ME/CFS is a connective tissue disorder caused/worsened by a virus. Ppl w/ ME/CFS & EDS often suffer from Craniocervical Instability & Occult Tethered Cord.
Unpopular opinion: if more than a handful of doctors knew the full gamut of the downstream effects of Ehlers-Danlos syndrome, Long Covid and ME/CFS might not be such a mystery. If your connective tissue is loosened, you are at risk for:
Small Fiber Neuropathy. Thoracic Outlet Syndrome. Gastroparesis. IIH without papilledema. Mast Cell Activation. Autoimmune Disorders. Cerebral Spinal Fluid Leaks. Cervical instability causing neurological issues such as word-finding & brain-fog as well as Occipital Neuralgia.
Jun 20, 2022 • 4 tweets • 2 min read
This informal poll about a heavy-head feeling in Long Covid is now finished. Lines up with @jencurtinmd 's poll last January. Thanks @Gronnet for doing it!
If Covid does deplete connective tissue, then #longhaulers should start looking a lot like patients with the connective tissue disorder Ehlers-Danlos Syndrome (EDS). One of the problems of EDS can be issues in the brain and spine that sometimes require neurosurgery. A thread:
In the book "Disjointed" -- a recent textbook comprised of essays regarding Ehlers-Danlos Syndrome -- Brown University neurosurgeon Petra Klinge has a chapter entitled "Neurosurgical Considerations."
