RemissionBiome MECFS/LongCovid Self-Experiment Profile picture
Run by PhD-patients @chydorina & @tessfalor https://t.co/IkTfALVBWC https://t.co/yJwLhFmKbt To contribute to the community https://t.co/3xpR8zqtu4
Jan 24 19 tweets 6 min read
We're excited to announce that Peter Rowe, MD will be presenting to the @remissionbiome @renegaderes community on Feb 9 & 16!

What’s new in ME/CFS, OI/POTS, CCI, MCAS, and more

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#MECFS #LongCOVID #CCI #AAI #MEspine #MCAS #hEDS #POTS #TOSus06web.zoom.us/meeting/regist…Image Part 1 - Peter Rowe, MD

Feb 9 at 2pm EST

Dr. Rowe will cover:

✨Orthostatic Intolerance & Brain Blood Flow
✨Venous compression syndromes

Register here: us06web.zoom.us/meeting/regist…Image
Jan 22 23 tweets 3 min read
Live now! Changes in the gut microbiome in ME/LC - Do microbial tryptophan metabolites play a role in disease
Jun 23, 2023 13 tweets 5 min read
🧵 1/13

📣Shout out to #MECFS & #LongCOVID community.
🔹Today, we're launching the first thread of our "Themed Tweet Series".
🔹 These series are going to be comprised of the videos Tamara (@chydorina ) recorded for you.
🔹They're the subtitled versions of the videos shared by Tamara through different times and they're gonna be presented in "themes' for easy-access.
🔹Apart from that, the subtitled videos and video transcripts are gonna be uploaded to and to in order to provide accessibility for our beloved #RemissionBiome family.
🔹 Today's theme is "Remission Biome in a Nutshell".
🔹 This is to introduce you all aspects of the Remission Biome Protocol in brief.
🔹Hope they help and hope you have a great day.
🔹Well, here we go!youtube.com/@remissionbiome
remissionbiome.org/blog 🧵2/13
The many hats worn by @tessfalor @chydorina @IsabelRamirezRD in @remissionbiome
- We are patients, we are PhDs, we are researchers, and we've had remissions and increases in our baselines like the ones we are trying to re-create here.
Feb 21, 2023 9 tweets 7 min read
Tamara @chydorina & Tess @ales_frost are scientist-patients who improved from severe #MECFS after taking antibiotics

Our aim w/ remissionbiome.org is to see if modifying the microbiome or other effects of antibiotics can shift the baseline in ME/CFS

gofund.me/2a6e35b8 1. The idea for #remissionbiome came from us experiencing temporary remission after taking antibiotics & in Tamara’s case, probiotics. While remission was fleeting, afterwards, our baselines improved remissionbiome.org/our-story/

Our aim is to recreate this event +understand it
Dec 14, 2022 7 tweets 4 min read
Hi👋🏼This account is run by Tamara @chydrorina + Tess @ales_frost. We’re scientists+patients (yes, you can be both!), who improved from severe #MECFS after taking antibiotics

Our aim w/ #remissionbiome is to look at how modifying the microbiome can shift a person w/ME’s baseline The idea for #remissionbiome came from both of us experiencing temporary remission, after taking a mix of antibiotics (& in Tamara’s case, probiotics). While remission was fleeting, afterwards, our baselines improved.

Our aim is to recreate this event + understand it.
Dec 12, 2022 5 tweets 3 min read
Tamara @chydorina & Tess @ales_frost both experienced extreme, “state-change”, temporary, remission events from ME/CFS, w/⏫in baseline afterwards

#remissionbiome refers to a self-experiment to recreate the experience. 🧵 with summary.

Also here: tinyurl.com/yyj4yj4v They will take AmoxClav, probiotics, prebiotics, postbiotics, & exogenous ketones during their experiment.

Before, during (if a remission event happens), & after they will test with @biomesight @ProdromeScience @imyoohealth & some blood tests like TNF alpha, CMP, CBC