📢 Save the date! Wednesday 22 May - 7pm BST

Dr Binita Kane & Helen Oakleigh present "The Long Covid Clinic - What You CAN Do". In partnership with Long Covid Support.

Dr Binita Kane talks with David Putrino

Link here:

#LongCovid #MECFS #LCCWYCDnd youtube.com/live/DUVa4jK-q…
In this, Part 11 of the Fireside Chat series, Dr Binita Kane talks to David Putrino around the pathophysiology of Post Acute Infection Syndromes - including areas such as autonomic and mitochondrial dysfunction, viral persistence and established and emerging treatments.

1/4.Four patient advocates from 2 charities attended the @NHSEngland National #LongCovid Conference today. They weren’t invited originally. We had to push for those places. That took precious energy. Preparing for the day took energy. Travelling took energy. Talking took energy./ 2/4. Walking at the event took energy. Standing took energy. The noise, lights, movement around them took energy. Listening to talks and processing information took energy. And getting home is taking every last drop of energy they have./
#LongCovid

📣 Long Covid Support has responded to the Department for Work and Pensions’ Work Capability Assessment (#WCA): activities and descriptors consultation, Oct 2023 ⬇️ The response has been signed by #LongCovid & #MECFS support charities & advocacy organisations: @LongCovidSOS @LongCOVIDPhysio @LongCovidKids @SupportingHH_UK @LCNMUK & ME Local Networklongcovid.org/impact/stories…

LEGISLATE TO VENTILATE
✍️Long Covid Support have written an open letter to @SteveBarclay to ensure that effective Ventilation is available in all public spaces
📢We are calling for an URGENT #VentilationBill for all 🇬🇧 public spaces #CleanAirNow #DavosSafe
🧵We need your help👇 What can you do?
✍️Sign & Share this petition
change.org/VentilationBill
✍️Write to your MP
find their details here:
members.parliament.uk/FindYourMP
We've done a template to help:
tinyurl.com/2p8fuc67
💫Tag your MP 👇& tell them why Ventilation is important for you
💫Retweet

Launched today, in partnership with @LongCovidKids

Covid Reinfections in people with #LongCovid

Initial findings from our survey of almost 600 adults and children asking how #pwLC are affected when they get Covid again

longcovid.org/impact/the-fir… Respondents were:

484 adults; age 20-79; 82% female
112 children & young people age 3-19; 57% female
From 30 countries; top 3 – England 48%; USA 16%; Scotland 9.2%

Number of infections:
- 2 infections 85%
- 3 infections 13%
- >3 infections 2%

Commons debate on #LongCovid starts with @LaylaMoran giving an introduction.

"An estimated 300k have experienced #LongCovid in the UK. There are over 4000 more Long Covid cases added everyday"

#LongCovidCommonsDebate @AppgCoronavirus @march_change "There is nothing mild about Long Covid." @LaylaMoran continues.

"The all-party group are asking for three things:
Better reporting, urgent money for research and recognition by employers and the welfare system"

#LongCovidCommonsDebate @AppgCoronavirus @march_change