Today is #WorldMeDay-a day to reflect on a life changing, debilitating & disabling illness that can affect anyone at any stage of life....#myalgicencephalomyelitis.
Millions of people are missing from their lives because of this illness yet there is still no cure or treatment.1/ Many have lived with this illness for decades, being told it's in their heads, it's 'yuppy flu', being stigmatised & dismissed by health professionals, governments, family & friends.
Can you imagine how dreadful that would be on top of being severely ill with symptoms such as 2/

It's been a while since I've been on Twitter...here's why.
It's been over 31 months since I first contracted C19 & my life changed. 31 months since I was able to work in either of the jobs that I loved, been the mum, wife, sister, daughter & friend I once was. 1/ Because of #LongCovid I'm crippled daily by fatigue, pain, brain fog, breathlessness, muscle weakness, tinnitus, nausea, post exertional malaise...list goes on. I'm 60-80% bedbound, unable to drive, when able to go out I use a wheelchair. My husband & daughters are my carers. 2/