hi👋 ..day 1,537. pushed on for 6mths at work then realised how unwell i was and quit.
Have gone from an independent healthy 39 yr who loved her life and career... to having to move back in with elderly parents.
Double whammy of LC 1st then VI.
1/

https://twitter.com/Dave_it_up/status/1805376576462246088

developed:
Severe clotting disorder
Several autoimmune disorders & MECFS (which may be one)
Cluster Headaches (aka "su1c1de headaches")
Didnt work privately ( few did in UK 'til recently) prior to this so...govt pay =no home to sell.
No financial compensation for this hell.
2/

I am sure I’m not the first Dr who has stumbled upon the scandal of MECFS - due to developing it themselves. I’m sure I’m not the first to learn from others in the community about the history of the condition. In sure I’m not the first to use their limited energy to hunt 1/ down a copy of Dr Melvin Ramsay’s book, to finally get their hands on it and then be taken aback at the clear details of a neurological illness with clear evidence of an immune component - that some psychiatrists .. somehow/for some reason … decided was psychogenic in origin 2/

Still processing the fact I got the “ your bloods are all fine”. Overall this is relief, as they haven’t been. Say overall as ..I know that I’m still not “well” and that these aren’t looking for eg microclots & know the feeling that many of us have on being told essentially 1/ what sounds like “ see, there’s nothing wrong with you” . But the truth is that many of us with long covid are still having bizarre fluctuating blood results for years now . LFTs, triglycerides and cholesterol seem to be the ones that I hear others have and this has been my

Long Covid disabled them.

Did he just say that delta was increasing or am I dreaming ? Vaccination especially important as delta is increasing ? cnn.com/2023/02/25/bus… …id19-country-overviews.ecdc.europa.eu/variants_of_co…

Having a really interesting chat with a friend about how there was a “ sizing up” stage post war. Then the super skinny twiggy thing came along . I thought the years of hearing “ she used to be slim and attractive” ( not about me but it could be in the eyes of 1n Both boomer generations ( twiggy ) and mine - the return of the super waif ( Kate moss) . Growing up in one with parents from the other really truly did make me believe that I had to be stick thin to be attractive. And back then, in my youth anyway - the focus was always on 2n

Transient elevation of triiodothyronine caused by triiodothyronine autoantibody associated with acute Epstein-Barr-virus infection - PubMed

LOOK!!

Thank you ⁦@renesugar⁩ … genius!!! pubmed.ncbi.nlm.nih.gov/12699597/ “Acute #EBV infection may be associated with transient mild to severe TT(3) elevation as a result of assay interference by anti-T(3) autoantibodies.”

Where can I get tested for anti-t3 antibodies ?

I’m still sleeping all the time but this has actually woken me up a bit!!