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Sage Profile picture
Sage
@sagetoko
Applied Physics PhD working in industry. Views my own. Fiber arts, cooking, baking. #NEISVoid she/her 🐘❤️
Jun 17, 2022 • 5 tweets • 2 min read
Finished my eight-week low dose prednisone taper! Yay!

Don’t let anyone tell you there’s no treatment for #LongCovid, nothing to be done. I am VASTLY better than I was before we started treating me. For those who are interested: the prednisone taper was part of a cytokine-suppression protocol: LDN, H1 blocker, H2 blocker, statin (atorva- in my case), fluvoxamine (or ivermectin in some cases), prednisone taper.
Apr 4, 2021 • 10 tweets • 4 min read
I looked at a calendar this morning and realized that it’s April 3rd. Thread.

I have #LongCovid: more details of my story are in my pinned thread, linked below. My constant migraine started when I woke up on Ocober 3rd, so today is my six-month anniversary. Lots of feelings. /1 @bennessb in her as-always infinite wisdom somewhat prepared my for this by asking earlier this week if I mark chronic illness anniversaries, and how. Then, I mostly thought about how I interact with the anniversary of my knee surgery, which returned me to walking and dancing. /2
Feb 28, 2021 • 6 tweets • 2 min read
I have #LongCovid. I don’t know if I’ll ever be able to work full time again. I got a PhD in Applied Physics, in part funded by the Dept of Defense, to get my job WHICH I LOVE. I am incredibly privileged to have good health care, disability insurance, and understanding managers. It is ... infuriating, confusing, and difficult beyond words to be watching the world continue to ignore #LongCovid when discussing outcomes of this disease, and impacts on society. It’s not just about whether you live or die in the near term.
Dec 13, 2020 • 7 tweets • 4 min read
@FlailTv @KellyCDB Method one, that I think is fixing my SI joint: while sitting “normally” in a chair, plant my feet against the floor or hook one ankle around the other. Lean forward and brace my arms against a table and use my leg muscles to push my upper femurs outwards. Something goes click. @FlailTv @KellyCDB I sort of idly do this multiple times a day, especially if I’m sitting “normally” a lot.