 tweets • 3 min read
🧵 A few facts from our recent research review showing why more awareness and research are needed for familial brain aneurysm syndrome...
#RareDiseaseDay#Genomics#Research1) No one is collecting prevalence data in the UK. Globally, research suggests the prevalence of unruptured brain aneurysms in people with a family history has been recorded as 2.3%-29.4%. This is higher than in the general population, reported to be around 0.02%-8.8%.