The (new) Royal Adelaide Hospital is a brownfield development. It’s a TOD (Transit-oriented development) with free trams across the road, railway station up north terrace, with connections to suburban bus routes. Dual helipad and minutes from the airport retrieval base. It (from memory) was the first development (or by far the largest) anchor building, which forms the health/biomedical centres for excellence. A lot of world leading scientists and very smart people work here, supporting an ever complex case mix of conditions world wide. 2/

Twitter, I’m about to get VERY grumpy. I have some of the smartest, caring people trying to support me. But despite literal hundreds of pages of evidence, @NDIS have said “insufficient evidence submitted” I’ve been in hospital 16 nights. Second fall admission in as many 1/ Months, with all due respect @NDIS @billshortenmp @stevegeorganas @PWDAustralia @JFAPurpleOrange @PictonChris @NatCookMP what the heck more can I possibly do? Enough gatekeeping, evidence is supplied by multiple specialists and allied health. I already have multiple 2/

Someone again has made changes to my drug chart with out advising. I don’t know what the hell is going on. It’s written multiple places on “My health plan for today” board in my room. EVERY knows this is tricky, don’t fiddle if you don’t inform the patient. Changed at 14:00 1/ Today never advised, never handed over. Let’s see if I can get this fixed without calling a consumer MET. It SHOULD not be this hard. 2/

It will come as no surprise, I’ve undergone a massive setback health/mobility wise in the last month. I’m not currently ambulant. I have been “compliant” with physio, but in the words of the consultant “we have quite a few things to work on” that friends is “my life” a team is 1/ Working on, I don’t want to alarm folks but the last 1/52 especially has been incredibly frightening. It appears I have had 2 falls in last 6/52, still can’t determine LOC or underlying cause. Make no mistake, absolutely hate being in hospital, especially and acute hospital. 2/

Something I’ve not posted about is the financial pressure octogenarian and I are under. I’m still learning how to manage his financial affairs as both an unpaid family carer and power of attorney. Last year with two weeks notice, I secured residential aged care (respite) 1/ For my dad, I then had surgery, discharged home, bumped back into hospital and spent essentially 6 months in hospital. While an admitted king stay patient, in the country, up to 90 minutes, one way from home. Here’s some of the things I had to sort through. I’m going forget 2/

I was going to try and detail just some of the hats I wear as a unpaid family carer (for my 83 yo octogenarian father) you know I got overwhelmed at the job list and just started sobbing. yeah, that happened. Probably explains why I can't sleep. I like to resolve things 1/ When you get to the deep level of "hard adulting" I've had to do over the past decade for my dads well being and safety, virtually everything is a mad challenge. How the hell you build skills and resilleance to deal with such, fork me, don't ask me. You've seen my tweets 2/

I'm in the process of applying for the Disability Support Pension. Wowers what a broken process. I've submitted a huge amount of information. Just had a 35 minute call. A report is then written. Then that report goes to the Disability Team @Centrelink for review. A letter 1/ Will then be generated. Either saying approved/denied/more info. A further review by a GAD Government Approved Doctor may need to take place before a decision is made. I'm living in financial poverty due to #Auspol social welfare policy. Just what am I meant to do in the 2/

CW: Mental Health/ Suicide/PTSD
I don’t want to jinks anything but I think I may finally be getting somewhere in sorting out the mess that is my life and insanely complex health issues. I won’t probably comment on how close I got to the advanced stages of planning I got to. 1/ In regards to doing everything possible to not see tomorrow. But let’s just say the past month has been scary. Those times I’ve just disappeared in here? That’s me going to “can’t see the edge cliff, because I’m right on it” because of systemic mismanaged at most levels 2/

In the state of South Australia in metropolitan #adelaide the #sagov has a #taxi subsidy scheme. Proving 50-75% off the meter up to a cap. Access taxi drivers also get paid a $25 lifting fee. Today is my first journey using the scheme as a full member. Todays booking has been 1/ The smoothest in terms of the access taxi (wheelchair taxi) turning up on time and the driver being happy, cheerful and relaxed. Contrast to my previous experience off driver accepting, rejecting, waiting for another driver to accept. Those without access to the subsidy are 2/

I used to be confused when I heard people with disabilities describe “winning” or having a battle with something. Right now which battle would you like to pick? Loved catching up with my 83yo father today in aged care, we had lunch together 1/ But hell the reality check was gut wrenching, I knew I’d find issues, probably only that I could advocate to remedy. Today I addressed one concern, left others I have to follow up and one that was made worse. The telling thing, my dad is in 24/7 2/

Good news from my private knee orthopaedic yesterday. I’ve not re-torn the medial meniscus, we’re going to assume I’ve bruised bone. So I have to reduce my step count/impact to let the body recover. Means I will 💯 have to use a wheelchair to mobilise. The knee walker is 1/ Is taking a break. To be really clear, I will do what I have to, I’d rather stand and walk, but right now, outside of transfers I need help my body recover. I’ve got a little over 5 weeks then it should be hydrotherapy 5 times a week. So now is the time to off load build 2/