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Long Covid Support 🌍 Profile picture
Long Covid Support 🌍
@long_covid
UK Charity • Support • Advocacy • Research Involvement • Education • Keeping people with #LongCovid at the centre. #CureLongCovid
Jan 20 • 8 tweets • 2 min read
🚨1/5. Some findings from the 2024 National GP Patient Survey:

⚠️ 4.6% of people have #LongCovid

⚠️ In addition, 9.4% were not sure if they have Long Covid

⚠️ And 1.2% preferred not to say

(Question asked of 692,751 patients)

#CovidIsNotOver

Link⬇️ Slide with text saying Did patients have 'long COVID'? And Five per cent (4.6%) described themselves as having "long COVID". The majority (84.8%) said that they did not have "long COVID". Around one in ten (9.4%) patients were not sure and 1.2% said they would prefer not to say. Base: asked of all patients: 2024 (692,751). Ipsos GPPS National Report July 2024 Version 1 Public 🚨2/5. Impact of Long Term Conditions on day-to-day activities:

⚠️ Nearly 61% with a LTC said it reduces their ability to carry out day-to-day activities

⚠️ Includes 20.6% who said it reduces their ability ‘a lot’

(Asked of 432,862 patients)

#CovidIsNotOver
#LongCovid Slide with text saying Do any long-term conditions or illnesses reduce patients' ability to carry out their day-to-day activities? Around three in five (60.9%) of those with a long-term condition or illness reported that this reduces their ability to carry out their day-to-day activities', including 20.6% who said 'a lot and 40.3% 'a little'. 1 Yes = 'yes, a lot' and 'yes, a little'. Base: asked of all patients with a long-term condition or illness: 2024 (432,862). Ipsos | GPPS National Report | July 2024 | Version 1 | Public. There is also a graph illustrating the results.
May 17, 2024 • 5 tweets • 2 min read
📢 Save the date! Wednesday 22 May - 7pm BST

Dr Binita Kane & Helen Oakleigh present "The Long Covid Clinic - What You CAN Do". In partnership with Long Covid Support.

Dr Binita Kane talks with David Putrino

Link here:

#LongCovid #MECFS #LCCWYCDnd youtube.com/live/DUVa4jK-q…
Image of Dr Binita Kane on the left and David Putrino on the right Potential Treatments for Long Covid and ME/CFS Dr Binita Kane talks with David Putrino Neuroscientist, Physical Therapist and Director of Rehabilitation Innovation Live Wednesday 22 May 2024 7pm BST The Long Covid Clinic - What You Can Do You Tube @LCCWYCD Logos include Long Covid Support In this, Part 11 of the Fireside Chat series, Dr Binita Kane talks to David Putrino around the pathophysiology of Post Acute Infection Syndromes - including areas such as autonomic and mitochondrial dysfunction, viral persistence and established and emerging treatments.
Mar 28, 2024 • 4 tweets • 1 min read
1/4.Four patient advocates from 2 charities attended the @NHSEngland National #LongCovid Conference today. They weren’t invited originally. We had to push for those places. That took precious energy. Preparing for the day took energy. Travelling took energy. Talking took energy./ Woman wearing a hat, mask and Long Covid Support top looking exhausted. 2/4. Walking at the event took energy. Standing took energy. The noise, lights, movement around them took energy. Listening to talks and processing information took energy. And getting home is taking every last drop of energy they have./
#LongCovid
Oct 31, 2023 • 12 tweets • 2 min read
📣 Long Covid Support has responded to the Department for Work and Pensions’ Work Capability Assessment (#WCA): activities and descriptors consultation, Oct 2023 ⬇️ The response has been signed by #LongCovid & #MECFS support charities & advocacy organisations: @LongCovidSOS @LongCOVIDPhysio @LongCovidKids @SupportingHH_UK @LCNMUK & ME Local Networklongcovid.org/impact/stories…
Jan 30, 2023 • 4 tweets • 7 min read
LEGISLATE TO VENTILATE
✍️Long Covid Support have written an open letter to @SteveBarclay to ensure that effective Ventilation is available in all public spaces
📢We are calling for an URGENT #VentilationBill for all 🇬🇧 public spaces #CleanAirNow #DavosSafe
🧵We need your help👇 Letter to Steven Barclay calling for a ventilation billCo-Signatories for effective ventilation in public spaces in What can you do?
✍️Sign & Share this petition
change.org/VentilationBill
✍️Write to your MP
find their details here:
members.parliament.uk/FindYourMP
We've done a template to help:
tinyurl.com/2p8fuc67
💫Tag your MP 👇& tell them why Ventilation is important for you
💫Retweet
Sep 8, 2022 • 7 tweets • 5 min read
Launched today, in partnership with @LongCovidKids

Covid Reinfections in people with #LongCovid

Initial findings from our survey of almost 600 adults and children asking how #pwLC are affected when they get Covid again

longcovid.org/impact/the-fir… Respondents were:

484 adults; age 20-79; 82% female
112 children & young people age 3-19; 57% female
From 30 countries; top 3 – England 48%; USA 16%; Scotland 9.2%

Number of infections:
- 2 infections 85%
- 3 infections 13%
- >3 infections 2%
Jan 14, 2021 • 28 tweets • 21 min read
Commons debate on #LongCovid starts with @LaylaMoran giving an introduction.

"An estimated 300k have experienced #LongCovid in the UK. There are over 4000 more Long Covid cases added everyday"

#LongCovidCommonsDebate @AppgCoronavirus @march_change "There is nothing mild about Long Covid." @LaylaMoran continues.

"The all-party group are asking for three things:
Better reporting, urgent money for research and recognition by employers and the welfare system"

#LongCovidCommonsDebate @AppgCoronavirus @march_change