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27 Oct 19, 4 tweets, 3 min read
.@DrDhruvSinghal from @BIDMChealth Lymphatic Center is on stage now: multidisciplinary approach to #lymphedema care is a necessity, not a luxury. BIDMC's center includes lymphatic therapy, lymphatic medicine, body imaging, lymphatic surgery, and nuclear medicine.
#nln2019
The center runs a patient symposium every year to get the patient perspective, helps make program more patient-centric and really makes them a part of the team. (Love to see this!)
#nln2019
Within the center are 3 clinics: lymphatic surgery clinic, lymphedema treatment clinic, and lymphatic medicine clinic. Every week the entire team gets together to discuss cases and make decisions as multidisciplinary team.
#nln2019 Image
There's never been a policy in the country to cover lymphatic surgery procedures.... until a few months ago. @BCBSMA is the first, but one of the stipulations is that it MUST BE a multidisciplinary team.
#nln2019

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More from @TheLymphieLife

the Lymphie Life Profile picture
28 Oct 19
Antoine Louveau of @ClevelandClinic closing out the conference with a presentation on lymphatics of the brain: "We have to start caring about this lymphatic system."
#nln2019
Neurological disorders are extremely prevalent, extremely expensive, and there are limited therapies and treatments for what are often lifelong battles with large side effects.
#nln2019
The brain is the most metabolically active organ of the body - how does it remove its waste?

A few years ago, evidence was found of the gymphatic system. The glymphatic system is not really a structure but rather a concept.
#nln2019
Read 10 tweets
the Lymphie Life Profile picture
28 Oct 19
Carmen Recupero begins a presentation on the applications of neuro-lymphatic therpay... 🧠
#nln2019
A link between lymphatics and the brain has been suspected, but now there's research backing it up: "Treating lymphatic health in the body is not an arm and a leg."
#nln2019
Recupero coins a new term to describe her enthusiasm with glymphatics: "glymphie" 😅💙
#nln2019 Image
Read 10 tweets
the Lymphie Life Profile picture
28 Oct 19
Cheryl Brunelle from @MassGeneralNews is here now to discuss prospective screening for breast cancer-related #lymphedema. Re: establishing new guidelines - "This is just the beginning of a discussion that will progress over the next year or so."
#nln2019
Screening for #lymphedema should begin at pre-operative visit, and continues every time they see their oncologist. Patient education is key so they can be vigilant of symptoms themselves: "Changes can be subtle. We want them to call as soon as their arm is 'different.'"
#nln2019
When taking objective measurements, whether it's a tape measure or a BIS device, it's important to have protocol: "It's not only a tape measure that has potential for human error."
#nln2019
Read 6 tweets
the Lymphie Life Profile picture
26 Oct 19
Amy Rivera of @NinjasFightLE is up!! Her presentation is titled "The Power of Positivity: Learning How to Walk Again"
#nln2019
@NinjasFightLE With a dramatic photo of her severely swollen pre-op leg behind, Amy begins: "I had a dream for 20 years that I was 'normal,'" she says. "The biggest dream I had... was to wear jeans."
#nln2019
@NinjasFightLE Years of misdiagnosis and lack of answers left her without treatment. Amy's right leg was 200% larger than her left.
#nln2019
Read 4 tweets
the Lymphie Life Profile picture
26 Oct 19
Erica Demarch is speaking about incorporating sensory integration and movement strategies into exercise for #lymphedema.
#nln2019
Research on balance in the #lymphedema population is expanding: "The new research that's coming out is exciting, but there's still gaps."
#nln2019
Restricted movements change movement patterns - forced movement comes at the cost of coordination.
#nln2019
Read 4 tweets
the Lymphie Life Profile picture
26 Oct 19
Open discussion between panelists and audience on updating precautionary guidelines for #lymphedema.
#nln2019
"We need to get clear on what the definition of #lymphedema is, otherwise we're going to be over-treating and over-worrying [cancer] patients."
-Nigel Bundred, professor of surgical oncology, Manchester University NHS Foundation Trust
#nln2019
Wei Chen, professor & attending surgeon from @ClevelandClinic, offers metaphor as a precautionary note on randomized clinical trials: "We've all had good Chinese food and bad Chinese food. The same recipe by different chefs will taste different. Same goes for trials."
#nln2019
Read 7 tweets

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