Tamara @chydorina & Tess @ales_frost are scientist-patients who improved from severe #MECFS after taking antibiotics
Our aim w/ remissionbiome.org is to see if modifying the microbiome or other effects of antibiotics can shift the baseline in ME/CFS
gofund.me/2a6e35b8
1. The idea for #remissionbiome came from us experiencing temporary remission after taking antibiotics & in Tamara’s case, probiotics. While remission was fleeting, afterwards, our baselines improved remissionbiome.org/our-story/
Our aim is to recreate this event +understand it
2. There are many possible hypotheses for what might have happened during our temporary remission events, but many follow: Change in gut → mass neuroglia homeostatic event → sudden decrease in sickness response
We are continually adding ideas to remissionbiome.org/hypotheses/
3. We will take AmoxClav, probiotics, prebiotics, postbiotics, & exogenous ketones during our experiment. remissionbiome.org/planned-protoc…
Before, during (if a remission event happens), & after we will test w/ @biomesight @ProdromeScience @imyoohealth @DutchTestLab @siphoxhealth +more!
4. While remission was short-term, (2 days for Tess & 4 hours for Tamara), we experienced an increase in baseline function that was significant. Tamara went from Severe to Moderate (bedridden to walking) & Tess went from Severe/Moderate to Moderate/Mild. remissionbiome.org/our-story/
5. While temporary remission is the immediate goal, it is not the ultimate goal: which is a lasting shift in baseline function, one that might even be kicked up a notch a few times with repeated temporary remissions.
(Thanks to @winstoncb for creating this graphic for us!)
6. Want to get involved? DM us for more info or donate to gofundme.com/f/Remissionbio…
Look out for phase 2 of this experiment that will bring in more participants!
To get updates, sign up for our email list: RemissionBiome.org
7. Read more about our story in this article written by @NataliaHodgins:
"...it was like a switch had been flipped. I went from being bedbound in a darkened room, to running around outside making angel shapes in the grass"
healthrising.org/blog/2023/02/1…
Thanks to @mervetepePhD @susan_mecfs @Magnolia9109305 for helping with this thread
Share this Scrolly Tale with your friends.
A Scrolly Tale is a new way to read Twitter threads with a more visually immersive experience.
Discover more beautiful Scrolly Tales like this.