Certified Sexuality Coach & Educator who helps folks get sex lives they want | Chronically ill (#mastocytosis), #ADHD, bisexual, polya | @GlittergasmEvnt
Aug 16, 2022 • 18 tweets • 6 min read
Medication is expensive as hell in the US, so here's a tools/tricks I've found to make it slightly more affordable based on my experience with several different healthcare plans over the last few years explained:
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1) @GoodRx is amazing. Download their app. It's completely free (there's a paid opt too, but you don't need it)
How to use it:
Input med name & dose/quantity. It'll show you a list of local pharmacies and some will have it listed cheaper than others. Select one for the coupon.
May 6, 2022 • 6 tweets • 3 min read
—Emergency Contraceptive & Weight Limits—
I've seen a lot of different info, so I did some research:
While the FDA doesn't currently state a weight limit on Plan B, Canada's labels warn of lower effectiveness if you weigh > 165 lbs & a lack of effectiveness > 175 lbs.
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.@PPFA's website states that Plan B (and other levonorgestrel emergency contraceptives brands such as Take Action, My Way, Econtra, etc.) may not work if you weigh over 155 lbs. Other studies show a high BMI may be a factor in effectiveness too.
When you see research that dismisses the experiences of chronically ill people, or goes against other proven facts—it's time to consider who's paying for that research to get published.
A lot of scientific research is paid for by corporations, and they're profiting from it:
Research is biased, bc often funding comes from private corporations who are invested in the outcome.
"...many in the scientific community [...] sign the NDAs—[making it] to discern whether a corporation has had any undue influence on research."
I believe patients should be as informed as possible about their medical conditions and health to be good advocates for themselves and often medical journal paywalls get in the way of that.
HERE ARE MY TIPS & RESOURCES TO FIND FULL-TEXT MEDICAL JOURNAL ARTICLES [thread]:
Disclaimer: I don't know (or care tbh) about the legality of these sources. I'm a chronically ill person with a rare disease and access to medical research has allowed me to advocate for myself and show my doctors research they hadn't read. Money should not be a barrier to that.
Dec 20, 2018 • 18 tweets • 7 min read
I have a ton of brain fog today, so bear with me, but I saw a lot of convos happening about #MCAS last night and I wanted to chime in with some info I've learned in the last decade since my #mastocytosis diagnosis.
For those unfamiliar, everyone's bodies have #MastCells. They're part of your immune system and they're responsible for a few things, but primarily they store ~200+ chemicals (called mediators) and release them when fighting off infections, allergens, etc.
