Cheryl Brunelle from @MassGeneralNews is here now to discuss prospective screening for breast cancer-related #lymphedema. Re: establishing new guidelines - "This is just the beginning of a discussion that will progress over the next year or so." #nln2019
Screening for #lymphedema should begin at pre-operative visit, and continues every time they see their oncologist. Patient education is key so they can be vigilant of symptoms themselves: "Changes can be subtle. We want them to call as soon as their arm is 'different.'" #nln2019
When taking objective measurements, whether it's a tape measure or a BIS device, it's important to have protocol: "It's not only a tape measure that has potential for human error." #nln2019
A baseline measurement is necessary to accurately qualify breast cancer-related lymphedema. Higher risk of misdiagnosis without. #nln2019
BCRL is not only arm edema: sometimes there is breast edema. Need to educate patients about that as well as arm edema. #nln2019
Antoine Louveau of @ClevelandClinic closing out the conference with a presentation on lymphatics of the brain: "We have to start caring about this lymphatic system." #nln2019
Neurological disorders are extremely prevalent, extremely expensive, and there are limited therapies and treatments for what are often lifelong battles with large side effects. #nln2019
The brain is the most metabolically active organ of the body - how does it remove its waste?
A few years ago, evidence was found of the gymphatic system. The glymphatic system is not really a structure but rather a concept. #nln2019
Carmen Recupero begins a presentation on the applications of neuro-lymphatic therpay... 🧠 #nln2019
A link between lymphatics and the brain has been suspected, but now there's research backing it up: "Treating lymphatic health in the body is not an arm and a leg." #nln2019
Recupero coins a new term to describe her enthusiasm with glymphatics: "glymphie" 😅💙 #nln2019
.@DrDhruvSinghal from @BIDMChealth Lymphatic Center is on stage now: multidisciplinary approach to #lymphedema care is a necessity, not a luxury. BIDMC's center includes lymphatic therapy, lymphatic medicine, body imaging, lymphatic surgery, and nuclear medicine. #nln2019
The center runs a patient symposium every year to get the patient perspective, helps make program more patient-centric and really makes them a part of the team. (Love to see this!) #nln2019
Within the center are 3 clinics: lymphatic surgery clinic, lymphedema treatment clinic, and lymphatic medicine clinic. Every week the entire team gets together to discuss cases and make decisions as multidisciplinary team. #nln2019
Amy Rivera of @NinjasFightLE is up!! Her presentation is titled "The Power of Positivity: Learning How to Walk Again" #nln2019
@NinjasFightLE With a dramatic photo of her severely swollen pre-op leg behind, Amy begins: "I had a dream for 20 years that I was 'normal,'" she says. "The biggest dream I had... was to wear jeans." #nln2019
@NinjasFightLE Years of misdiagnosis and lack of answers left her without treatment. Amy's right leg was 200% larger than her left. #nln2019
Open discussion between panelists and audience on updating precautionary guidelines for #lymphedema. #nln2019
"We need to get clear on what the definition of #lymphedema is, otherwise we're going to be over-treating and over-worrying [cancer] patients."
-Nigel Bundred, professor of surgical oncology, Manchester University NHS Foundation Trust #nln2019
Wei Chen, professor & attending surgeon from @ClevelandClinic, offers metaphor as a precautionary note on randomized clinical trials: "We've all had good Chinese food and bad Chinese food. The same recipe by different chefs will taste different. Same goes for trials." #nln2019