Lucille Profile picture
Side account used to keep up with the way pain is treated in the realm of public policy.
Sep 4, 2021 13 tweets 4 min read
Brief summation of my long #RealPainStory - I was born with Ehlers-Danlos Syndrome. Significant motor control issues were evident from the get go, and I’ve been in physical therapy pretty much constantly since I was two months old. Some of my earliest memories revolve around 1/13 the significant musculoskeletal pain that comes hand in hand with the disorder. Although I was always unable to be in sports or play around physically with other kids, I functioned well enough academically until about age 12. Then everything changed. I started experiencing 2/13