Irish ME/CFS Association Profile picture
Irish Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Assoc. NB: Posts should not be considered advice. RCN 20100254 CHY 22039. Some #LongCovid items also.

May 1, 2023, 20 tweets

May is Myalgic Encephalomyelitis (ME) Awareness Month.

You can help by liking and/or retweeting this video. This 2017 TED talk features @jenbrea.



#MyalgicE #MyalgicEncephalomyelitis

Day #1

@jenbrea 2/

May is Myalgic Encephalomyelitis (ME) Awareness Month.
You can help by sharing and/or liking this video. It is 3 minutes 5 seconds long.

---
This film will give you an introduction to PEM (Post Exertional Malaise).

Once you've understood what PEM is… twitter.com/i/web/status/1…

@jenbrea 3/
May is Myalgic Encephalomyelitis (ME) Awareness Month.

You can help by sharing and/or liking this video (9 minutes) This is ME (2020) "A short film exploring 'Spoon Theory' told through the eyes of a young woman struggling with ME/Chronic Fatigue Syndrome"… twitter.com/i/web/status/1…

@jenbrea (2 minutes)
"What is ME/CFS (#MyalgicEncephalomyelitis/#ChronicFatigueSyndrome)?"



You can help by sharing and/or liking this short video

#MEcfs #CFS #MyalgicE
Day #4

@jenbrea 5/
May is Myalgic Encephalomyelitis (ME) Awareness Month.

You can help by liking +/or retweeting this 102-second video. "What is ME/CFS?" (excerpt from LEFT OUT, reproduced with kind permission from UpNorth Film, Norway)

#MyalgicEncephalomyelitis #MEcfstwitter.com/i/web/status/1…

@jenbrea 6/
May is #MyalgicEncephalomyelitis (M.E.) Awareness Month.

You can help by liking +/or retweeting this video. It's a preview of a documentary, formerly called "Blue Ribbon" (now called @forgottenplague)
(3 minutes 5 seconds)



Day #6

#MyalgicEtwitter.com/i/web/status/1…

@jenbrea @forgottenplague 7/
May is #MyalgicEncephalomyelitis (M.E.) Awareness Month.

You can help by retweeting and/or liking this video.

It's been approved for continuing medical education in the US


Day #7

#MyalgicE #ChronicFatigueSyndrome

@jenbrea @forgottenplague 8/

May is Myalgic Encephalomyelitis (M.E.) Awareness Month.

You can help by sharing and/or liking this video. It was made by a woman, @DreamsAtStake, with severe ME
Living with Severe ME
(5 minutes 13 seconds)


Day #8

#SevereME #SevereCFS

@jenbrea @forgottenplague @DreamsAtStake 9/
May is Myalgic Encephalomyelitis (M.E.) Awareness Month.

You can help by retweeting and/or liking this documentary, "Mom Needs to Lie Down".

It's a short Canadian film made in 2014. (11 minutes 25 seconds)



Day #9

#MyalgicE #MyalgicEncephalomyelitis

@jenbrea @forgottenplague @DreamsAtStake 10/
May is Myalgic Encephalomyelitis (M.E.) Awareness Month.

You can help by retweeting and/or liking this documentary, "Invisible".

It's a 60-minute documentary made in 2009 (but is timeless) [Skip forward to 14:50 to go to the start of "Invisible" proper]… twitter.com/i/web/status/1…

@jenbrea @forgottenplague @DreamsAtStake 11/

#May12 is #MyalgicEncephalomyelitis / #ChronicFatigueSyndrome Day

&

May is #MECFSawarenessmonth

Please help by retweeting and/or liking this 12-minute
documentary which features @DafoeWhitney & others

#Day11

#PwME @JanetDafoe

@jenbrea @forgottenplague @DreamsAtStake @DafoeWhitney @JanetDafoe 12/
May 12 is International Myalgic Encephalomyelitis (ME) Day (and May is ME Awareness Month) You can help by retweeting and/or liking this (well-made) video.

(3 minutes)


Day #12
#MyalgicE #MyalgicEncephalomyelitis #May12 #May12th #WorldMEDay2023twitter.com/i/web/status/1…

@jenbrea @forgottenplague @DreamsAtStake @DafoeWhitney @JanetDafoe 13/
This is a short (78-second) video about postexertional malaise in ME/CFS.

It uses the battery analogy, but also highlights the effects of payback i.e. the unusual results of exertion in ME. There is no sound.

May is #MEAwarenessMonth.

You can help raise awareness and… twitter.com/i/web/status/1…

14/

(2 minutes)
"How does it feel to live with ME/CFS? Patients describe what it's like"
May is ME Awareness Month.

You can help raise awareness and understanding by retweeting and/or
liking this video


Day 14
#MyalgicE #MyalgicEncephalomyelitis

15/

May is Myalgic Encephalomyelitis (M.E.) Awareness Month. You can help by retweeting and/or liking this 7-minute @ABrokenBattery video, "What is ME? (#MyalgicEncephalomyelitis aka #ChronicFatigueSyndrome #CFS)".



Day 15

@ABrokenBattery 16/

May is #MEcfs awareness month.

Please help by retweeting and/or liking this extract from a Golden Girls episode on #CFS


(part 1 of 2)

Day 16
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome

@ABrokenBattery 16b/
May is #MEcfs awareness month.

Please help by retweeting +/or liking this Golden Girls episode on #CFS


(part 2 of 2)
Day 16
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome

17/

May is #MyalgicEncephalomyelitis / #ChronicFatigueSyndrome (#MECFS) Awareness Month

Please help by sharing +/or liking this 6-minute Paper Stop-motion Animation About ME/CFS

18/

May is #MyalgicEncephalomyelitis (ME) Awareness Month.

You can help to raise awareness and understanding by retweeting and/or
liking this 7 minute 8 second-video made on young UK woman with severe
ME

Day 18
#SevereME #SevereCFS

19/

May is Myalgic Encephalomyelitis (M.E.) Awareness Month.

You can help by re-tweeting and/or liking this @MEAssociation video.

"A wonderfully illustrated comic to explain M.E also known as #ChronicFatigueSyndrome (#CFS) to other people" (2 minutes)
twitter.com/i/web/status/1…

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