UK Charity • Support • Advocacy • Research Involvement • Education • Keeping people with #LongCovid at the centre. #CureLongCovid
1 subscribed
May 17 • 5 tweets • 2 min read
📢 Save the date! Wednesday 22 May - 7pm BST
Dr Binita Kane & Helen Oakleigh present "The Long Covid Clinic - What You CAN Do". In partnership with Long Covid Support.
Dr Binita Kane talks with David Putrino
Link here:
#LongCovid #MECFS #LCCWYCDnd youtube.com/live/DUVa4jK-q…
In this, Part 11 of the Fireside Chat series, Dr Binita Kane talks to David Putrino around the pathophysiology of Post Acute Infection Syndromes - including areas such as autonomic and mitochondrial dysfunction, viral persistence and established and emerging treatments.
Mar 28 • 4 tweets • 1 min read
1/4.Four patient advocates from 2 charities attended the @NHSEngland National #LongCovid Conference today. They weren’t invited originally. We had to push for those places. That took precious energy. Preparing for the day took energy. Travelling took energy. Talking took energy./
2/4. Walking at the event took energy. Standing took energy. The noise, lights, movement around them took energy. Listening to talks and processing information took energy. And getting home is taking every last drop of energy they have./
#LongCovid
Oct 31, 2023 • 12 tweets • 2 min read
📣 Long Covid Support has responded to the Department for Work and Pensions’ Work Capability Assessment (#WCA): activities and descriptors consultation, Oct 2023 ⬇️
The response has been signed by #LongCovid & #MECFS support charities & advocacy organisations: @LongCovidSOS @LongCOVIDPhysio @LongCovidKids @SupportingHH_UK @LCNMUK & ME Local Networklongcovid.org/impact/stories…
Jan 30, 2023 • 4 tweets • 7 min read
LEGISLATE TO VENTILATE
✍️Long Covid Support have written an open letter to @SteveBarclay to ensure that effective Ventilation is available in all public spaces
📢We are calling for an URGENT #VentilationBill for all 🇬🇧 public spaces #CleanAirNow#DavosSafe
🧵We need your help👇
What can you do?
✍️Sign & Share this petition change.org/VentilationBill
✍️Write to your MP
find their details here: members.parliament.uk/FindYourMP
We've done a template to help: tinyurl.com/2p8fuc67
💫Tag your MP 👇& tell them why Ventilation is important for you
đź’«Retweet