I would really really really really appreciate if event flyers, invites, venue pages, etc. would tell you their accessibility information!
Is the venue wheelchair accessible??
Do you have sign language interpreters for performances??
Let me know ON the invite/flyer/website!!
Three times in the past 30 days: I get invited to a large public event and I have to play full-on detective to try and figure out if it is accessible, if I am welcome in the space!
Nothing on the email invite
Nothing on the website
Venue never answers the phone or their messages
One email said "The 1st floor SHOULD be accessible"
🤔
That doesn't make me feel safe to leave my house.
That I could arrive somewhere and have to turn right back around or miss out because they are not accessible.
(And honestly, it's Y'ALL that miss out when I'm not there! 💃)
It takes so much energy for me to get out of bed, get dressed, make the journey, particularly as a chronically ill person with chronic pain & fatigue...
But the limited time and energy I have to do something, I want to have fun, I want to feel WELCOME! Not merely tolerated.
And it's not just wheelchair accessibility and sign language interpreters, there are so many things that should be listed like if the show or event will be using strobe lights or other disorienting light effects.
Will there be fog machines?
What kind of chemicals are used?
Events/venues should have a page specifically for accessibility and if possible, aspire to have a specific point of contact for it as well!
In the US, the Americans with Disabilities Act passed in 1990 (long overdue), granting disabled Americans accessibility as a human right but... it's still a DAMN MESS.
If after 28 YEARS you're still not accessible...
[Gif: Judge Judy impatiently tapping on her wrist]
But also if you're not accessible... you're only adding to your evil by allowing us to come to your door to be turned away.
Welp. I tested positive for COVID-19 and my brain is exploding.
I created an update video about how it all went down and my thoughts/feelings at this time, I’ll link it here and I’ll also be turning the transcript into a thread:
So in about a month I will have been isolating at home for an entire year, I only left my house for necessities like walking my dog and going to the doctor and I have tested positive for COVID.
I don’t know how I will find it in me to forgive the selfishness of individuals this past year, how they threw disabled/vulnerable people under the bus for their own comforts; for vacations, restaurants, & gyms.
I am heart broken. This will define how I trust ppl moving forward.
When I can get back out into the world and start making new local friends my pre-requisite will be “If in response to the pandemic and a failure of a government, you voluntarily did things that put yourself and others at risk, then DONT TALK TO ME”
My new BumbleBFF bio.
“SEEKING: New friends in the area but only message me if you took the pandemic seriously and did everything you could to keep yourself, loved one, and community at large safe.
(Essential workers, you can come too obviously, as long as you did your best with your circumstances)”
Feeling kinda frozen and nauseous that some relatives of mine are spouting "covid19 is a conspiracy" rhetoric and refusing to wear masks...
It makes me scared for them and it makes me feel like they don't care about me or people like me who are high risk.
This has triggered my anxiety to the point of physical symptoms (dizzy, nauseous, tachycardia) especially that I have to take my sister to another doctors appointment today, in FLORIDA, where the numbers are climbing.
I'm sick at what this kind of thinking means for so many people.
I'm shocked at where this is coming from, from people I miss, from people I thought were careful.
"I miss you... but your actions put me and people like me in danger"
Saw yet another video of someone trying to use ADA to force their way into a store without a mask.
That's not how it works.
They can accommodate you by getting you what you need a different way but you can't endanger others if you cannot wear a mask.
And this is assuming you have a disability that truly prohibits you from wearing a mask, they do exist, and we have to try to continue believing people when they say it VS distrust and hostility as an initial reaction.
Its upsetting that so many people continue to abuse ADA, producing fake documents, certificates, identification, etc. that genuinely disabled people often DO NOT have or own.
This behavior fuels the prejudices and treatment of people who genuinely need these protections.
It's funny how when I refer to how casually ableist language is used, a common response is, "Its not used that way, we don't mean it that way"
But it is extremely clear that you do.
That you will use ABLEISM to mock someone you don't like doesn't make it less ableist!!
There are people witnessing you mock:
-needing two hands to hold a glass, maybe holding it from the bottom
-an affected or slow gait (walking ability)
-wearing diapers
...who also experience these things or know someone who does and now they know where you stand with THEM.
"I won't make fun of it if he discloses his disability"
No no no... no one OWES that to you.
And you don't hold the safety of disabled people over their heads until you're satisfied, until they perform disability the way you want or expect them to.