Community science, patient-led project of the non-profit, decentralized research org, @renegaderes.
Serendipity meets preparation.
https://t.co/IkTfALVBWC
Sep 17 • 34 tweets • 7 min read
’s a progress update on the Remission Biome project. It includes protocol structure changes, #Renegade50 progress, inside insights, new science, and other exciting news!1.Here2. This thread is 34 Tweets long. If you don’t have spoons to read, you can sign up for our public update Meeting Oct 9 at 2pm EDT More details and additional topics will be discussed at the meeting.us06web.zoom.us/webinar/regist…
Jan 24 • 19 tweets • 6 min read
We're excited to announce that Peter Rowe, MD will be presenting to the @remissionbiome @renegaderes community on Feb 9 & 16!
What’s new in ME/CFS, OI/POTS, CCI, MCAS, and more
Changes in the gut microbiome in ME/LC - Do microbial tryptophan metabolites play a role in disease
Jun 23, 2023 • 13 tweets • 5 min read
🧵 1/13
📣Shout out to #MECFS & #LongCOVID community.
🔹Today, we're launching the first thread of our "Themed Tweet Series".
🔹 These series are going to be comprised of the videos Tamara (@chydorina ) recorded for you.
🔹They're the subtitled versions of the videos shared by Tamara through different times and they're gonna be presented in "themes' for easy-access.
🔹Apart from that, the subtitled videos and video transcripts are gonna be uploaded to and to in order to provide accessibility for our beloved #RemissionBiome family.
🔹 Today's theme is "Remission Biome in a Nutshell".
🔹 This is to introduce you all aspects of the Remission Biome Protocol in brief.
🔹Hope they help and hope you have a great day.
🔹Well, here we go!youtube.com/@remissionbiome remissionbiome.org/blog
🧵2/13
The many hats worn by @tessfalor @chydorina @IsabelRamirezRD in @remissionbiome
- We are patients, we are PhDs, we are researchers, and we've had remissions and increases in our baselines like the ones we are trying to re-create here.
Feb 21, 2023 • 9 tweets • 7 min read
Tamara @chydorina & Tess @ales_frost are scientist-patients who improved from severe #MECFS after taking antibiotics
Our aim w/ remissionbiome.org is to see if modifying the microbiome or other effects of antibiotics can shift the baseline in ME/CFS
Hi👋🏼This account is run by Tamara @chydrorina + Tess @ales_frost. We’re scientists+patients (yes, you can be both!), who improved from severe #MECFS after taking antibiotics
Our aim w/ #remissionbiome is to look at how modifying the microbiome can shift a person w/ME’s baseline
The idea for #remissionbiome came from both of us experiencing temporary remission, after taking a mix of antibiotics (& in Tamara’s case, probiotics). While remission was fleeting, afterwards, our baselines improved.
Our aim is to recreate this event + understand it.
Dec 12, 2022 • 5 tweets • 3 min read
Tamara @chydorina & Tess @ales_frost both experienced extreme, “state-change”, temporary, remission events from ME/CFS, w/⏫in baseline afterwards
#remissionbiome refers to a self-experiment to recreate the experience. 🧵 with summary.
Also here: tinyurl.com/yyj4yj4v
They will take AmoxClav, probiotics, prebiotics, postbiotics, & exogenous ketones during their experiment.
Before, during (if a remission event happens), & after they will test with @biomesight@ProdromeScience@imyoohealth & some blood tests like TNF alpha, CMP, CBC
