Haven't tweeted for a few days, a bit of a rollercoaster ride again with #longcovid and symptoms, up and down but hopeful that I'm heading in the right direction. Day 122 since onset of symptoms.
Here's a thread on what's been happening #covid19 1/n
On Day 119 (Wednesday), my GP called to check in on how I'm doing. Sad to report that compared to the brilliant interactions I've had with her so far during #longcovid, this was not a great interaction. Made me feel like I was being a nuisance with my questions 2/n
I will explain more in another thread, but this one brief interaction with my GP left me feeling like I don't want to speak to my GP again for some time. It's really interesting how just one negative interaction can change your perception of a service 3/n
I woke up on Day 120 (Thursday) feeling incredibly sad, apathetic & tired. This sudden change in mood has happened before, many times during this illness. I didn't really feel like interacting with the world, and I did the bare minimum at home with some time just in bed 4/n
Day 121 (Friday), I was back to my normal upbeat self, getting out to the park at sunrise & had a great cycle ride. I am feeling interested in #digitalhealth work again, so have ordered the new Samsung Galaxy Watch 3 (it claims to estimate and monitor blood oxygen levels) 5/n
Friday continued to be a fun day, I drove 120 miles round trip to test drive the new #Polestar2 #electriccar - A very enjoyable experience and the car itself is a very well designed high quality car that just happens to be electric 6/n
Using the Google Assistant to control the car's functions was fun until the car seemed to lose the internet connection at 70mph and hence my verbal request to change the temperature of the climate control was timing out, and required me to look away and use the touch screen 7/n
A few bugs, but overall, a very compelling proposition in terms of the first car powered by Android. From a health perspective, I can imagine in the next 20 years, our cars would be a virtual health coach, monitoring and analysing our vital signs/mood/wellbeing as we drive 8/n
I also had my 2nd Manual Lymphatic Drainage (MLD) massage on Friday too to try and help with my persistent lower body symptoms. Once again, it provided immediate relief, and that relief from the symptoms is still there the next day 9/n
I did ask the therapist why the MLD only provides temporary relief and why after 2 days my lower body issues return (i.e. not being able to squat, pain when walking up/down stairs), and she said that with more sessions, she hopes the effects last longer 10/n
I have one more MLD session on Monday, not sure how feasible it would be to have many more sessions though. Each session if £70 for 1 hour. She told me to see how long the relief lasts after Monday's session and we can take it from there 11/n
Went to bed late due to the heatwave here in London, but one noticeable impact of the MLD was the improvement in my sleep last night, both in terms of overall duration and REM/deep sleep. Sleep during #longcovid tends to be light and under 2.5 hours 12/n
So my recovery progresses, and I hope I have fewer bad days like the one this week where I felt sad, apathetic and tired. I have some work with clients next week, but keeping it to a few hours a day maximum, to ease myself back into the world of work 13/n
I've also been booked by a client for a virtual keynote speech next month. My insights as a #longcovid patient and what that means for #digitalhealth & healthcare in general should make for some impactful storytelling. I'm glad I'm able to contribute again after being unwell 14/n
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