Through @SimonoffBob I've spoken to a cpl ppl who are newly dx'd or suspect they have hEDS, and I promised some resources.
Since there's an #EDSToolkit and lots of papers/research available through Bob + others like @HMSACharity @t7_linda @DrEReinhold @H2OhTwist, I thought ... I would instead share some of my personal resources. These are PSAs I wrote to my family&friends and posted to FB a couple of years back. They received an overwhelmingly supportive response. They took the onus off me, and put it onto others. And it was so very cathartic. They...